Claire Copleston

🦓 It’s not what happens in life but the way you handle it.🦓 Wife / Mum / Parent Carer 🦓EDS / POTS / MCAS / IC / ASD / ADHD & plenty more in our family 🦓

[Claire Copleston @ClaireCopleston]

@JGjanegreen @m_serenity Ah yes thanks I’d just seen it and retweeted! 😊

[Claire Copleston @ClaireCopleston]

The dots are joining up! Much needed research 👍 #MCAS #EDS #chonicillness #chronicpain #allergies #MedTwitter #disabled #LongCovid #COVID19

[Nicola Haseler @BBCNicola]

#LongCovid and research into a link with Mast Cell Activation Syndrome https://t.co/6gh9UcFiiG

[Claire Copleston @ClaireCopleston]

Whoever thought #disabled people haven’t been severely affected by #COVID19?! Many have been affected by #shielding and #disabled parking being removed #disabledtwitter #wheelchairlife #chronicillness https://t.co/H4OgcFWoYP

[Jane Green MBE FCCT connective 😶 @JGjanegreenMBE]

Any questions on #autistic pregnancy, labour and post-natal exp. including #hypermobility 'issues with tissues' ? pls RT
#autism #EDS #HSD
@pigwitch @HayleyMorganAut @autismtintglass @amanda_roestorf @EDalmayne @emmaLGoodall @lizzyh20 @sedshsd @CatrionaSCot @AutisticDoctor

[Care Quality Commission @CareQualityComm]

81% of people with long term conditions report issues when trying to access health and social care services, such as longer waiting times and inconsistent care.

Give your feedback here: https://t.co/qCVq62kDfW

#BecauseWeAllCare

[Gem @wheelsnoheels]

It’s 100% down to the government to enforce changes. Access is a right, not a privilege. We are suffering, and we are forgotten. Please sign my petition to bring back disabled parking. https://t.co/qFl8is1pYd

[Claire Copleston @ClaireCopleston]

@wheelsnoheels Exactly why I’ll get flip down handles on my new chair 👩🏻‍🦽👍

[Claire Copleston @ClaireCopleston]

@wheelsnoheels @OKmagazineUK Omg @KatiePrice 🤬 surely having a disabled son you’re more aware of how disabled people are treated?! Why are #wheelchair users looked down on ... because of #stereotypical attitudes like yours #ableism #DisabledTwitter #ablism #disabledaccess #disabledlife

[Claire Copleston @ClaireCopleston]

@Tulleys_Farm Fantastic! Thank you for listening 👩🏻‍🦽👍🌻

[Claire Copleston @ClaireCopleston]

@Tulleys_Farm Loved the PYO #Sunflowers yesterday, just a suggestion for next year - could you create a path through the middle of the field to make it wheelchair accessible for everyone to join in? Thanks 🌻💛 #Inclusion #DisabledTwitter

[Claire Copleston @ClaireCopleston]

@MattHancock Are you serious?! How is a crash diet going to save the NHS long term?! 🙄🤷‍♀️

[Claire Copleston @ClaireCopleston]

Learnt something today 👍

[Claire Copleston @ClaireCopleston]

@GIFTpeer_haven There are different ones. The one he had was like a milkshake, not thick - he wouldn’t tolerate that. Our pead was confused the way it presented, not a typical allergy, but #dairyfree resolved it. I think he might have #MCAS tendencies too!

[Claire Copleston @ClaireCopleston]

So happy to see #PavementParking trending today! If the laws change it will make a huge difference to #disabled people who struggle to access their community due to inconsiderate #parkingproblems 👩🏻‍🦽👏👍

[Professor Lara Bloom @LaraBloom]

“It’s important to include the #patientvoice in everything from bench to bedside because, without that, you don’t have the narrative of why you’re doing what you’re doing." @TheEDSociety @RARE_X_ https://t.co/RwTLq1ieGK #patientdata #raredisease #patientadvocacy #rarex

[Claire Copleston @ClaireCopleston]

@MattHancock @GavinWilliamson What do we know about the #COVID19 transmission risk from children/teenagers to #shielding adults. We’re told the risks are low for our children which is great but what about transmission to extremely vulnerable family?

[Claire Copleston @ClaireCopleston]

@NoobLapras @wheelsnoheels Just why?! 🤬🤷‍♀️👩🏻‍🦽

[Claire Copleston @ClaireCopleston]

Valuable research for #ME #cfs #chronicillness #ChronicFatigueSyndrome #MyalgicE #fatigue #ChronicPain #LongCovid #longhauler #Fibromyalgia #EDS

[DecodeME the ME/CFS Study @DecodeMEstudy]

Going into the last full week of August, we’re just over 500 shy of having 20,000 people in the UK signed up to register their interest in #DecodeME.

With funding starting in September, help us to reach the 20,000 mark by then by continuing to share 👉 https://t.co/1RJYlr6KcQ