DEBRA UK

DEBRA is the national charity for people living with the painful genetic skin blistering condition, #EpidermolysisBullosa (EB).

[DEBRA UK @CharityDEBRA]

🦋 DEBRA UK supports people living with epidermolysis bullosa (EB), a rare and painful skin condition.

We provide care, fund research for treatments & cures, and work with the NHS to deliver specialist support.

Learn more: https://t.co/1uDY1IVjK6

#EB #RareDisease #DEBRAUK

[First Minister @ScotGovFM]

First Minister @JohnSwinney met with Graeme Souness and @CharityDEBRA to discuss support for people living with Epidermolysis bullosa.

He reaffirmed @scotgov's commitment to high-quality care in Scotland and wished Graeme success in his upcoming Ben Nevis fundraising challenge.

[DEBRA UK @CharityDEBRA]

We’re thrilled to share the incredible news - former Chair of Trustees, Jim Irvine, has been recommended to His Majesty The King for an MBE in the New Year 2026 Honours List for his outstanding services to people living with EB over the past 25 years. 💜

https://t.co/fdkYEKb0Lj

[DEBRA UK @CharityDEBRA]

🔬 The protocol for a clinical trial that we're currently funding has been published in a scientific journal & lays out how this trial will study whether apremilast, a drug approved for psoriasis, could help people living with severe EBS.

🔗Read more: https://t.co/H2dPF2wvNr

[Frank Warren @FrankWarren]

Proud to stand with @CharityDEBRA and the remarkable work they do for those with EB. A huge thank you to everyone who came together to make this event so special.

Please see further donation details here: https://t.co/a4nvxJj6rx

[The Daily Record @Daily_Record]

Rangers legend Graeme Souness' in emotional plea for better ‘butterfly skin’ care https://t.co/y7jyBDfVp6 https://t.co/y7jyBDfVp6

[Good Morning Britain @GMB]

Every day is an uphill battle for 13-year-old Jasmine Ritchie, who has a rare skin condition called Epidermolysis Bullosa, also known as butterfly skin, which causes her skin to blister and tear at the slightest touch.

Jasmine's mum, Anna, and Grandad Robert took on their own challenge to raise money for those living with the skin disorder by climbing Mount Kilimanjaro.

Anna recalls the experience as Graeme Souness explains why raising awareness and money is so important.

@susannareid100 | @edballs | @CharityDEBRA

[DEBRA UK @CharityDEBRA]

@justconfidence Hi @justconfidence, we're really sorry about this - our Greenwich store had to close at short notice on Sunday due to staff shortages. We appreciate you trying to donate and your support means a lot 💜

[DEBRA UK @CharityDEBRA]

@MarkAlgar4 Good luck Mark! 🦋

[Emma Dodds @Sports_EmmaD]

Brand new challenge launching to help raise awareness for @CharityDEBRA

Read all the details here 👇🏼 and get involved or you can. Few things in the pipeline for me, all will be revealed in the next few weeks! 🦋

https://t.co/MIY9gbXgzo

[DEBRA UK @CharityDEBRA]

@Tbrotherstrust Amazing opportunity! Thank you to @Tbrotherstrust for supporting families living with EB 💙🦋

[Thebrotherstrust @Tbrotherstrust]

𝗪𝗶𝗻 𝗮 𝘁𝗿𝗶𝗽 𝘁𝗼 𝗺𝗲𝗲𝘁 𝗧𝗼𝗺 𝗛𝗼𝗹𝗹𝗮𝗻𝗱 𝗼𝗻 𝘁𝗵𝗲 𝘀𝗲𝘁 𝗼𝗳 𝗦𝗽𝗶𝗱𝗲𝗿-𝗠𝗮𝗻 𝟰
https://t.co/bauX3q5i4O
Visit the set for a meet & greet, a tour of the studio, and lunch with Tom. PLUS lots more.
Sweepstakes close 23rd Feb 11:59pm EST, good luck!

[Peninsula @peninsula_uk]

Our Valentine’s Bake-off was a sweet success! 🧁

A huge congratulations to our winners and big thank you all who have participated to raise £1,374.90 for our charity partners - @AirAmbulancesUK, @charitydebra, and @Tog4ShortLives

#valentinesday #lovecake #fundraising

[DEBRA UK @CharityDEBRA]

We're on @bluesky! 🦋

Join the conversation 👉 https://t.co/shVyH3RfqS

[DEBRA UK @CharityDEBRA]

@TheJammersFA @mnessexmind Thank you to everyone involved for helping to support families living with EB 💙🦋

[The Jammers Fans Association @TheJammersFA]

JFA CHARITY WALK 🚶‍♂️ 🚶‍♀️

The JFA will be doing a 12 mile charity walk from Tiptree to Maldon on the 12th of April!

This aims to raise money for @CharityDEBRA and @mnessexmind

We would love as many people as possible to take part, either from the start or joining along the way.

[Miriam Payne @Miriam_Payne1]

I'm joining #TeamDEBRA in October to climb Mt Kilimanjaro, raising much needed money to support those living with #EB

Please support us if you can! Thank you
https://t.co/zvEyhp3vrG

@peninsula_uk @CharityDEBRA

#teamwork #charitablegiving #bucketlist

[DEBRA UK @CharityDEBRA]

@Blossomfieldsch @AcornsHospice Thank you for supporting families living with EB 💙🦋

[Charity Retail Association @CharityRetail]

📣New featured role:

💼Assistant Shop Manager @CharityDEBRA
📍Stockbridge
✍️Deadline: 19/01/2025
💻https://t.co/vljyxAZuxk

DEBRA is recruiting for a friendly and customer-orientated Assistant Manager.

#Careers #JobSearch