Cancer52 also on Bluesky @cancer52org.bsky.social

Cancer52 represents more than 100 organisations united in their aim to improve the future for everyone affected by rare and less common cancers

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

Cancer52 has a new member! @CahonasScotland supports men with testicular cancer and their families, from diagnosis through treatment and beyond. Through education programmes, awareness campaigns, and peer support.

Read more: https://t.co/6GgBSRgQYe

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

Well done! Thank you so much for your support. 👏👏

[Josh Fenton-Glynn MP @JoshFG]

A truly epic day. Very proud to have run the London marathon in exactly 4 hours (to the second according to the official race timing), albeit my watch thought I was slightly quicker!

Thanks to everyone who’s sponsored me so far, many of you will know I ran the marathon for cancer charities in memory of my brother who I lost last year.

There is still time to sponsor me and anything you can do to get me closer to my target would mean a lot. https://t.co/2swtXDnzPk

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

Thank you so much for your support! 👏👏

[Josh Fenton-Glynn MP @JoshFG]

Over £2,000 🥹

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

Welcome to Cancer52's newest member; @LynchSyndromeUK, a national, patient-led charity committed to improving awareness, advancing equitable access to genetic testing, and supporting individuals and families affected by hereditary cancer risk.

See: https://t.co/pzePui22lP

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

Welcome to Cancer52!

[EGFR Positive Lung Cancer UK @EgfrUk]

We’re pleased to share that EGFR+ UK is now a member of @Cancer52org.

Cancer52 brings together charities working across rare & less common cancers.

Being part of this network means joining a wider collective voice calling for better diagnosis, treatment, support & access for people affected by #lungcancer.

We’re looking forward to working alongside others & helping make sure EGFR+ is part of those conversations. #LCSM

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

@EgfrUk has joined Cancer52! EGFR Positive UK provide trusted information, peer support and advocacy for EGFR positive lung cancer. Raise awareness of biomarker testing and targeted treatments while promoting equitable access to personalised care
See: https://t.co/Yxn3ADvwNV

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

@EgfrUk has joined Cancer52.

EGFR+ UK provide trusted information, peer support and advocacy for EGFR positive lung cancer. Raise awareness of biomarker testing and targeted treatments while promoting equitable access to personalised care.

Read more: https://t.co/Yxn3ADvwNV

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

Thank you to our excellent #BigCancer52Conversation speakers and panellists for sharing valuable insights aligned with the commitments in the new Cancer Plan.
Fantastic to come together with a shared goal - improving outcomes for everyone affected by rare & less common cancers

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

Today we’re hosting the #BigCancer52Conversation in Manchester focusing on how we can work together to support implementation of the National Cancer Plan, in relation to rare and less common cancers.

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

Our newest member, Leiomyosarcoma Research UK’s mission is to support research, provide education, and foster a strong community for leiomyosarcoma patients and their families across the UK.

Learn more: https://t.co/wQaoFF1C1e

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

Our newest member, @BardoFoundation is an international childhood cancer charity founded in memory of Bernardo “Bardo” Eggesbø.

They fund research, support patients and families, and lead Osteosarcoma Now, accelerating progress through collaboration to improve outcomes.

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

@DrScottArthurMP's Private Member’s Bill, supported by many of our member charities, has officially become law!
The Rare Cancers Act 2026 will prioritise long overlooked aspects of research, with the potential to transform outcomes for those affected by rare & less common cancers

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

@DrScottArthurMP Private Member’s Bill - supported by many of our member charities has officially become law!

The Rare Cancers Act 2026 will prioritise long overlooked aspects of research with the potential to transform outcomes for those affected by rare & less common cancers

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

Cancer52 sends our best wishes to Ashley Dalton MP as she steps back from her ministerial duties for health reasons. Our thanks for her brilliant work, alongside her colleagues in the DHSC, in developing the National Cancer Plan for England recently.

[Ashley Dalton MP @AshleyDalton_MP]

I have taken the decision to step down from my ministerial responsibilities to allow me to focus on my job representing you, the people of West Lancashire, while I continue to receive oral chemotherapy treatment.

My letter to the PM below 👇

[North West Cancer Research @NorthWestCancer]

55% of cancer deaths in the UK are caused by rare and less common cancers — yet these cancers remain underrepresented and underfunded.

That’s why we're a proud member of @Cancer52org, an alliance of charities working together to address this inequality.

#RareDiseaseDay

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

As the voice for rare and less common cancers in the UK, we join the call on Rare Disease Day 2026 for equity in social opportunities, healthcare, and access to diagnosis and therapies.

[ABPI @ABPI_UK]

This year’s @GeneticAll_UK #RareDiseaseDay focuses on equity and why it matters more than ever.

@WaldenChris, CEO of @Cancer52, reflects on what equity means in practice.

Read the full Q&A on the ABPI rare disease hub:
👉https://t.co/BUerQypCWj

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

MOVE Against Cancer has joined Cancer52!
They deliver evidence-based support through 5k Your Way community groups, tailored online programmes and accessible resources, improving wellbeing & supporting health outcomes during and after treatment.
See: https://t.co/vXmiEx5qwl

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

A breakthrough moment; a clear focus on rare and less common cancers in the new National Cancer Plan for England.

This plan has the potential to address longstanding issues for these cancers and we look forward to supporting its implementation.

[Cancer52 also on Bluesky @cancer52org.bsky.social @Cancer52org]

@worldcancerday is a reminder to come together to take action against cancer. In the UK, 47% of cancer diagnoses are of rare & less common cancers yet they account for 55% of cancer deaths. We must work collaboratively to overcome this difference.

#WorldCancerDay #UnitedByUnique