Wife, corgi mom, stepmother, aunt, baby sister, cousin, and friend determined to help beat #ALS. Army brat! Texan (kinda). #ALSWarrior#EPSTRONG#GEAUXTIGERS
#ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. It causes muscle weakness and wasting, and eventually leads to death. There is no cure for ALS, but there are treatments that can help slow the progression of the disease.
May is ALS Awareness Month, and we are asking everyone to join us in raising awareness about this devastating disease. You can help by sharing this post, donating to ALS research, or volunteering your time to an ALS organization.
Together, we can make a difference in the fight against ALS. #bard #teamshaunyboy #endals #putmeincoach
A disease that is 100% fatal is about to become treatable for 2% of #ALS patients. The other 98% will be treatable after the #NurOwn type 2 error is remediated. Huge Gratitude to #FDACBER & @DrCaliff_FDA for listening to patients & making the right call on regulatory flexibility.
@sandrawmarlowe That's how I feel about you and your husband. I have so many questions for both of you!! For now, you'll just continue to be one of my heroes and mentor in this crappy #ALS roller-coaster!
The first patient dosing through EAP is happening! This EAP is made possible through #Act4ALS. Grateful to @RepClayHiggins and all the members of Congress that passed this landmark legislation. @epjule
Almost 4 years into a 6-12 month life expectancy, Chris is here making memories with us on family vacations because #TofersenWorks.
@US_FDA, #ApproveTofersen.
Julieβs bright, fun personality makes you feel like youβre at a party even if youβre just in her presence. Life may be different for her after being diagnosed with #ALS, but not her outlook on it: βhead up, and never give up HOPE!β You give US hope, Julie!
#WomensHistoryMonth