Paula

DOOSE SYNDROME / MYOCLONIC ASTATIC EPILEPSY WARRIOR biochemistry, genetics, virology, epilepsy, molecular biology 🧬 *postdoctoral molecular biology scientist

[Paula @ChillyPanda]

Our #doosesyndrome #myoclonicastaticepilepsy warrior 💜💜💜💜

[Young Epilepsy @youngepilepsy]

Meet Harry!

Harry has Myoclonic-Astatic Epilepsy (Doose Syndrome). Harry took part in our 'Spotlight on Rare Epilepsies Project' to share with us how he feels about his epilepsy.

Watch Harry's video here to learn more: https://t.co/B7Xt1Q6s5A

[Paula @ChillyPanda]

@triffic_stuff_ Good job we have a functioning social care system to look after that poor child in the uk .. ahhh …hang wait a minute 🫩

[Paula @ChillyPanda]

@GretchenJGP @NoFilterSkin Did for me !

[Paula @ChillyPanda]

@SurLiott9 @LBC And in actual fact “Meningitis B is diagnosed urgently in a hospital setting through a lumbar puncture (spinal tap) to analyze cerebrospinal fluid (CSF), alongside blood cultures and PCR tests to identify the bacteria”

[Martin Lewis @MartinSLewis]

Why do people with mental (or physical) health vulnerabilities need call essential firm after firm and govt departments too to declare it, needing repeat the same painful, possibly embarrassing explanations. Today @MMHPI is calling for a 'tell us once' system. Here's my quote on why.....

"The government has a Tell Us Once system for when someone dies, yet we lack the same for those who are alive and struggling. That makes no sense. We need a single simple system that can work across essential services like banks, energy and water firms, and government systems too – whichever people choose.

“Right now, a vulnerable person in the middle of a mental (or physical) health crisis may have to call firm after firm, and government agencies on top, repeating the same painful, possibly embarrassing or triggering explanation again and again. In a digital age where data sharing is simple, that feels almost cruel.

“Of course safeguards and informed consent are essential, people must have control of their data. But it is time we stopped focusing on using data to just drive profit and started using it to drive compassion.”

Read full info and get details about the underlying research here... https://t.co/afZUx4vHHf

[Young Epilepsy @youngepilepsy]

New DfE draft guidance on medical conditions is a welcome step forward - including how essential IHPs are for epilepsy & information not just for schools but also colleges & early years settings. Read our full response on how this impacts young people: https://t.co/B1MhT3ob6I

[Louise Ashworth 🦖 🟩⬜️🟪 @Ashworth101]

This is a blatant attempt to evade their duty under the Equality Act. They no doubt know that if they label the other changing room for ‘Women’ then ALL men must be excluded so they’ve just not provided a single sex space for women. Men are guaranteed their privacy though. Phew!

[Paula @ChillyPanda]

@EnvAgencySE @EnvAgency PROSECUTION is the only way ! Doesn’t look nice on a CEO’s CV !

[Paula @ChillyPanda]

@EnvAgency Prosecution IS THE ONLY DETERRENT when these companies are rolling in cash .. FINES are a drop in the ocean to them !

[Paula @ChillyPanda]

@EnvAgency Do BETTER !!!! 😡

[Paula @ChillyPanda]

@MingleDandy @florestaqueen @Channel4News We need an @EnvAgency that is fit for purpose to bring accountability for this absolute disgrace of a situation. Prosecutions are the only way 😡

[Rachel Salvidge @RachSalv]

After a decade as a de facto poop correspondent, it was great to see the sewage scandal brought together in Channel 4’s brilliant drama Dirty Business. Even if you think you know the story, watch it. I’ve tried to sum up the whole malodorous affair here: https://t.co/R1y3XOMBNr

[Feargal Sharkey @Feargal_Sharkey]

"Dirty Business creator on raw sewage scandal: ‘This is the worst possible situation we’ll accept without starting a revolution’."

Maybe that's what it's going to take. One way or another govt is going to have to take its head out of the toilet and confront the ownership and financing of the water industry. There is no other option.

https://t.co/EwMbNs7jel

[Feargal Sharkey @Feargal_Sharkey]

Law suit against South West Water by the people of Exmouth, Budleigh Salterton and Lympstone is now expanding to include the towns of Dawlish, Sidmouth, Teignmouth, Newquay and Penzance.

Tell your friends.

https://t.co/Ay9pATeF4r

[Karl Cunliffe @KDCunliffe]

ITV’s Mr Bates versus The Post Office could have brought Twitter to its knees.

Dirty Business is having minor impact in comparison.

It’s a staggering series.

Thank goodness for the likes of Feargal Sharkey who will not let this go.

#dirtybusiness #feargalsharkey

[Feargal Sharkey @Feargal_Sharkey]

Did you see the shocking finale to Dirty Business?

Govt must act, NOW!

And can I just say, a huge round of applause to all of the decent people working within the water industry and regulators, trying to do their job, to make things better, to put things right and all the while being hampered by politics, corporate greed and incompetence. 👏👏👏

https://t.co/mRtQzVDrxH

[Paula @ChillyPanda]

I’ve just unlocked today’s window and could win a prize! Check it out at https://t.co/5ZtPPnZjrw

[Paula @ChillyPanda]

@AngrySaxon90 @Heccles94 and she can afford to pay for private dental care but doesn’t

[Paula @ChillyPanda]

@Cartermill65675 @Heccles94

[Paula @ChillyPanda]

@fopminui I miss Liverpool .. good people ! can’t wait to move back ❤️

[Young Epilepsy @youngepilepsy]

Launching: Different films. Different seizures. Same goal: understanding. Made with young people, for young people - to show what seizures really look like & how to help. Like, RT & drop a💜to show your support! Watch all films now on our website or YouTube. #UnderstandMyEpilepsy