CLL Ireland

Information and advocacy for CLL patients and carers in Ireland. Registered Charity RCN 20158552; CHY 22567. Retweets≠endorsement

[Fianna Fáil @fiannafailparty]

"The rare diseases approval process is broken. These inordinate delays are unacceptable, they're inhumane, they're cruel."

Padraig O'Sullivan TD speaking on the Claire Byrne show on Newstalk FM

[Anthony Nolan @AnthonyNolan]

Today we're pleased to share that an additional CAR-T treatment, Breyanzi (liso-cel) has been approved by @NICEComms.
This will be available in England and Wales for patients with large B-cell lymphoma, if they have relapsed or stopped responding after 2 or more prior treatments

[Toby Eyre @tobyeyre82]

Chronic Lymphocytic Leukemia Through the Spectrum: Frontline Therapy, Sequencing With Subsequent Therapy, and Treatment of Double-Refractory Patients | American Society of Clinical Oncology Educational Book https://t.co/iFUQK0T89n

[Eimear’s Wish Creating Hope @Eimears_Wish]

@mikenesbittni @SorchaEastwood @PaulMaskeyMP Did you know that anyone aged 17-55 and in good health can join the bone marrow donor register @DKMS. In ROI its aged 18-45 can join @Giveblood_ie
Please share and help someone who’s only hope of survival is a bone marrow transplant

[Acute Leukemia Advocates Network (ALAN) @AcuteLeuk]

🩸 Blood cancer can affect anyone, at any time.
Awareness helps people recognize when something may need attention.
💛 Today, we stand together to raise awareness.
#WorldBloodCancerDay #LeukemiaAwareness

[Roberta Horgan 🇮🇪 @HorganRoberta]

It's incredibly frustrating seeing @HSE @roinnslainte shout about their commitment to cancer prevention and early detection when I'm trying to support people who are waiting up to 3yrs for access to #CascadeGeneticTesting for a known cancer syndrome in their family!!! #HighRisk

[CLL Society Inc. @CllSociety]

Being diagnosed with #CLL means making choices about treatment, timing, and what's right for your situation.

May 27: join Dr. John Burke & Christina Fisher on shared decision-making, asking the right questions & navigating health info.

Register: https://t.co/vA6QKgA73l

[UK Chronic Lymphocytic Leukaemia (CLL) Forum @UkCllforum]

Our spring newsletter is here.
Featuring: Key summaries of our annual scientific meeting, recent changes in our executive committee and our busy year as NICE stakeholders.

https://t.co/6bWnMZJPYg

Register for our Clinical Sciences meeting in October. Details coming soon.

[Stewart Dickson CF MLA 🇺🇦 @stewartcdickson]

Today I attended a meeting of the North South Inter Parlimentary Association in Dublin one of our key topic areas for discussion was cross border cooperation on Children’s #Cancer Services and palliative hospice care.

[CLL Ireland @CllIreland]

At this weeks #AllIrelandCancerSummit in Dublin
Alliance Party MP Sorcha Eastwood, whose husband was diagnosed with a rare lymphoma, said: “What you want as the person, as the patient, as the family, is a sense of control and a sense of a plan.”
@knowyournodes

[Sorcha Eastwood MP @SorchaEastwood]

Cancer knows no borders and neither should our fight against it. I was really proud to be able to speak at the All Island Cancer Summit in Dublin this week. We need to keep working together, keep talking and keep focused. We can and we must have an all island and all islands approach to Cancer.
Have a read here: https://t.co/mKAvpIAnPP

[Christine Campbell @CCampbell162]

Huge thanks to Stewart for exposing these shocking statistics on cancer inequities in #NorthernIreland.
Any delays in the #cancer pathway are actively harming patient outcomes. This must change.
#CancerAwareness @healthdpt @niexecutive @UCANIRELAND @CancerFocusNI 👇

[CLL Ireland @CllIreland]

@aidanmccormick6 Nice to meet you Aiden and share patient and advocacy experience.
Keep up the great work.

[Michael Rynne @MichaelRynne1]

Amazing day of advocacy in Dublin at the #AllIslandCancerSummit and great to meet with @SorchaEastwood a strong voice of cancer advocacy on both Islands.
#OneEuropeEqualCare
#ECLLA #CLL #BloodCancer

[CLL Ireland @CllIreland]

We were delighted to finally meet Sorcha Eastwood in Dublin today, and she was incredibly generous with her time discussing advocacy issues affecting cancer patients across both islands.

[Sorcha Eastwood MP @SorchaEastwood]

While the UK Government are wasting your time squabbling in Westminster, I'm just getting on with delivering for people in Lagan Valley. I spoke today at the All Island Cancer Research Institute Conference in Dublin and I'm now at the Irish Parliament getting ready for Committee. I'll always go where I can deliver the most for my constituents- I'm not going to let this wreck of a Government stop me delivering for you!! 💪🏻

[BeOne Medicines @BeOneMedicines]

@CllSociety recently highlighted six-year follow-up data from our global Phase 3 SEQUOIA study evaluating our BTK inhibitor in patients with treatment-naïve chronic lymphocytic leukemia (CLL) or small lymphocytic leukemia (SLL), with or without del(17p) and/or TP53 mutations.

Learn more about this important data and what it means for high-risk patients here: https://t.co/xeEUCqoPn3

#CLL #SLL #BeOneAgainstCancer

[Christine Campbell @CCampbell162]

Honoured to join the panel at the All Island Cancer Summit 19th May.
Let's talk about 'No patient left behind' by breaking down barriers to access & equity in cancer care.
Looking forward to a powerful discussion.
​@AICRIproject #PatientsInvolved #PatientAdvocacy #AICS26 📢

[Leukaemia&LymphomaNI @LAL_NI]

Good luck to everyone taking part in tomorrow's Belfast City Marathon.

We have over 100 people running to raise money for LLNI and they've already raised over £40K.

Join us at our Cheer Station on the Ormeau Road and help us make some noise to spur the runners on!

#RunToRaise

[Paschal Sheehy @PaschalSheehy]

Not often I get to chillax for an hour during the day, but giving a unit of blood today allowed me to do just that — there are no down sides when you #giveblood. Can I appeal to people who are eligible to consider donating blood. Blood donors are always needed. 🙏

[Fergal Bowers @FergalBowers]

80% of radiotherapy machines need replacing - experts via @RTENews https://t.co/ovR0e4iwYn

[Trinity St James's Cancer Institute @CancerInstIRE]

An important article with @ProfJohnKennedy in the @Independent_ie highlighting the scale of the cancer challenge ahead for Ireland. Planning, investment, & coordinated action across the system will be critical to meet the needs of future patients.
https://t.co/SLcPq5vieX