Caroline Donoghue

Access Manager (Policy) at Myeloma UK. Opinions are my own.

[Myeloma UK @MyelomaUK]

🧵 The Charities Medicines Access Coalition #CMAC is calling for @DHSCgovuk and @ABPI_UK to increase communication with charities and share clear evidence that patient impact is at the heart of the ongoing #VPAG discussions.

As Chair and members of CMAC, we support this call.

[Myeloma UK @MyelomaUK]

🧵 1/4 We're delighted to tell you that we have won our #UnlockDaraCyBorD appeal, which asked the National Institute for Health and Care Excellence (NICE) to review its decision to reject the first AL amyloidosis treatment. https://t.co/1owHUzCnWE

[Myeloma UK @MyelomaUK]

We're delighted to tell you that the Concept and Access Research Programme (CARP) has been extended for a further two years and we have committed £500,000 in funding.

Hear more about CARP from one of the project leads @DrSRBrown 👇

https://t.co/D9eF27FQzX

@LeedsCTRU @profBigG

[Myeloma UK @MyelomaUK]

It can be hard to spot the signs of #myeloma. 

You may feel fatigued, have easily broken bones and/or bone pain, or have low blood cell counts. Spotting it early is key to helping patients start treatment ASAP before complications arise.

#wordle #wordlechallenge

[Caroline Donoghue @CaroComments]

Are you a clinical scientist?

Do you know which tests are used to diagnose myeloma and the best way to report the results?

Did you know the way test results are reported can have a huge impact on myeloma diagnosis?

Find out more these webinars 👇

[Myeloma UK @MyelomaUK]

We have partnered with @UKNEQAS to develop a series of webinars for laboratory staff to promote best practice in the reporting of #myeloma diagnostic test results.  

Watch the recordings here: https://t.co/IBfGoaHOKs 

#BloodCancerAwarenessMonth #DontMissMyeloma

[Caroline Donoghue @CaroComments]

Are you a GP or nurse who looks after someone with MGUS, smouldering myeloma or #myeloma?

Then this guide is for you.👇👇

It highlights the main signs of myeloma, clearly explains the diagnostic tests and includes tips on managing patients in primary care. #DontMissMyeloma

[Myeloma UK @MyelomaUK]

We have launched our brand new 'Myeloma and MGUS guide for GPs'. It's our first ever guide specifically for GPs, to help in the detection and diagnosis of #myeloma and monoclonal gammopathies. 

Available online and in printed copies: https://t.co/v43Ts0B8d3

#DontMissMyeloma

[Caroline Donoghue @CaroComments]

Calling all GPs 📢 Do you know how to distinguish between MGUS, smouldering myeloma and #myeloma? Or who should be monitored and how often? If not this brand new, CPD credited online course from @BMJLearning is for you?

[Myeloma UK @MyelomaUK]

A new module to educate GPs about #myeloma, in partnership with @BMJLearning, has launched! https://t.co/xz7jI8DuhG

It includes the next steps to take when you suspect myeloma, when to refer patients to secondary care and how patients should be monitored. #DontMissMyeloma

[Caroline Donoghue @CaroComments]

Are you a healthcare professional? Have you heard of the blood cancer #myeloma. Do you know the signs,
symptoms and when to suspect it?

If not check out these excellent resources for GPs, nurses, lab scientists and clinicians from @MyelomaUK.
#DontMissMyeloma

[Myeloma UK @MyelomaUK]

It’s #BloodCancerAwarenessMonth, and throughout the month we will share tools and resources for healthcare professionals.

Support us throughout the month and retweet to raise awareness of #myeloma so that together we #DontMissMyeloma. Learn more: https://t.co/IWqHP0hgkM

[Caroline Donoghue @CaroComments]

I will keep socially distancing and wearing my mask in crowded places. It is such a small, simple thing I can do to stop the spread of COVID-19 and help protect others. #protecteachother

[Myeloma UK @MyelomaUK]

Today we're launching our #ProtectEachOther campaign. We're encouraging everyone to keep protecting each other by wearing a mask and continuing to social distance in crowded areas. Because not everyone is free and safe from #COVID19 yet.

[Myeloma UK @MyelomaUK]

Last week, results from a study measuring the efficacy of #COVID19 vaccines in clinically high-risk people was published by @PHE_uk. Snr Scientific Knowledge & Comms Officer Caroline has written a blog looking at what this study means for myeloma patients: https://t.co/GVEvCejYJu

[Myeloma UK @MyelomaUK]

Thread: This #MyelomaAwarenessWeek, help us to spread awareness and make sure no one misses the signs of #myeloma. Please retweet this thread.  
#DontMissMyeloma: https://t.co/12144qgrZK  

Some of the most common symptoms of myeloma 👇

[Caroline Donoghue @CaroComments]

Timely diagnosis of myeloma can make a huge difference to the life expectancy and quality of life of #myeloma patients. If you notice any new, persistent symptoms like pain, fatigue or infection. Go to your GP and get them checked. #dontmissmyeloma

[Myeloma UK @MyelomaUK]

This #MyelomaAwarenessWeek we want everyone to be able to spot the signs of #myeloma. We will be sharing patient stories and encouraging anyone experiencing symptoms to get them checked with a GP. #DontMissMyeloma

Help us by sharing our posts or going to https://t.co/ogfe7rnzag

[Wellcome @wellcometrust]

Here are the 4️⃣ variants of concern ⤵️

[Myeloma UK @MyelomaUK]

We’re excited to be involved with @MediaplanetUK on the #BloodHealthCampaign2021, launching in The Guardian and online. Myeloma UK's Dr Caroline Donoghue discusses the importance of swift and accurate #myeloma diagnosis. Read more: https://t.co/aWNCy7vvga

[ASCO @ASCO]

New data call into question the advantages of the upfront ASCT approach in newly diagnosed #MultipleMyeloma 👉 https://t.co/gq90ekjWaH #ASCO21 #ASCODailyNews #mmsm

[Caroline Donoghue @CaroComments]

Just realised today is #WorldBeeDay. I have spotted a lot of these bees with Scott over the years. Nice to find out their names. 🐝🐝🌻

[The Wildlife Trusts @WildlifeTrusts]

Hurray for #WorldBeeDay!! 🐝💛🖤🐝🐝💛🖤
We have pollinators to thank for every third mouthful we eat! 😋
https://t.co/QORo4B4ZRo

[Myeloma UK @MyelomaUK]

1/6 Today is #InternationalClinicalTrialsDay

Clinical trials are essential for the delivery of better, kinder treatments for #myeloma.

[Myeloma UK @MyelomaUK]

2020 was a significant year for the #myeloma community, and our #COVID19 Information Hub played a vital role in delivering the latest advice and information you could trust.

Read our Annual Report 2020 to learn more about our latest work -> https://t.co/rdqMQaiJgI

[Myeloma UK @MyelomaUK]

The OCTAVE trial is recruiting #myeloma patients who haven’t had their second COVID-19 vaccination.

It is studying how COVID-19 vaccines work for people with a weakened immune system.

If you would like to take part, contact your clinical team and ask to join OCTAVE.

[Myeloma UK @MyelomaUK]

Join the next UKMRA-MUK-CARP webinar today at 2pm.

@DrRakeshPopat will talk about his experiences developing and setting up an early phase #myeloma clinical trial through CARP.

This is part of a series of webinars for researchers and clinicians: https://t.co/74yEPuYAa1