Craftfinders

A cosy corner to chat about arts & crafts, hobbies, share and discuss projects. Also exploring ways to use our creative abilities to campaign.

[Craftfinders @Craftfinders21]

Coming together nicely! @PathfindersNMA are #buildingthebunting and #craftingforachange raising awareness of #complexcareneeds and the importance of #personalisedcare in hospital settings @DuchenneUK @MDUK_News @DuchenneFSG @ActionDuchenne

[Craftfinders @Craftfinders21]

In support of #gloriaslaw and the right. to support in both care homes AND hospitals. #craftingforachange #caresupporters

[Pathfinders Neuromuscular Alliance @PathfindersNMA]

We are supporters of @JohnCampaign and #GloriasLaw which shares similar goals to our Complex Care in Hospital campaign. Along with @ILG_Community we want to make sure those of us with PAs are part of any review of regulation or legislation change.

[Craftfinders @Craftfinders21]

@ILG_Community @PathfindersNMA @MDUK_News @ActionDuchenne @DuchenneUK @SMA_UK_ @FoxNikkiFox

[Craftfinders @Craftfinders21]

Is this report widely known about? https://t.co/cboKvYLEOk
part 1

[Craftfinders @Craftfinders21]

PAs and carers are insured to work in whatever environment their employer is. There should be a way for personal care to continue in hospital alongside medical care. Mutual agreement about who does what (what each is trained to do).

[Craftfinders @Craftfinders21]

With the best intentions and will, nursing staff do not have the time or resources to provide the level of care people with complex care needs require. They are overstretched and do not have the training and experience of assisting these patients.

[Craftfinders @Craftfinders21]

The care in hospital is not being paid for twice. You cannot compare. A regular PA/caregiver is skilled in understanding an employer’s needs & anticipating/ preventing secondary issues. This applies to moving & handling, positioning, ventilation & communication + many more areas

[Craftfinders @Craftfinders21]

@PathfindersNMA @ILG_Community @Coalition4PC

[Craftfinders @Craftfinders21]

We know of 2 recent situations where carers/PAs have not been allowed to assist with care needs in hospital settings. Other hospitals welcome care staff with open arms recognising that they are skilled in supporting a particular individual. We need #consistencyofcare!

[Craftfinders @Craftfinders21]

We don’t want to hear of situations where people are put off from addressing health issues for fear they’ll be without their regular caregivers whilst receiving treatment. It’s possible for all to work together for the best outcome - let’s find the solution! @Pers_Care @ASCAPPG

[Pathfinders Neuromuscular Alliance @PathfindersNMA]

We look forward to co-hosting an information and experience-sharing event on DMD bone health with Dr Jarod Wong on Thursday, 29th June. Check out what Dr Wong has to say in the video below. Please remember to sign up using Eventbrite.

https://t.co/ZoHeicdLDI

[Craftfinders @Craftfinders21]

After a winter break to rest and restore, the #craftingforachange campaign will be resuming our call for consistency of care when people with complex care needs are in hospital.

[Craftfinders @Craftfinders21]

Our campaign calling for consistent #personalisedcare for people with #complexcareneeds continues. Here’s the bunting so far. Check out our Craftfinders's video! #TikTok https://t.co/56KvgRxcDi.

[Sarah Rose @evilgiraffe20]

2 weeks today @PathfindersNMA is having a stall at BriarPatch Arts & Crafts Fair in #Eastbourne. Some lovely items made @Craftfinders21 & other kind crafty folk. A raffle too - donations from @MaybugsShop @Knockhatch Tpodz, Headlines Hair Salon & Middleton Farm Butterfly Garden

[Craftfinders @Craftfinders21]

We will be displaying our bunting at a community fundraiser in December. There’s still time to send in your triangles to support #craftingforachange - DM for more details #buildingabunting to raise awareness of #personalisedcare in hospitals for people with #complexcareneeds

[Pathfinders Neuromuscular Alliance @PathfindersNMA]

HOUSE!!!!!

Who's coming to our Prize Bingo Social on Wednesday evening?

There's still time to sign up: https://t.co/YUWKP4T50H

📆 Wed 26th Oct
⏰ 18:00 - 20:00
🗺 Online
💰 FREE

[Gemma Crabtree @pollyrocket22]

We only need 9 more people to sign up to our amazing three events in November to reach our target of 100 people at each event, which are: #personalisedcare, #peersupport and #coproduction in health and care services. Register to join us here: https://t.co/8VzvlKcW99 @Pers_Care