If you’re over 18, live in Australia and have a rare disease, CaPPRE would love you to complete an online survey on your priorities and concerns relating to genomic testing. Insights will be shared with government policy-makers. Start the survey at: https://t.co/roqhT21m2K
Have you seen the difference patient participation can make in the HTAi AM? Witness this success by watching this video by Patient Voice Initiative, showcasing Patients at HTAi 2023 Adelaide, where more than 70 patients enriched our discussions:
https://t.co/nHGgaVqunR
CaPPRe's @MayaHoensJoshi presented last night at #Blood2023 on "Using digital health to empower multiple myeloma patients in shared decision-making: Findings from the ChoiceApp® pilot study".
To learn more about ChoiceApp®, visit https://t.co/eiV1C1mgRq
CaPPRe's Jenni Godsell is presenting on "Treatment Preferences and Goals Among People Living with CLL" tonight at #Blood2023. Stop by board H53 to check out the poster!
To learn more about the project visit: https://t.co/M3ZxZ1wOe5
CaPPRe is excited to be attending #Blood2023 in Melbourne! We’ll be sharing information about ChoiceApp, a new shared decision-making tool for people with myeloma, at Myeloma Australia’s exhibition stand. Come say Hello!
Today is World CLL Day! It's important for #CLL patients to receive comprehensive information & to properly understand all aspects of the disease. Knowledge empowers patients to take decisions that are right for them. #WCLLD23#WithTeamCLL#MentalHealth@CLLAdvocates
Last week, ausEE Inc.’s CEO and Founder, Sarah Gray, was in Adelaide for the Health Technology Assessment international (@HTAiOrg) 2023 Annual Meeting.
Such an amazing opportunity!
Image credit: @PCISG some of the 70+ patients and patient community reps at #HTAi2023Adelaide
I'm grateful to have spent the week at #HTAi2023Adelaide ! It was truly inspiring & I had the privilege of connecting with numerous dedicated individuals who share a common goal: centering the patient voice & patient values in healthcare decision-making… https://t.co/IexSDAjTiI
Just back from HTAi 2023 in Adelaide. Feeling encouraged by the number of patients that could attend and sessions with a patient focus. At Community and Patient Preference Research (CaPPRe) we are trying to get patient values and preferences embedded in d…https://t.co/CNB6iCaV1I
“Understanding what’s important to patients & how satisfied they are with different aspects of the healthcare pathway allows us to target areas for improvement”- CaPPRe’s Jenni Godsell presenting on the #MM Patient Experience Index ➡️ https://t.co/IdfBYLtIbr #HTAi2023Adelaide
CaPPRe's Samson Kong presented findings from a choice experiment exploring community willingness to fund new treatments at #HTAi2023Adelaide. Key takeaway: "Australians are willing to fund new treatments not already covered by the government". Learn more➡️ https://t.co/1sc8dvk5to
@simonfifer presenting some high-level findings from collaborative workshops with HTA members. One of the work streams being run by the @PCISG patient preference project subcommittee #HTAi2023Adelaide