@afshineemrani all of which makes perfect sense when you think that people with Down Syndrome have a very high risk of Alzheimer’s and also cardiac problems.
@Chuffin_ell Have you seen/signed this? It wouldn’t fix everything, but would maybe sort this at least this part of your story, if you had skilled carers that is! https://t.co/eskBeTtTXq
@KtTup So sorry to hear this @KtTup certain churches in Oxford have such a long way to go with this, but until they see that and value those with disabilities as much as the “100 PhDs in the congregation” we will just keep on keeping on.
@DownSynCEN have just released their recommendations for speech therapy to be fully included in the Guidance for the Down Syndrome Act. https://t.co/oKKR7WhFz4
Please take a look and respond to the governments consultation before March 30th.
https://t.co/huND6Kj0kk
On this day eight years ago, my dearest Dad died at home of bowel cancer.
His death was a good as it can possibly be - cocooned within the love of his wife, children and grandchildren, with his symptoms palliated beautifully. This was in no small part thanks to a small army of NHS community and palliative care nurses who visited daily, unstintingly, infusing Dad’s final days with acts of quiet yet priceless tenderness. How I wish everyone were able to receive such a service (I am painfully aware of the patients I sometimes treat who are dying on trolleys in hospital corridors - a travesty of what a good death should be).
Curled up in grief the day after Dad died, I posted a tweet of thanks to that small army, the NHS staff who had held Dad throughout those fifteen long months of the cruelties of cancer. Improbably, the tweet set off around the world, being seen some 9 million times. It struck a particular chord with people in America, whose replies, in their thousands, were often heartbreaking.
Why? I think because my tweet’s message was so simple. It spoke of gratitude to the NHS and for the fact that the one thing we never had to worry about during Dad’s illness was how we would pay for it - that his treatment might bankrupt us.
The NHS is flawed and failing, the product of decades of underfunding, understaffing, outsourcing and the leaching of funds into private ‘providers’ hands. But it is still a jewel in the UK’s crown - the embodiment of something vital and profound. We in Britain inhabit a society that believes, collectively, in treating patients in need, irrespective of their ability to pay. How simple and decent and profoundly kind is that?
My Dad gave his heart and soul to his NHS patients because he cared. It’s why I’m a doctor today.
Here’s to the NHS, its founding principles, and the fight to remain a society whose members continue fundamentally to care about each other.
And here’s to you, Dad.
@theAliceRoberts@globalhlthtwit But can you imagine the uproar if the gov had tried this. East Asian states still allow the rule of force, and citizens are generally compliant. We would have needed the army and some to enforce this. Our gov were dealing with a much more liberal culture. That don’t follow rules
@nmdacosta It’s ok though as there are newly released resources for end of life planning for people with LD. Timing…..??? This is the treatment picture…….
@talkChristianly I love that! “Become what you were created to be”. There are some people who would never be able to encounter God in a big church, God provides a body for all. And let’s remember each individual heart is infinitely precious to God. Numbers of hearts are irrelevant to Him.
@SchoolsWeek@matthewhood “The EHCP approach and the incentives that flow from it are the primary cause of the SEND crisis.” Nope. Disagree. Chronic underfunding of schools, teachers with ridiculous workloads and a huge rise in the number of kids with highly complex needs is the cause of the SEND crisis.
Dismayed to see you sharing such a misleading & potentially deeply frightening video, Kim.
If someone is in 'unspeakable pain' at the end of life, they should see a palliative care doctor like me - & I can promise you there is always something I can do for your pain. (1/n)
This comment using @Downsyndrome as a slur is so out of order…..but reading the replies 99.9% of them restore faith in the human race, thank you all for standing up for our community ❤️❤️❤️
Any UK doctors or other healthcare professionals who are willing to be part of a movement resisting euthanasia, please comment here or inbox me
We will be doing everything we can to stop this over the next few months
Please like and RT even if you are not in healthcare!