Top Tweets for #FileTheBLA
Excellent questions! I’d love the chance for my 31 year old daughter to try @nurown. Who knows, but it is a chance she deserves to have. Some is enough! #approveNurown @FDACommissioner @FDACBER @BrainstormCell #filetheBLA #FDA Don’t wait until it happens to you.
A question for the #ALS community.
Why is there so little pressure for #Nurown approval compared to AMX0035?
I see #AMX0035 as a treatment that gives a few extra months to live, but #Nurown gives you the possibility to survive.
Denial would be tragic.
@iamalsorg @MDA_Advocacy
.
Hey, @BrainstormCell, a question.
As of today how many #Nurown trial participants who sacrificed, experienced improvement then were cut off have #DiedWaiting for approval?
Care to comment?
Hello?
Hello?
Anyone?
#DyingWaiting #ALS #BCLI #FileTheBLA
#SilenceEqualsDeath
I saw the presentation and she was excellent! I want to be hopeful but... #ALS #NurOwnNow #FiletheBLA (hopefully already submitted) @BrainstormCell
News out of ALS ONE
https://t.co/TjQimBPpLG
I know that this late but I wanted to thank @BrainstormCell for #filetheBLA. It is a huge step forward. @DrCaliff_FDA @fdacder please make this happen.
Children should not have to watch their 52 year old father die, who just 1 year ago was performing at the top of his physical game. #endALS
@BrainstormCell there's still time for my @IRONMAN . #ironkyle #FiletheBLA
Quarterly earnings call tomorrow. Will you have good news for us @BrainstormCell #filetheBLA #NurOwnWorks
PLWALS need safe and effective treatments. Nurown works. Approval has dragged on and on. We are dying.
It's time! Time is so precious. My ironman loses time and ability to enjoy his life daily. @Brainstorm #FileTheBLA. You have the proof, make it happen.
#NewProfilePic . Please join the #ALS community in asking @BrainstormCell to #FileTheBLA #WhateverItTakes
#EveryPointMatters
#dyingwaiting
#EndALS
5 yrs ago, the beautiful @shellymckenna spent her day on the beach exchanging vows with the love of her life. Today, she is fighting #ALS.
@BrainstormCell #FileTheBLA for #NurOwn so 34 yr old Shelley has a chance to spend many more days at the beach.
@DrCaliff_FDA @FDACBER
Alex is just 30 yrs old, a newlywed & fighting #ALS.
She left her career as an M&A lawyer & is now part of @HerALSStory helping dispel the myth that ALS is a disease of the elderly.
@BrainstormCell Please #FileTheBLA for #NurOwn
@DrCaliff_FDA @FDACBER
Give Alex a chance!
Please help our get our daughter’s story out there, and that of 30,000+ other people diagnosed with this monster disease called ALS @Rosa_DeLauro @stevens_nation @iamalsorg @US_FDA @CBS @NBCNews @ABC #advocacy #awareness
https://t.co/ndkCr70cM2
Maceo is a 41 yr old Dad dx'd with #ALS.
He's still able to dance & do #TheGriddy, cheering on his #TarHeels.
@BrainstormCell @Cylebo We know #NurOwn works.
#FileTheBLA so Maceo has a chance to take his son to @UNC_Basketball games!
#CarolinaFamily
Introducing “The ALS Tarheel Fan Final Four Griddy” #GDTBATH #FinalFour #GoHeels @UNC_Basketball @jadamlucas
Ashley is a beautiful young woman, a former athlete & model
She is only 28 yrs old & fighting #ALS
@BrainstormCell @Cylebo @MaryKayTurner1
We believe in #NurOwn. Please #FileTheBLA so Ashley has a chance to to keep teaching & changing children's lives
@DrCaliff_FDA @FDACBER
This is Ashley at 28, I want her to have a chance… She always wanted to have children ALS is stealing this!! She always wanted to make an impact and change with kids (she’s a high school teacher she loves her students) she self published two books.
Kade was a college athlete when dx'd w #ALS.
He felt #NurOwn working.
Imagine being in your 20s...
your whole life ahead of you...
a drug works on your fatal disease...
and you can't get more.
@BrainstormCell #FileTheBLA
@DrCaliff_FDA @FDACBER give Kade a chance!
@POTUS
There’s nothing #FastTracked about #NurOwn receiving this status from the @US_FDA in 2014. 8 years ago & still nothing! More like #SloMo
@DrCaliff_FDA
#FileTheBLA please
@BrainstormCell @Cylebo @MaryKayTurner1
Kade is 25. He knows #NurOwn works. 2yrs since last Tx. #LetsGo
There’s nothing #FastTracked about #NurOwn receiving this status from the @US_FDA in 2014. 8 years ago & still nothing! More like #SloMo
@DrCaliff_FDA
#FileTheBLA please
@BrainstormCell @Cylebo @MaryKayTurner1
Kade is 25. He knows #NurOwn works. 2yrs since last Tx. #LetsGo
21 months after the Phase 3 topline data was released and @BrainstormCell still hasn't filed the BLA. #FileTheBLA
#DyingWaiting #EveryPointMatters #WhateverItTakes #ALS
@Cylebo @ralph_kern @StacyLindborg @DSetboun
Ppl #dyingwaiting for a cure or even a slowing of progression of #ALS are begging for access to meds shown to help some. Is ANYONE listening? #filetheBLA #nurownworks
I had faith #NurOwn would help us, so I FOUGHT
11/2020 My1st Fight-for-NurOwn News piece
5/2022 My 6th ""
Even as ALS paralyzed me,@BrainstormCell @Cylebo –I never gave up on you.
Please reciprocate & file The BLA
#DyingWaiting #EveryPointMatters #WhateverItTakes #ALS
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