Top Tweets for #CDKL5Forward
Love to see it! #CDKL5Forward
#cdkl5awareness on #CDKL5 day with brilliant new swag thanks to @CDKL5_IFCR in clinic and #jumprope #doubleunders today 6.17.24 #DEE #NDD
If you are near Athens, Ohio go check out this beautiful public art raising #CDKL5Awareness! Thank you to Team Rooting for Reid for making this happen!
@ohiou #CDKL5 #CDKL5Forward
The month is almost at a close and I am admittedly not strong in the fundraising area, but let's make one last crazy push for @CDKL5 to move #CDKL5Forward!
Act to support our cause: https://t.co/ULdcftCoMZ
Share to spread #CDKL5Awareness
Will you dedicate your workout today to #CDKL5? Post on social media and tag us! Help us Move #CDKL5Forward!
Hope | Love | Cure
I'm fundraising for @CDKL5USA. Check out my @JustGiving page and please donate if you can. Thank you! Together We can move #CDKL5Forward! https://t.co/pOriNA0BbW
Move CDKL5 Forward 2022 is coming up in June! Get your official event shirt from our Bonfire store! https://t.co/OVkDOwvhJ3
✨Shirts print in batches every seven days. Order today!
Many thanks to our Platinum Sponsor @MarinusPharma 🙌
#CDKL5 #CDKL5Forward
Throughout the month of June, the AllStripes Team participated in @CDKL5USA's Move CDKL5 Forward event to raise awareness of this rare condition. Altogether, we ran, swam and cycled 885.67 miles! #CDKL5Forward
Have a great summer everyone! After working so hard in June to Move CDKL5 Forward, you deserve it! See you next year!
☀️
Our campaign is active and able to collect donations through the end of July! Link in bio. #CDKL5 #CDKL5Forward
#CDD can manifest in a broad range of clinical symptoms and severity. Many children experience seizures, sleep difficulties and GI complications.
#CDKL5AwarenessMonth #CDKL5Forward #CDD
As #CDKL5Awareness month comes to an end, we want to say a BIG THANK YOU for your support of our inaugural Move #CDKL5Forward event! We have had such fun seeing social posts from our #CDKL5 community and watching our fundraising total rise! 💚
@axoncable @zogenix @OvidRx
Stay tuned for an event recap coming in July!
🙌
Many thanks to our generous sponsors and to the IFCR’s Fundraising Committee for all their hard work making this event possible!
💚 Hope | Love | Cure 💚
#CDKL5
#CDKL5Forward
As #CDKL5Awareness month comes to an end, we want to say a BIG THANK YOU for your support of our inaugural Move #CDKL5Forward event! We have had such fun seeing social posts from our #CDKL5 community and watching our fundraising total rise! 💚
@axoncable @zogenix @OvidRx
The end of our month-long Move CDKL5 Forward campaign is on the horizon and we want to take a moment to say another thank you to our generous sponsors @axoncable @zogenix @OvidRx for helping us to Move #CDKL5Forward 💚
•
See our campaign here: https://t.co/iamuvQFSkn
#CDKL5
*special note, our June total is actually EVEN BIGGER than what's shown thanks to offline donations and some fundraising pages not yet linked through JustGiving 🙌
🥳We are moving #CDKL5Forward!!!
Today is the day! All International Virtual Family Conference presentations are now LIVE on the #CDKL5 Alliance website: https://t.co/818jMQwvns
Which session are you most excited for? #CDDAwarenessMonth #CDKL5Forward #CDD
We're marking #WorldCDKL5Day by celebrating the #CDD community of children, families, and advocates who drive our mission forward each and every day.
Learn more about CDD and the ways you can get involved: https://t.co/Wa6uKfmnla
#CDDAwarenessMonth #CDKL5Forward #CDD
Today (June 17) is World CDKL5 Day.
➡️LEARN why this day is special: https://t.co/ojjCvZ4l1z
➡️ACT to support our cause: https://t.co/VVvwR7IJc0
📣SHARE about CDKL5 Deficiency Disorder!
Will you dedicate your workout today to #CDKL5? Post with #CDKL5Forward so we can see!
#CDKL5 stands for cyclin-dependent kinase-like 5 and is located on the X chromosome. Due to the gene’s location, CDD mainly affects girls. #CDKL5AwarenessMonth #CDKL5Forward
We logged 3.8 mi around the lake Saturday and 2.45 mi doing some serious summer shopping on Sunday. Check out our page below👇#CDKL5Forward #CDKL5awareness
The kids and I will be shaking a little dust off this weekend as members of Team Colorado. Please consider contributing to "Mission Move It," as we raise funds for @CDKL5USA. Thank you! #MoveCDKL5Forward
https://t.co/F0qhb1WRWL
Advocacy Spotlight: @CDKL5USA began as a group of #CDD parents searching for answers. Since 2009, they have grown to support a community of families and establish CDKL5 Centers of Excellence across the US.
Resources: https://t.co/3mvKFXrWxp
#CDDAwarenessMonth #CDKL5Forward #CDD
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