CADASIL Support UK is a Registered Charity established in Nov 2017 . Our aim is to raise awareness & provide a network of support for patients, family & carers.
Great turnout - three figures- for our annual Cambridge CADASIL meeting. Thanks to all attendees and for the many questions. Special thanks to speakers Heather Pierce, Bernard Cho and the inspiring Sophie Jones and esp @Cadasilsupport1 @CUH_NHS @ACTcharity
Out now! Download the official poster for #RareDiseaseDay 2020 now available via https://t.co/ZzrcyoRCDd. Share it today to show your support for the rare disease community!
Jess Walsh presenting poster on BBB permeability and neuroinflammation in small vessel disease at Cambridge Cardiovascular Annual meeting - a very impressive range of exciting CVS research including stroke and vascular dementia @Cambridgecardio @TheBHF
For people with CADASIL a stroke is often the start of being diagnosed. This new advert by the #strokeassociation is part of the #rebuildinglives campaign and shows the imapct a stroke can have.
CADASIL is a rare disease and having a stroke is... https://t.co/A25MRc9aMG
On 7 April this absolute weirdo is running the Manchester marathon which is a ridiculous 26.2 miles.
Now I call her a weirdo because I’m jealous that I couldn’t run or even walk 26.2 metres
Karen Cooke you... https://t.co/SzUzGjZ4oG
Cambridge CADASIL meeting 2019
The next Cambridge CADASIL meeting will be held on Monday 10th June 2019 10.30am-4.30pm at the Clifford Allbutt Building Lectrure Theatre at Addenbrooke's Hopsital, Cambridge.
This years meeting will... https://t.co/Xp5JftBJSS
Very interesting meeting discussing European Academy of Neurology guidelines for diagnosis and management of #monogenic#stroke. A rapidly evolving field. Hopefully they’ll be ready to present at @EANeurology Conference in Oslo June 29-July 2 @StrokeGenetics
WHY CAN'T PEOPLE WITH A DIAGNOSIS BE A BLOOD DONOR? 💉
This is a question we have been asked so many times as even long term donors are told they are no longer allowed, once being given a diagnosis of CADASIL. This is even if a... https://t.co/BPeGwiHRaZ