Today's the day! 🎉We're meeting with the @US_FDA to #advocate on behalf of the final 10% of people with #cysticfibrosis who do not benefit from an existing CFTR modulator. We couldn't be more honored or excited! The session is private but we'll share a recap on our blog soon!
Happy that NY will begin offering shots to people with underlying health conditions this month and those with #cysticfibrosis are in the list! Way to go, NY and @NYGovCuomo! Hope other states follow suit.
https://t.co/fOnKxYczpZ
@G17Esiason
The 2021 Video is here!! And it’s a powerful one!!
We’re on an urgent quest to MOVE THE LINE and create fast breakthroughs for the final 10% of the CF community, #nobodyleftbehind.
VIEW, DONATE, SHARE >> https://t.co/2JRZN4TVY6
#FinalCFSummit#CysicFibrosis
2020 continues to prove that we can do hard things. Join us as we transform our annual “Evening with Emily’s Entourage” gala into something bold & radically different, because diseases like CF don’t wait for pandemics to pass.
#FinalCFSummit#CysticFibrosis#COVID__19
The highest priorities in vaccine development are safety and efficacy. Period. Speed is important but secondary. No amount of political pressure should ever compel the FDA to compromise these standards. To do so would mean lasting damage to public faith in vaccines. #COVID19
2030 is far away but this is how we move the needle on racial & economic inequality. Ed reform + leveraging business as a platform for change -- “There needs to be a new social contract between business and our communities” https://t.co/7tkF4BQD8w
"People don’t hire you, buy from you or recommend you because you’re indifferently average and well rounded.
They do it because you’re exceptional at something."
Cultivate the thing you are or can be exceptional at.
https://t.co/tK83ajJVZw via @thisissethsblog@Coby1KG
Amazing to see Spirovant, a gene therapy @EmilysEntourage helped launch, recognized in @nature for pioneering gene therapy research for CF cures #venturephilanthropy
https://t.co/GRe0HA39Nh
John Lewis was the youngest speaker at the 1963 March on Washington—where MLK gave the "I have a dream" speech—and the speech Lewis wrote that day was so incendiary that the march organizers wouldn't let him deliver it as written.
Tonight, we’ll be thinking about all of you who have gotten EE to where it is today...one step closer to bridging the gap in the CF community to make sure 100% have a chance to breath deep and free and plan for a bright future! #ThankYou#HappyFourthOfJuly