Candy Purgatori

[Candy Purgatori @CandyPurgatori]

As someone impacted by #ALS, passage of the #ACTforALS Act will accelerate access to promising treatments for #ALS and speed the search for urgently needed new treatments. Thank you @SenStabenow for supporting people with #ALS! #ALSAdvocacy

[Candy Purgatori @CandyPurgatori]

As someone impacted by #ALS, passage of the #ACTforALS Act will accelerate access to promising treatments for #ALS and speed the search for urgently needed new treatments. Thank you @SenGaryPeters for supporting people with #ALS! #ALSAdvocacy

[Candy Purgatori @CandyPurgatori]

@biogen. The Fall has come and gone. Where is Tofersen?? ALS patients don’t have luxury of time.

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

. Last Xmas, @USNavy #Veteran Jerry Manning told Congress #AllIWantForChristmas is to pass the #ACTforALS.

In this video, all he had lost was his voice.
His arms & legs worked.
Jerry died on Oct 23rd.

Don't leave more #Veterans on the #ALS battlefield

https://t.co/P3lRwoe9Qs

[Elizabeth McCormick @emmccormick2005]

.Call the vote on #S1813. Give veterans and thousands of others living with #ALS hope and a chance for more time and holidays with their families. @chuckschumer #ACTforALS was vetted and overwhelmingly approved in the House. #RuleXIV #LetsDoThis

[Elizabeth McCormick @emmccormick2005]

This #JerseyGirl thanks you @coreybooker for standing with us in this fight for our lives. #ACTforALS was vetted and overwhelmingly supported in the House. 62 senators have co-sponsored. #RuleXIV #ScheduleTheVoteNOW #LowHangingFruit @chuckschumer @SenatorDurbin
@SenJohnThune

[Candy Purgatori @CandyPurgatori]

@BrainstormCell #FileTheBLA

[Candy Purgatori @CandyPurgatori]

@biogen please get Tofersen into bodies. Please speed up the EA. You control the hope.

[Brian Wallach @bsw5020]

American veterans are 2X as likely to develop ALS as the general public.

ALS is 100% fatal.

#ACTforALS would give these soldiers a fighting chance by providing them with access to promising treatments.

To the Senators in this video, please stand up for them. Co-sponsor now.

[Smithstrongmom @Smithstrongmom1]

@endpts My son Josh received #nurown through EAP and climbed down 100 stairs to see a waterfall. His last injection was in July and now stairs are challenging. We need the @US_FDA to act now and continue halting his #als progression.

[Ali Schoos, PT @PTAli1]

My deepest sympathy goes out to Kentuckians. Although @SenRandPaul voted against aid 4 states hit by disaster, I want my taxes to help KY now. Although @RepThomasMassie voted against helping people like my daughter and vets w/#ALS, I will support you. Pls hold them accountable.

[JamieRoseBerryy @JamieRoseBerryy]

The sad #Truth is that a large % of Americans w/ #ALS are our Veterans. The brave, who enlisted during war-time, fought for our freedom & now have to BEG for access to meds to try & survive on AMERICAN SOIL. @SenateDems @SenateGOP S.1813 MUST become law. We owe it to them. #YES

[ALS Uncensored 🏴‍☠️ @ScottsFight]

2018- #NurOwn is safe and effective and I don’t need it. I run 4 restaurants with 500 staff
2019 #NurOwn available to me and I’m blessed to get in the trial #Hope
2020 #NurOwnWorks my progression stops for a year
2021 #WISH for more
2022 🙏🏻

[Dak Prescott @dak]

This week we celebrated #ACTforALS being passed in the House. Today I ask the Senate to do the same and pass #S1813. ACT for ALS gives hope to the ALS community by increasing access & development of promising treatments. Please sponsor this bill @JohnCornyn @SenTedCruz

[No More Excuses ALS Watchdogs! @als_now]

1/ It has been just over a year since the data from the Phase 3 trial of the NurOwn trial was labeled a "failure". I was lucky enough to have completed that trial. Patients were disappointed to see the tepid reaction from the #ALS community, despite the anecdotal evidence, plus..

[No More Excuses ALS Watchdogs! @als_now]

"Be like Dr. Bob" (Brown). Approve NurOwn with provisional approval so we can see how many more "dramatic" responders are surely out there. It's the "best of both worlds", clearly @BrainstormCell @biospace @fiercepharma @adamfeuerstein @statnews @CNN https://t.co/n14a44HqSm

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

The #ALS Clock is Unforgiving
Over 8800 lives lost since #ACTforALS was introduced

No Time for regular order
The Time to Act is Now

#ScheduletheVote on #HR3537

@SenSchumer @LeaderMcConnell @SenatorDurbin @SenJohnThune @PattyMurray @SenatorBurr @lisamurkowski @ChrisCoons

[Candy Purgatori @CandyPurgatori]

Just trying to da d my son’s life. No sense of urgency out of Biogen.

[Kimberly Cotzias @kimbrolyclaire]

This. This is why I stay in the fight. Records will show that on December 8, 2021, a bill passed through the House. But this right here tells the whole story.
For the daughters. The dads. The sons. The moms.