#StageIV#ColonCancer patient with mets to liver, spine, and legs. Advocate for #AYA cancer and patient inclusion. Not really a crab IRL. #AYACSM ๐จ๐ฆ ๐ฆ๐
Hi Everyone! Shannon here again. I wanted to share details for Jasonโs Celebration of Life on Saturday, April 27th at 2pm. For those who would like to view online the stream will be linking to the Home page of The Spireโs YouTube channel.ย Itโs not really an active channel because there are no other videos available for viewing, but it will be obvious when the stream starts 10-15 minutes beforehand.
Please join us if you can. ๐
The Spire Kingston - YouTube (https://t.co/iOdnoHKp6Q)
Hi everyone. Itโs Shannon-Jasonโs spouse aka Mrs. Canuck. I wanted to share the news of his passing here as it was such a major part of his journey.
Jason passed away Friday, April 5th peacefully with his Dad and I by his side.
Jason was an amazing human and I feel so grateful to have had him as my partner for 8 years. He has impacted so many people which is evident with all of these mentions and messages.
He gave us all a masterclass in grit, compassion, empathy, grace and humour right to the end.
He will be missed and never forgotten by all those who had the privilege of knowing him.
FUCK CANCER
Love,
Shannon
Iโm making the move from palliative care at home to inpatient care at the hospital this afternoon.
I have a bed at a really nice, new facility. Itโs private, has a generous amount of space, and is very comfort-focused.
This is the best decision for me.
Iโm never sure how much detail to give in a #cancer update.
As always, Iโve appreciated the love and support. From the pings, DMs, and calls.
Over the last week or so, Iโve been experiencing some new symptoms.
Jaundice being the worst and scariest. It means that my #ColonCancer is progressing quite quickly.
Weโre managing the symptoms. Itโs working.
It's March and its Colorectal Cancer awareness month and its a very important month to raise awareness All i ask is get screened and quote this with a selfie doing a strong arm like me below and tag @FightCRC and use hashtag #strongarmselfie
A couple of friends came to visit this afternoon. The three of us have various stages of #ColonCancer.
It was special to be able to spend a few hours catching up. With treatment cycles and distance (they both live 1.5-2hrs away) it can be hard to make things work.
One of them 3D printed a lithophane of Shannon and I, which we really love. Itโs a pretty cool gift.
@debbie_legault Precisely.
Itโs an individual choice and each person will have their rational or philosophical reasons for what they decide.
They cost benefit analysis is starting to move to the forefront of research.
Most of all, I think patients want control and options.
Quality time and comfort have always been more important to me than longevity.
One of my treatment options was to re-challenge FOLFOX. Having been treated with that regimen in a non-metastatic setting, the side effects alone are enough for me to know itโs a bad idea.
โฆand it didnโt work the first time.
So, with no reasonable treatment options available, I decided that itโs time to just stop.
Now, my symptoms are managed by community nursing. They come to my home to make sure that Iโm doing as well as can be from a comfort perspective.
Those appointments that used to fill the week have gone away. Iโm not being dragged around appointment to appointment. Instead, I get to spend time with my spouse, friends, and family.
Iโd rather that than by two weeks hooked up to an IV machine outside of my house.
#stageIV #ColonCancer #ColorectalCancerAwarenessMonth
Finished up my medical appointments for the week.
So far things are status quo. Iโll take it.
I wish I was doing something cool but Iโm drinking a hydration beverage. Been parched lately.
Picked up some Joyburst and have to admit itโs pretty tasty!
#StageIV#ColonCancer
@kango_rue Thatโs a throwback! I donโt remember the brand but itโs really familiar. If itโs not full of sugar and in a nonsensical package, how are people supposed to know itโs for kids?