ChronicallyJess

Patient advocate living with #Crohns. Collaboration with patients is the future of medicine. #IBDparenthoodproject @trellushealth @dartmouthMHCDS ‘20

[ChronicallyJess @ChronicallyJess]

It's important to honor just how difficult it can be each time remission ends (or should I say, pauses?). #Crohns will be with me for life. And while I do persevere, I also feel sadness, frustration, and pain - and that's OK. #IBD #chronicillness https://t.co/UPjJO1fRc6

[ChronicallyJess @ChronicallyJess]

@ibddoctor Made it home from #aibd in time to see the game and TAYLOR!!!

[Aline Charabaty, MD, FACG, AGAF @DCharabaty]

#AIBD2023 Pregnancy in #IBD

@ChronicallyJess
💎B clear: healthy🤰🏼on Rx = healthy 👶🏻
🤰🏻needs to know she’s doing the right thing for👶🏻 AND fight misinformation & “advice” from “internet & well-meaning in-laws”

💎Enroll🤰in #PIANO: it’s empowering for🤰🏽to be part of ⏩ science

[ChronicallyJess @ChronicallyJess]

“Our job is to give patients more hope and reduce their fear.”

Thank you for doing that, and so much more, over our many years together. Im so very lucky and I know it. Congratulations on your INCREDIBLY well deserved Sherman Prize, Corey! #aibd2023

[ChronicallyJess @ChronicallyJess]

You did an amazing job with this article, and inspired me in the process! 💜

[Katie Dunleavy @dunleavy_katie]

Last year at @VindicoMedEd #IBDFellowsSummit @ChronicallyJess inspired this @AmCollegeGastro Magazine article on “Teaching with the Patient Voice”

Grateful to have so many patient voices helping #GIFellows learn & grow during training & at conferences!😊

https://t.co/ajryfrpOq9

[ChronicallyJess @ChronicallyJess]

Patients don’t fail treatments. Let’s commit to stop phrasing it as if they do. It matters!

[ChronicallyJess @ChronicallyJess]

@ownyourcrohns speaks about the importance of using anatomically correct visual aids when counseling on surgery as an option to treat #IBD, as it helps the patient to visualize the outcome and aid in decision-making in the process. #aibd2023

[Tina Aswani-Omprakash, MPH @ownyourcrohns]

#IBD patients: hang on to this slide! #EmilyBlock sharing resources for how to get access to medications 💊💉

#AIBD2023 @IBDConference

[Uma Mahadevan @UmaMahadevanIBD]

One of the most important things I learned @IBDConference was on panel w/@ChronicallyJess “when pt comes in w/certain beliefs/therapies, they’re coming from a place of hope, hope that therapy “x” cures them & they don’t need y&z” . Understanding that changes the whole interaction

[ChronicallyJess @ChronicallyJess]

LOVING convos about fatigue at #aibd2023, but want more about how pts measure fatigue, and how they currently compensate in their life to manage fatigue, because if patients rate their fatigue as improved, but are still opting out of activities, fatigue is not actually improved

[Aline Charabaty, MD, FACG, AGAF @DCharabaty]

#AIBD2023 @IBDConference
#Fatigue in #IBD @HorstIBDDoc

Most common Causes
✅Active 🔥
✅Chronic disease state
✅Psychosocial factors
✅Poor Sleep
✅Anemia
✅Meds

How to approach fatigue Differential & treatments👇🏽including life style changes

[ChronicallyJess @ChronicallyJess]

@UmaMahadevanIBD @IBDConference @MLongMD Three AMAZING women right there. The #ibd world is so lucky to have you!!

[ChronicallyJess @ChronicallyJess]

After being diagnosed with Lyme disease this summer, following development into severe neurological symptoms before I was heard by doctors and properly tested/treated, I’m finally stepping outside of my safe, home-based space to travel to #aibd2023! Feeling thankful to be here ✈️

[ChronicallyJess @ChronicallyJess]

What an amazing opportunity for #ibdmoms to create additional research for future parents with #crohns #ulcerativecolitis

[PIANO @PIANOIBD]

Are you a @PIANOIBD patient and have a study idea? What data have we been collecting from you that would be an interesting question? Let us know on the FAQ page. just click "propose a study ?" @MLongMD @UmaMahadevanIBD @ChronicallyJess @IBDMoms https://t.co/l8RykUEmHK

[ChronicallyJess @ChronicallyJess]

@aboutIBD @DrCoreySiegel @aboutIBD - thanks for having me on your podcast! We got to have a really enjoyable conversation and I think that this came out AWESOME! Hats off to you… that’s a lot of work!! #crohns #cdpath

[About IBD (Amber): Writer, Advocate, Podcast Host @aboutIBD]

📣 The latest #AboutIBDPodcast covers a tool called CDPATH, which is available now for some people w/ #Crohns. It could help in deciding, for instance, about medications. @DrCoreySiegel and @ChronicallyJess give the details on Ep 128! Listen or read here: https://t.co/DjXrSN5wDJ

[ChronicallyJess @ChronicallyJess]

@nataliesparacio Great news, Natalie!!! 🎉

[ChronicallyJess @ChronicallyJess]

@ownyourcrohns @ibdesis @nataliesparacio @enlightenedlg @Youcantmakethi4 @rebelliousgut @FITWITMD @IBDimmunology @AmirGhaffariMD @ibdgijami Wishing you healing thoughts! Take care of yourself.

[ChronicallyJess @ChronicallyJess]

@IBD_Afzali It was so wonderful to meet you, as well! I look forward to seeing you again at future meetings!

[ChronicallyJess @ChronicallyJess]

So glad to hear the deepening of discussions into personalization of treatment decision-making. This is a start, with hope to go even further into understanding which treatments may be best based on patient history with treatment. #crohns #uc #AIBD2022 @IBD_Afzali

[Tina Aswani-Omprakash, MPH @ownyourcrohns]

Incredible meeting @ChronicallyJess & @UmaMahadevanIBD IRL! And @SCKimCHP @IBD_Afzali seeing you again! The work you all do for women & children w/ #IBD is groundbreaking. I am humbled to know you 💜🙏🏽

#AIBD2022 @MRegueiroMD @IBDConference

[ChronicallyJess @ChronicallyJess]

@LoriPlung Wishing you a speedy recovery, Lori!!

[Crohn's and Colitis Young Adults Network @CCYANetwork]

“We getting pulled up tonight” 🎶

When GI docs pull up at #AIBD2022 with patients…@IBDConference

@MRegueiroMD @MLongMD @NMH_SHanauerMD @SCKimCHP @JeremyAdlerMD