#CDDAwarenessMonth - Twitter Hashtag

about 2 years ago

This #CDDAwarenessMonth, our CCO Christy Shafer reflects on the progress being made for those living with CDD and her hopes for continued advancements in research and care. Learn more: https://t.co/iM9xP4kXgy #CDKL5Awareness

MarinusPharma's tweet photo. This #CDDAwarenessMonth, our CCO Christy Shafer reflects on the progress being made for those living with CDD and her hopes for continued advancements in research and care. Learn more: https://t.co/iM9xP4kXgy #CDKL5Awareness https://t.co/GQ2bUayklP

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Marinus @MarinusPharma

about 4 years ago

June is #CDDAwarenessMonth—an opportunity to educate & spread awareness of this rare form of genetic epilepsy. Learn how Amber & Carol-Anne @CDKL5AdvocacyM turned a little green dress into a traveling symbol of hope to connect CDD families around the world https://t.co/F8pydBu8Vy

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Marinus @MarinusPharma

about 4 years ago

June is #CDDAwarenessMonth and we’re helping raise awareness alongside @CDKL5USA and the CDD community. Learn more and how you can get involved: https://t.co/gqRqokTkcd

MarinusPharma's tweet photo. June is #CDDAwarenessMonth and we’re helping raise awareness alongside @CDKL5USA and the CDD community. Learn more and how you can get involved: https://t.co/gqRqokTkcd https://t.co/yd0SLNMyFg

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Marinus @MarinusPharma

about 4 years ago

June is #CDDAwarenessMonth! Follow along and join us in spreading awareness and education around CDKL5 deficiency disorder (CDD). Learn more about CDKL5: https://t.co/nsFWzCyADG

MarinusPharma's tweet photo. June is #CDDAwarenessMonth! Follow along and join us in spreading awareness and education around CDKL5 deficiency disorder (CDD). Learn more about CDKL5: https://t.co/nsFWzCyADG https://t.co/r0qLQrI8sy

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Marinus @MarinusPharma

about 5 years ago

Today is the day! All International Virtual Family Conference presentations are now LIVE on the #CDKL5 Alliance website: https://t.co/818jMQwvns Which session are you most excited for? #CDDAwarenessMonth #CDKL5Forward #CDD

MarinusPharma's tweet photo. Today is the day! All International Virtual Family Conference presentations are now LIVE on the #CDKL5 Alliance website: https://t.co/818jMQwvns

Which session are you most excited for? #CDDAwarenessMonth #CDKL5Forward #CDD https://t.co/EVCzNGXnj1

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Marinus @MarinusPharma

about 5 years ago

We're marking #WorldCDKL5Day by celebrating the #CDD community of children, families, and advocates who drive our mission forward each and every day. Learn more about CDD and the ways you can get involved: https://t.co/Wa6uKfmnla #CDDAwarenessMonth #CDKL5Forward #CDD

MarinusPharma's tweet photo. We're marking #WorldCDKL5Day by celebrating the #CDD community of children, families, and advocates who drive our mission forward each and every day.

Learn more about CDD and the ways you can get involved: https://t.co/Wa6uKfmnla

#CDDAwarenessMonth #CDKL5Forward #CDD https://t.co/XB2fKu4D62

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Marinus @MarinusPharma

about 5 years ago

Advocacy Spotlight: @CDKL5USA began as a group of #CDD parents searching for answers. Since 2009, they have grown to support a community of families and establish CDKL5 Centers of Excellence across the US. Resources: https://t.co/3mvKFXrWxp #CDDAwarenessMonth #CDKL5Forward #CDD

MarinusPharma's tweet photo. Advocacy Spotlight: @CDKL5USA began as a group of #CDD parents searching for answers. Since 2009, they have grown to support a community of families and establish CDKL5 Centers of Excellence across the US.

Resources: https://t.co/3mvKFXrWxp

#CDDAwarenessMonth #CDKL5Forward #CDD https://t.co/QwqQvcXGmo

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