Julie Suarez

Wife, corgi mom, stepmother, aunt, baby sister, cousin, and friend determined to help beat #ALS. Army brat! Texan (kinda). #ALSWarrior #EPSTRONG #GEAUXTIGERS

[Julie Suarez @epjule]

@racheljludwig @leanne_yacyshyn Happy birthday!!

[Julie Suarez @epjule]

@RunningMama0522 @shellyhoover

[Shaun Kalpakoff @skalpakoff]

#ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. It causes muscle weakness and wasting, and eventually leads to death. There is no cure for ALS, but there are treatments that can help slow the progression of the disease.

May is ALS Awareness Month, and we are asking everyone to join us in raising awareness about this devastating disease. You can help by sharing this post, donating to ALS research, or volunteering your time to an ALS organization.

Together, we can make a difference in the fight against ALS. #bard #teamshaunyboy #endals #putmeincoach

[Julie Suarez @epjule]

#ALS #ALSAwarenessMonth Please donate to @iamalsorg #fistbumps4ALS @asortarican @clebeaux @sandrawmarlowe @Showtyme_33 #ElPaso

[Dan Orlovsky @danorlovsky7]

Need everyone on this 🙏🙏
#ALS
#fistbumps4ALS
@GetUpESPN
@stephenasmith
#charlesbarkley
@JalenHurts
@bryceharper3
@JoelEmbiid

[Julie Suarez @epjule]

@DrOzdinler My condolences to you and your family. May your brother RIP!

[Julie Suarez @epjule]

@SethPoling10 Happy birthday!

[Julie Suarez @epjule]

@michaeliamals I didn't get to know Sandy, but you also have the same gift and are loved! Big hugs! 🙏🏽💜🙏🏽💛🙏🏽

[Julie Suarez @epjule]

Lots of gratitude from me, too!! #NurOwn @FDACBER @DrCaliff_FDA

[Rain Consulting Group @RainConsulting]

A disease that is 100% fatal is about to become treatable for 2% of #ALS patients. The other 98% will be treatable after the #NurOwn type 2 error is remediated. Huge Gratitude to #FDACBER & @DrCaliff_FDA for listening to patients & making the right call on regulatory flexibility.

[Julie Suarez @epjule]

@sandrawmarlowe That's how I feel about you and your husband. I have so many questions for both of you!! For now, you'll just continue to be one of my heroes and mentor in this crappy #ALS roller-coaster!

[Julie Suarez @epjule]

@SethPoling10 🙏🏽💛🙏🏽💜🙏🏽

[Julie Suarez @epjule]

Thank you, the SOD1 families and the Legislative team for all the work in getting this approved!

[Nicole Cimbura @nicolecimbura]

Dear @US_FDA, @DrCaliff_FDA, @FDACDERDirector, today is the day the ALS community holds their breath, waiting in nervous anticipation on your word for #Tofersen. Please give the #SOD1 community a chance to live & thrive with their disease by #EndTheLegacyApproveTofersen #RWE

[Julie Suarez @epjule]

Thank you @RepTonyGonzales and @RepEscobar for your support for the #ACTFORALS

[Troy Fields @Troy_W_Fields]

The first patient dosing through EAP is happening! This EAP is made possible through #Act4ALS. Grateful to @RepClayHiggins and all the members of Congress that passed this landmark legislation. @epjule

[Julie Suarez @epjule]

There is living proof that #tofersenworks @US_FDA

[Kelsie Snow @kelsieswrites]

Almost 4 years into a 6-12 month life expectancy, Chris is here making memories with us on family vacations because #TofersenWorks.

@US_FDA, #ApproveTofersen.

[Julie Suarez @epjule]

@limpbroozkit I have hand controls, and it was cool. Unfortunately, I can't use them due to loss of hand strength! You got this! #ALS

[Julie Suarez @epjule]

One kick ass #ALS Warrior

[Mandi @RunningMama0522]

Today’s agenda…
One Legislative meeting, three team meetings, one webinar, and a virtual panel.

Full schedule, happy heart ❤️

[Julie Suarez @epjule]

Thank you for including me with the amazing women of @iamalsorg @clebeaux @asortarican

[I AM ALS @iamalsorg]

Julie’s bright, fun personality makes you feel like you’re at a party even if you’re just in her presence. Life may be different for her after being diagnosed with #ALS, but not her outlook on it: “head up, and never give up HOPE!” You give US hope, Julie!
#WomensHistoryMonth

[Julie Suarez @epjule]

@EmmaLaytonTerry Yuppers! That's why it took over 10 months and 8 doctors to rule out everything else to DX my #ALS

[Julie Suarez @epjule]

@sandrawmarlowe @Transy So glad you're feeling better! Enjoy!

[Julie Suarez @epjule]

Keep on kicking ass and calling out blatant mistruths! #ALSsucks #DyingWaiting

[Sandra Abrevaya @sabrevaya]

Tofersen is keeping so many of our friends alive and could have saved so many more lives if there was more access @ChrisSnowCGY @kelsieswrites @sairysays @conniembecker @CEHaddadNP @BridgetRebecca4 @LisaLegacy4ALS @Mayuri_Saxena

We are honored to stand with the SOD1 community.