ClusterMeetingPlace

A place for fellow Cluster Headache sufferers worldwide, to meet other sufferers & supporters. Don't suffer in silence.

[ClusterMeetingPlace @Clusterheads]

#clusterheadache ?
You're not alone. Over 2000 sufferers & supporters share their tips, frustrations & pain through @Clusterheads

[Colin the Crypto Ocelot @Colinthecrypto1]

@Dannyboy1lcfc @WifeyAlpha I don’t know enough about the Botox injections tbh. There’s some great resources on Twitter like @Clusterheads @Cluster_buster which generally have the most up to date treatment and management. Well worth your time 🤝

[OUCH (UK) @OUCH_UK]

Cluster Headache Patients! Please take a few minutes to complete this survey:
https://t.co/VRaqFz2JXp

[OUCH (UK) @OUCH_UK]

Many thanks to Karen Devlin Austin for permission to share this video of her cluster headache attack to spread awareness of the suffering CH brings. Thankfully, since this video was taken, Karen got help and now has oxygen and effective treatment.
#ouchuk.org
#clusterheadache

[Aidan Meehan @AidanMeehan11]

@Clusterheads Hi all, what are peoples experience of the Gammacore device? Does it completely abort an attack or just give some level of relief?

[Aidan Meehan @AidanMeehan11]

@Mickeypomerr @Clusterheads Sumatriptan injections worked really well for me, but not available in Ireland. Zomig fast melts (dissolve on tongue) are not as good but do help a lot.

[OUCH (UK) @OUCH_UK]

gammaCore users needed to help in research project

https://t.co/btIDKqx6LB

[ClusterMeetingPlace @Clusterheads]

@hayleylouisephd Take a look at https://t.co/OffOSoVWqB

[hayley @hazza_chaz]

Does anyone have experience with cluster headache? Not for me, for my mum. It’s been four days now and it’s still happening with her eye drooping.

[ClusterMeetingPlace @Clusterheads]

Wishing you all a pain free Christmas.
#clusterheadache

[The Royal Family @RoyalFamily]

The Queen died peacefully at Balmoral this afternoon.

The King and The Queen Consort will remain at Balmoral this evening and will return to London tomorrow.

[ClusterMeetingPlace @Clusterheads]

https://t.co/ZNFOgWoHXZ

[ClusterMeetingPlace @Clusterheads]

https://t.co/OLRJBq4fLu

[Dwight Schrute @DwightS61541541]

@Clusterheads Has anyone tried emgality?

[Mickey @Mickeypomerr]

@Clusterheads What has everyone found effective for attacks?