CCfK is a nonprofit that organizes the Philadelphia Concours d’Elegance and NY car events to support research & care for children with genetic conditions 🏎️🧬
NEW YORK, GET READY TO ROLL! 🗽🚘 The FIRST EVER Cool Cars for Kids Car Show is hitting New Hyde Park on August 10th! Join us for amazing cars, food trucks, and family fun, all while supporting research and care for children with genetic conditions @NorthwellHealth
That’s a wrap on the 2023 #RareImpactAwards! Thank you to all who joined us tonight to celebrate our 40th Anniversary and honor the many individuals and organizations doing remarkable work on behalf of #RareDisease patients and families.
Congratulations to Ada Hamosh, MD, PhD, a creator of a tool for collection of phenotype & genotype data, as well as website connecting clinicians & researchers with interest in the same gene, on your #RareImpactAward.
Congratulations @Novartis on your #RareImpactAwards Industry Innovation Award for Vijoice® to treat #PIK3CA-related overgrowth spectrum (PROS) disorders!
Congratulations to @alliancetocure on winning the #RareImpactAwards Abbey S. Meyers Leadership Award! Thank you for your work to raise awareness, drive research, & provide support for those impacted by #CavernousMalformation.
Wishing a huge congratulations to NORD’s founder, Abbey S. Meyers, on the #RareImpactAwards Lifetime Achievement Award! Meyer’s founding of NORD 40 years ago will forever impact the #RareDisease community. 🏆