Chi Pakarinen

Big believer in the #EU. Passionate about #humanrights #equality #womensempowerment #patientengagement #sharedvalue. My tweets are my own.

[Chi Pakarinen @Chi_Chicilee]

@medipace @worldheartfed We went for an extra long walk with the dog - long as in more time for him to sniff 😄♥️

#WorldHeartDay

[MediPaCe @medipace]

https://t.co/5N4YU3jvlt

[MediPaCe @medipace]

MediPaCe is proud to support #worldheartday to raise awareness of preventable #cardiovasculardisease #CVD. Small tweaks like adding a healthy element to your diet or walking more today than yesterday could make a huge difference. How do you keep your heart healthy?@worldheartfed

[MediPaCe @medipace]

💗 Yourself this #worldheartday and walk, run, bike or travel any distance in a heart shape and share on your preferred social media channel with #WorldHeartDay to challenge others!
https://t.co/4OYtuC1UIA

[Chi Pakarinen @Chi_Chicilee]

@JeroenToelen @OdysseyTeams @DrugInfoAssn @medipace Haha, would've been nice to say hello, it's been awhile! But unfortunately not the same conference.

[Chi Pakarinen @Chi_Chicilee]

My reflections from Day1 #DIA2023:
1. “It’s better to be disruptive than disrupted.” Get engaged with AI/LLM.
2. Diversity does not happen by accident.
3. A shout-out: Build-A-Hand-project and @OdysseyTeams!

Read the full post: https://t.co/zXfyXQcbN8

@DrugInfoAssn @medipace

[Chi Pakarinen @Chi_Chicilee]

Session413-Experiences from the other side of the table: “If we could have our legal ppl participate in #clinicalstudies, we wouldn’t have the #informedconsentforms we have today”
…maybe… but I like the idea. Why not expand to the whole staff?
#PatientEngagement
#DIA2023

[Chi Pakarinen @Chi_Chicilee]

Session303: In addition to #ReturningData to participants, are there solutions for integrating it to personal health records? Giving a pdf #datadump to a doctor and asking them to digitize it without background or validation is probably a no-go 😒
#DIA2023

[Chi Pakarinen @Chi_Chicilee]

Session303 Returning indiv. participant data: Why is it so hard to give ppl their data back so they can use it in their own healthcare?! Trials don’t happen in a vacuum and separate from ppl’s lives.

@DrugInfoAssn #DIA2023

[Chi Pakarinen @Chi_Chicilee]

Start of #DIA2023 day 2 and we're watching a video created by generative #AI with Evelyn, the AI generated avatar presenting her AI generated content. She's presenting the pros and cons of using AI.

#Cool, isn't it?

@DrugInfoAssn @medipace

[Chi Pakarinen @Chi_Chicilee]

#DIA2023 started with a bang this morning! First thoughts: grandiose, lots of enthusiasm in the air and heard #PatientEngagement promises repeated, so really looking forward to hear about advancements.
Not seeing many patients community representatives yet.

@DrugInfoAssn

[Chi Pakarinen @Chi_Chicilee]

@NatSwiderska @medipace Well done Nat! I learned a lot!

[MediPaCe @medipace]

Trying to minimise migraine impact is a 24/7 job. Even if successful, the anticipation and fear of having a migraine lives with you every day.
Some of our team describe what it’s like living with that knowledge: https://t.co/OHgbKmrcSg

#MHAM #migraine #patientexperience

[MediPaCe @medipace]

Looking after your daily health is a wise choice, but it’s even more important when the realities of getting it wrong are as swift and impactful as migraine. Here are our reflections:

https://t.co/l64nqFckUR

#mham2023 #migraine #migraineawareness #patientexperience

[MediPaCe @medipace]

Effect of Migraine on the workplace: We all have each other’s backs in our working family. Listen here to a clip comparing experience of migraine in the workplace from those who get migraine and those who don't:
https://t.co/Mf1u5caXpT
#mham2023 #patientexperience

[Chi Pakarinen @Chi_Chicilee]

#DAY2 @ #DIAEurope2023
#PatientPreferenceStudies can inform at all phases of R&D decision points, therefore, #PatientEngagement should also be integrated into R&D processes.
Thanks for the great presentation Rosanne Janssens! @IMI_PREFER

[Chi Pakarinen @Chi_Chicilee]

Peter Arlett from @EMA_News, #DarwinEU sounds exciting! Looking forward to seeing also studies that integrate patients' voice and perspective. #RWE or #RWD can't be a catch-all phrase for data mining exercise, but a cooperation that improves healthcare.
#DIAEurope2023

[Chi Pakarinen @Chi_Chicilee]

#Day1 of #DIAEurope2023! 🙌
Just arrived and excited to meet people and get inspired! Attending #EMA townhall now. First takeaway: #PatientVoice guides every step of the way in CT - at the strategic and individual levels
#PatientEngagement #MediPaCe

[Chi Pakarinen @Chi_Chicilee]

Hey network, is anyone going to DIA Europe next week? Ping me or come say hi!

[MediPaCe @medipace]

#MediPaCe will be at #DIAEurope2023 next week to present preliminary results of a qualitative study to perceived benefits and impact of radiotherapy on #PatientExperiences and #QualityOfLife.

👋Come say hi to us if you're there!

https://t.co/i0a19jQ7US

#PatientEngagement

[MediPaCe @medipace]

MediPaCe are supporting International Women’s day by providing an introduction to a topic close to our hearts – inequalities in health. Please Read more here. https://t.co/sWsi8FYxHO
#internationalwomensday #PatientEngagement #EmbraceEquity #Equalhealthcare #IWD2023