Cancer Mum

Mum to childhood brain tumour/stroke survivor, Carer, Writer, Accessible Medical Records Advocate, ex NHS therapy/diagnostic radiographer aiming to improve care

[Cancer Mum @CancerMum]

Cancer Mum: So why do Patients and Carers want Health Records? https://t.co/nxo4LHQLGf

[Annie Dirlik @AnnieDirlik]

@Johnrashton47 We (patients) don't want AA or PA in our #NHS hospitals and GP surgeries. If AA and PA want to treat patients then get a medical degree.

[Cancer Mum @CancerMum]

@agemjourney Antibiotics given on the “just take them any way basis” despite my strong protestations I had no symptoms of a UTI which was their diagnosis. Antibiotic stewardship anyone?

[Cancer Mum @CancerMum]

@agemjourney Indeed many have similar experiences renal stones in my case. No choice to change GP Practice as all local practices taken over by same group with same standard. Appts with non doctors and out of area for next practices.

[shitscaredmum @shitscaredmum]

We spent thousands so Laura could access treatment abroad & we're definitely not the only ones.
It always frustrated me that this information simply wasn't captured anywhere
Now @ourbrainbankuk are launching a research project to do just that so pls help ➡️https://t.co/3p1RolRWsd

[Cancer Mum @CancerMum]

@shitscaredmum @ourbrainbankuk It’s been going on for years. In 2005 there were 5 British pts at the International Cancer centre in Paris. All self funding and facing financial hardship. We remortgaged. The expertise and PBT had been available for 20yrs in France while the U.K. was still sceptical.

[Rachel B @waychee1]

I'm in my useless GPs waiting room. An old man is upset as he'd come in to make an appointment. The cow on reception is telling him he has to do it online at home. I offered to help him& gave him my number. Now they've appeared with an iPad to go through the 'war & peace' e-forms he's got to fill out. Probably starting with "are you pregnant?" HE JUST WANTS AN APPOINTMENT.

[Kathryn CJ Hall 📚 @kathrynhall_]

Morning. I'm a bit puzzled at why Rayner is talking about closing allotments. We have a large one in our village that I imagine has been there for decades, very well kept by locals and somewhere they enjoy going to chat and socialise as well as grow their prize marrows and enjoy the outdoors. What the feck is wrong with that? What harm is an allotment doing to our government and our country? People need their hobbies and interests, and they need to mix with other like-minded folk. Honestly, this is just cruel towards good people who are probably retired and don't have a big garden or any garden at home, and just want to do something they enjoy.

Anyway, have a great day. 😒

[Margaret McCartney @mgtmccartney]

doctors need to know the sex of their patients for multiple clinical (safety) reasons. Sex is determined at conception and recognised often in utero and described at birth. It's not assigned like a random dicethrow. We know this.

[Cancer Mum @CancerMum]

@parthaskar @RCPhysicians Patient here, Prof Kar, there are many of us who have watched your journey with disbelief. You have championed patient safety in all your roles. You are the People’s Champion. You have been treated disgracefully, we are behind you and we have no doubt you will be back.

[Tristan Lane @Tristan27856485]

@AliJaneMoore @mattster @BBCNews please correct your article

[Cancer Mum @CancerMum]

@autcareandshare Absolutely this! I remember with horror the insistence that Cancer Son had to attend in person. Stroke/brain tumour/deafness/ataxia. Refused to let him use toilet as staff only. Awful place/security guards/shouting etc We cried in the car on the way home. Was this his life now.

[neil orpen @neilorpen]

Today was helping with an 18 year in an international rowing regatta. - she was getting a tight chest typical of her asthma after the race but her Ventolin inhaler had run out - long standing asthma diagnosis and exercised induced
She has to row tomorrow and is away from home
Parent goes to Boots and explains situation and asks to buy another inhaler - Boots pharmacist can check her GP medical history online but says she hasn’t had a GP review of her asthma for 6 months and says another inhaler can’t be issued until GP review - ffs

Protocol driven healthcare is a complete waste of money and withdraws professionalism from very highly trained people - it stops people thinking and doing the common sense thing - what a shame for anyone involved

[Amanda Hunter @Amanda_M_Hunter]

Agreed. One imagines she received the proper training, but either wasn't paying attention or is not blessed with any common sense, and was unable to use her discretion and recognise that not all situations will fit the standard, software generated protocol.

She had all the information required to categorize the situation as at least a category 3: heavy fall to concrete surface, heavy breathing, immobility, shock, anxiety, distress, bleeding from nose, and environmental risks (extreme heat, unhygienic conditions, public thoroughfare). Instead, she triaged it as a low risk category 4 and flagged it for a clinician call back.

The problem with computer-generated protocols is that you need an intelligent human being to assess the situation and input key data - the distinction between falling on a carpeted surface indoors and falling on a concrete surface outside being key, as was the age of the woman and fact she was already a falls risk. I despair.

[Tilly @tillytog01]

Why are GP surgeries allowing receptionists to screen whether you need a same day appointment or can wait a week? It’s ridiculous. What are they basing these decisions on as non-clinical staff?

[@medicalmodelwithabriochebun @medicalmodelbri]

@DocDoLi As they should . They are legally bound to do so .

[@medicalmodelwithabriochebun @medicalmodelbri]

‼️CALLING ALL CARERS , PATIENTS AND HEALTHCARE PROFESSIONALS ‼️

Please fill in this short survey regarding physician associates .

https://t.co/rGbwUR9wqn

[Melanie Bowden @MELANIEBOWDEN16]

@AIMS_online What is it that is causing women to fear physiological birth ? Inadequate dangerous maternity services and ideologs on both sides of the debate #nhsmaternityservices

[Cancer Mum @CancerMum]

@doctorwibble What an inspiring thread! Many congratulations on your retirement from your incredible service. What are you planning to do next?

[Cancer Mum @CancerMum]

@DrLukeCraddock In 1989 working as a radiographer at a large hospital I had to take annual leave for my grandmother’s funeral. It was given grudgingly. The NHS has been a poor employer throughout it’s history and across all staff groups.

[Cancer Mum @CancerMum]

@Heccles94 App every time. Hospital results take an age with poor clerical support and waiting months for a FU appt. No GP appts, why wait 4 weeks for scan results from UTC to find out abdo pain due to renal stones? Those asking these q have no idea what it is like in the real world as a pt