Angela Smith-Morgan

Previous CEO of Spinal Muscular Atrophy UK and Leukaemia UK. Experienced Charity Trustee. Passionate about the charity sector. All views my own.

[Angela Smith-Morgan @CharityChief]

Excited and terrified to be leaving the world of (paid) work. I will miss everything about @SMA_UK_ and all the community. Am fortunate to have this opportunity and will resist temptation to post too many travel pics!

[Angela Smith-Morgan @CharityChief]

@clotimms @HodderFiction Thanks Chloe I loved this book!

[Angela Smith-Morgan @CharityChief]

Vote below and help us build our case for newborn screening for SMA @SMA_UK_ @SMA_NBSalliance

[Spinal Muscular Atrophy UK @SMA_UK_]

The @GeneticAll_UK film about the importance of newborn screening for SMA, featuring our Advocacy lead Portia and her children Ezra and Martha, has made it to the FINAL round of the @SmileyCFA (smiley charity film awards) ��� Give it your vote today : https://t.co/irM3pgNWhc 🤩

[Angela Smith-Morgan @CharityChief]

So proud that @SMA_UK_ are partnering with @DuchenneUK on this exciting project- it’s going to make such a difference to people living with muscle wasting conditions. Thank you @PPLComms for believing we could make this happen!

[GB News @GBNEWS]

A pioneering piece of technology is being developed to help those with a rare condition that limits mobility.

GB News London Reporter Lisa Hartle reports.

[Spinal Muscular Atrophy UK @SMA_UK_]

If you’re a parent, guardian, or primary carer looking to connect with other families from across the SMA Community, SMA UK now has a new Families WhatsApp Network! 🎉 Sign up here to get inovolved : https://t.co/Kjc8KFNMEL 🤩

[Angela Smith-Morgan @CharityChief]

I have loved my time with SMAUk and feel honoured to have been the CEO for the last two wonderful years. I am leaving for personal reasons - the toughest decision ever! If you are passionate about taking this great charity on to the next level, DM me and we can talk! Angela

[Spinal Muscular Atrophy UK @SMA_UK_]

We have two new, exciting job opportunities available at SMA UK – CEO and Database & Operations Manager! Applications for both close on Sunday 8th Jan. Find out more about these roles and how you can apply to join our small, dynamic charity: https://t.co/ynn1RnGELx

[Angela Smith-Morgan @CharityChief]

‘Stop talking about it and let’s get on with it’ Quote of the day re New Born Screening for SMA #ScreenTodayForSMA @SMA_NBSalliance

[Angela Smith-Morgan @CharityChief]

Brilliant to see our ⁦@SMA_UK_⁩ advocacy lead Portia on the panel of #pharmaintegrates ‘Dare to think Rare’ panel

[Angela Smith-Morgan @CharityChief]

Pleased to be representing @SMA_UK_ at the #PharmaIntegrates conference today highlighting the role of the third sector in providing health information and vital to support to patients in enabling them to make their own informed decisions.

[Angela Smith-Morgan @CharityChief]

This is a great summary and really demonstrates the huge amount of valuable research happening now in #SMA.

[Spinal Muscular Atrophy UK @SMA_UK_]

Our Scientific Research Correspondent, @J_N_Slayer, has written a detailed summary of some of the major findings presented at the 3rd International Scientific Congress on SMA, held in Barcelona, Spain from 21st-23rd October: https://t.co/UGYiLdbE55

[UK SMA Newborn Screening Alliance @SMA_NBSalliance]

Ten European countries have already approved SMA screening for newborns because of compelling evidence of clinical and cost effectiveness. The UK is not one of them - follow us to support our campaign.

[Spinal Muscular Atrophy UK @SMA_UK_]

The team involved with developing the SMART Suit - an upper body mobility device for young people with SMA and DMD - would like to interview children/young adults with SMA who'd be interested in contributing their views and ideas to this project: https://t.co/utHKcly9Hf

[Angela Smith-Morgan @CharityChief]

Great to see all the staff and Board teams of ⁦@SMAEurope⁩ getting a lovely thank you for all the work that has gone into organising #smacongress2022 and putting the patient voice at the heart of the great research and developments in #sma

[Angela Smith-Morgan @CharityChief]

Great start to day 2 of the #smacongress2022 discussing how to implement New Born Screening for #sma . It’s going to be another massive day👍

[Angela Smith-Morgan @CharityChief]

Ready to go! Can’t wait to hear all the speakers at this weekend’s #smacongress2022 #spinalmuscularatropy@sma_uk

[Angela Smith-Morgan @CharityChief]

@BirgittaClift @LondonMarathon @LeukUK Spotted a few @LeukUK runners today from our spot at mile 13 so gave them an encouraging cheer! Hope you had a great day

[Angela Smith-Morgan @CharityChief]

Thank you Sarah running for @SMA_UK_ Still smiling at mile 13👍

[Angela Smith-Morgan @CharityChief]

Congratulations to all the brilliant marathon runners for @SMA_UK_ today- just spotted our Chair @markdearlove looking comfortable at Mile 13. Go runners!

[Spinal Muscular Atrophy UK @SMA_UK_]

Impact: SMA UK is a Virtual Event, taking place 22nd September at 6.30pm, for you to hear more about some of the key milestones that have been pivotal for SMA over the years, from some of the individuals who helped to make these happen. Register for free: https://t.co/D3TK8z1a1V

[Angela Smith-Morgan @CharityChief]

It’s been a great month of sharing lots of SMA stories and experiences- thanks to everyone who joined in

[Spinal Muscular Atrophy UK @SMA_UK_]

HUGE thanks to everyone for your support & help in raising funds and awareness of SMA this #SMAAwarenessMonth! From buying pin badges, to downloading our Twibbon & sharing posts, it's been a real team effort. With you, we'll continue to keep raising awareness all year round! 💙