Sickle Cell Disease Coalition

The Sickle Cell Disease Coalition is an international alliance aiming to improve outcomes for individuals living with #sicklecell. Together, we can #ConquerSCD!

[Sickle Cell Disease Coalition @ConquerSCD]

Want a sneak peek of the #SCD Stakeholder Database?: https://t.co/YFlta0Md23
Make sure you fill out the survey for your organization to be included: https://t.co/BtD2yAOGiV

[Sickle Cell Disease Coalition @ConquerSCD]

Can you believe it’s been over a week since the 2026 SCDC Summit? If you couldn’t stay for the full event, no worries! Summit content is still available to rewatch. Please also take a few seconds to fill out our survey here: https://t.co/yN4nFbddgE

[Sickle Cell Disease Coalition @ConquerSCD]

Today is the day! The 2026 Sickle Cell Disease Coalition Annual Summit is live starting at 10:00 AM ET.

Need help navigating the Summit links? Remember, you can check back on the agenda homepage in Whova, or email [email protected].

We’re excited to see you there!

[Sickle Cell Disease Coalition @ConquerSCD]

T-1 DAY! The 2026 Sickle Cell Disease Coalition Annual Summit is almost here.

Have you registered yet?

Don’t miss your chance to be part of this important gathering. Register here: https://t.co/QHyYDe3TKL less

[Sickle Cell Disease Coalition @ConquerSCD]

We’re less than 1 week away from the 2026 SCDC Annual Summit!
Have you registered yet? You don’t want to miss this year’s virtual Summit on Sept. 3, 10 AM-4 PM ET.
Theme: Every Life Stage, Every Voice, Every Opportunity
Register: https://t.co/T6F8DgKwmJ
#SCDC #SickleCellDisease

[Sickle Cell Disease Coalition @ConquerSCD]

September is National Sickle Cell Awareness Month! How are you recognizing it? Hosting events, sharing resources, or uplifting voices?

Share plans in comments or email [email protected].

[Sickle Cell Disease Coalition @ConquerSCD]

Don’t forget: the next SCDC Update comes out this Friday!

Have news, events, resources, opportunities, or announcements you’d like us to amplify? It’s not too late.
Send updates to [email protected].

#SCDC #SCDCPartner #SickleCellDisease

[Sickle Cell Disease Coalition @ConquerSCD]

Registration is now LIVE for the 2026 SCDC Annual Summit!

Theme: Every Life Stage, Every Voice, Every Opportunity

Join us virtually on Sept. 3, 2026, 10 AM-4 PM ET, to learn, connect & collaborate in advancing whole-person SCD care.

Register: https://t.co/Y8dqw4G1NM

[Sickle Cell Disease Coalition @ConquerSCD]

August is National MedicAlert Awareness Month. SCDAA and MedicAlert provide patient-specific care plans for sickle cell pain crises. Learn more: https://t.co/rDyffeB6wF

#MedicAlertAwarenessMonth #SickleCellDisease #SCD

[Sickle Cell Disease Coalition @ConquerSCD]

Calling all digital comms, marketing & public health promotion pros!
ASH is hiring a Social Media Communications Consultant to support the Sickle Cell Disease Coalition with content, engagement, & SCD resource promotion.

See the RFA below. Apply by Aug. 28: [email protected]

[Sickle Cell Disease Coalition @ConquerSCD]

The SCDC is grateful to all the partners and members who joined the SCD Unified Action Forum. SCDC member Andres Vasconez Samaniego, MD, FAAP, shared a powerful reflection on his experience—highlighting collaboration, listening, and unified action across the SCD community.

[Sickle Cell Disease Coalition @ConquerSCD]

The SCDC is looking for ideas for future Peer Learning Exchanges. These sessions strengthen organizations! Swipe through past topics and imagine what you could share. Have an idea for a session? Email [email protected].

[Sickle Cell Disease Coalition @ConquerSCD]

Flash Friday shares what's new, needed, and next in the sickle cell community. SCDC members, send your items to [email protected] by May 25. #SickleCell #SCDC #FlashFriday

[Sickle Cell Disease Coalition @ConquerSCD]

Today is Clinical Trials Day—honoring patients, investigators, and teams advancing care. ASH supports every trial stage, from design to training.
Discover resources and fuel your next breakthrough here: https://t.co/ykv1jYf5wF
#ClinicalTrialsDay #Hematology #ClinicalResearch

[Sickle Cell Disease Coalition @ConquerSCD]

Help us amplify what’s happening across the sickle cell community. The SCDC Update lands in inboxes on the last Friday of the month! We’re looking for news, events, opportunities, and tools to share with our network.

Send submissions by May 22 to [email protected]

[Sickle Cell Disease Coalition @ConquerSCD]

Stigma grows silently for those with SCD. This Mental Health Awareness Month, join SCDAA P.O.W.E.R. ECHO on May 28 to explore mental health in SCD care. Register: https://t.co/vx5oEJgg5e #MentalHealthAwarenessMonth #SickleCell #SCD #MentalHealth

[Sickle Cell Disease Coalition @ConquerSCD]

This #NationalNursesWeek, SCDC celebrates #ThePowerOfNurses in sickle cell disease.
On May 20, join the IASCNAPA “Advancing Nursing Excellence in SCD” Congress to deepen knowledge in global wellness, holistic care & shared wisdom. Register: https://t.co/eNBe9olbAl

[Sickle Cell Disease Coalition @ConquerSCD]

Join HHS Office of Minority Health for Part 1 of a two-part roundtable on key elements, challenges, and best practices in comprehensive SCD care (including nutrition).

📅 May 14 | 2–3:30 PM ET
🔗 Register here: https://t.co/yF5Xtx0kZd

#SCD #HHS

[Sickle Cell Disease Coalition @ConquerSCD]

“Save the date!” We’d love to… but first, we need the dates. We’re building the SCDC spring and summer calendar. Got events, advocacy actions, webinars, or deadlines for the sickle cell community? Email [email protected] so we can spread the word.

[Sickle Cell Disease Coalition @ConquerSCD]

April is Medicaid Awareness Month. Medicaid is a lifeline for many people with sickle cell disease, but gaps and barriers remain.

Urge your members of Congress to cosponsor the Sickle Cell Disease Comprehensive Care Act: https://t.co/l1ibsl6eNd

[Sickle Cell Disease Coalition @ConquerSCD]

Flash Friday is coming up, and we want to feature your work! Our members-only SCDC newsletter drops the first Friday of each month—share your news, events, and resources by April 24 to be included.

Send submissions to [email protected]