Move CDKL5 Forward

Fundraising in June to support the International Foundation for CDKL5 Research (IFCR) @CDKL5_IFCR

[Move CDKL5 Forward @Cdkl5Move]

Our Move CDKL5 Forward event is off to a great start!

Will you join us? Help the International Foundation for CDKL5 Research (IFCR) reach our goals - 22,000 miles moved and $100,000 raised for #CDKL5 Deficiency Disorder.

Check it out: https://t.co/TbhhBVG55j

[Move CDKL5 Forward @Cdkl5Move]

Join us in June! https://t.co/TbhhBVGCUR

[Move CDKL5 Forward @Cdkl5Move]

Join us in June! https://t.co/xAlJE232uW

[Move CDKL5 Forward @Cdkl5Move]

Join in! https://t.co/xAlJE1Lr6m

[Move CDKL5 Forward @Cdkl5Move]

#CDKL5Forward

[CDKL5 - IFCR @CDKL5_IFCR]

✨Save-the-Date! Our 2nd annual Move CDKL5 Forward event begins 2 months from today and we are SO EXCITED! It will take all of us to move CDKL5 forward! How far will YOU go for #CDKL5?

[Move CDKL5 Forward @Cdkl5Move]

We have some awesome sponsors already, but there is still room for more! Join us! Move #CDKL5Forward
#CDKL5
https://t.co/FZ3AUuuQ4I

[Move CDKL5 Forward @Cdkl5Move]

#CDKL5 awareness month is 3 months away and we are looking for sponsors for our “Move CDKL5 Forward” event! Will you be one?

🚨Deadline April 1
https://t.co/FZ3AUuuQ4I

[Move CDKL5 Forward @Cdkl5Move]

@_allstripes @CDKL5USA 🙌🙌🙌 thank you!

[AllStripes @_allstripes]

Throughout the month of June, the AllStripes Team participated in @CDKL5USA's Move CDKL5 Forward event to raise awareness of this rare condition. Altogether, we ran, swam and cycled 885.67 miles! #CDKL5Forward

[Move CDKL5 Forward @Cdkl5Move]

Have a great summer everyone! After working so hard in June to Move CDKL5 Forward, you deserve it! See you next year!
☀️
Our campaign is active and able to collect donations through the end of July! Link in bio. #CDKL5 #CDKL5Forward

[Marinus @MarinusPharma]

#CDD can manifest in a broad range of clinical symptoms and severity. Many children experience seizures, sleep difficulties and GI complications.

#CDKL5AwarenessMonth #CDKL5Forward #CDD

[Move CDKL5 Forward @Cdkl5Move]

Thank you for a great event!!
We are Moving #CDKL5Forward!!

[CDKL5 - IFCR @CDKL5_IFCR]

As #CDKL5Awareness month comes to an end, we want to say a BIG THANK YOU for your support of our inaugural Move #CDKL5Forward event! We have had such fun seeing social posts from our #CDKL5 community and watching our fundraising total rise! 💚
@axoncable @zogenix @OvidRx

[CDKL5 - IFCR @CDKL5_IFCR]

The end of our month-long Move CDKL5 Forward campaign is on the horizon and we want to take a moment to say another thank you to our generous sponsors @axoncable @zogenix @OvidRx for helping us to Move #CDKL5Forward 💚
•
See our campaign here: https://t.co/iamuvQFSkn

#CDKL5

[Move CDKL5 Forward @Cdkl5Move]

Many thanks to our generous sponsors (@axoncable @zogenix @OvidRx) and to the IFCR’s Fundraising Committee for all their hard work making this event possible! @CDKL5USA

Hope | Love | Cure 💚

#CDKL5 #CDKL5Awareness #CDKL5Forward #CureCDKL5 #StarfishStrong

[Move CDKL5 Forward @Cdkl5Move]

🥳Thanks to the incredible generosity of our #CDKL5 community and their networks, we have exceeded the $50,000 goal on our JustGiving campaign page! There are 10 days left in June. Can we get to $60,000?!
🙌🙌🙌🙌🙌 #CDKL5Forward

[Move CDKL5 Forward @Cdkl5Move]

💚Thanks to all who are participating! We love seeing your #CDKL5Forward posts!

➡️DONATE to our cause: https://t.co/il2wTBdRf1

💪MOVE and submit your miles: https://t.co/ZmFeNiCVOL

👀WATCH our “fundraiser leaderboard” in real-time: https://t.co/gST1QQwkJh