Top Tweets for #complexcareneeds
Individually rare, collectively common
#RareDiseases
#ComplexCareNeeds #GetRareAware
#RareDiseaseDay2024 #Feb29th
Rare disease day is the 29th Feb this year. Leap year! Rare! Jack is one of a kind, only known case Worldwide with both Down syndrome & Cinca like syndrome....research is vital.
This pic was taken 11 years ago & Jack hasnβt changed much! Still a cutie. π₯° β€οΈ#RareDiseaseDay π€π€
π’RESEARCH ON FATHERS- Curious about #Canadian #Fathersβ experiences of #caring for a #child with #Complexcareneeds? See Figure1 for a summary!
https://t.co/csoOkyEuwm
#Photovoice #Ecomaps #Ethnography
Most individually rare collectively common #RareDiseases have no cure and often result in #ComplexCareNeeds that require care coordination. Lots of this is #BackAtTheRanchStuff
Our 22q care pathway is a result of close collaboration with clinicians, researchers and advocates.
Early start for a busy day but when our health service gets it right they can get it SO right
Care Coordinator is a vital support for us in the #22q11 community,spearheaded by the visionary Anne Lawlor @22Q11_Ireland @CHI_Ireland
@CcoHse @BernardGloster @HSELive @AnneRabbitte
What a great idea for supporting the discharge of complex children. Hello bridge the gap between hospital and home. #discharge #complexcareneeds #supportingfamilies
Yesterday we were proud to launch our new Better at Home Training Suite, thanks to @WellChild. The suite will help deliver training so that children with complex medical needs can be safely discharged to live at home with their families. Read more: https://t.co/pND0Geoh3d
@McNiffecent @CHIatCrumlin @OCO_ireland @_IHREC Well done Aisling and Jack, hope the birthday celebrations are thoroughly enjoyed!
Kudos to @CHIatCrumlin that was a long haul!
So many reasons to focus on adult care services for people like Jack with #ComplexCareNeeds
#Transition
@jennyri75684722 @PallaviciniSam @NHSEngland @WellChild Sorry Jenny. Is there a Learning disability nurse / vulnerabilities team, that can support your son/you?
#reasonableadjustments #complexcareneeds
A group of people supported here at Meadow View recently went out on a visit to Xscape in Castleford to take part in some tobogganing. We all had a fantastic time and hope to visit again soon. #doncaster #complexcareneeds #residentialcare #adultsocialcare
We will continue to strive to provide vulnerable people with the treatment they need.
We also live in hope for the futureβ¦
#ConflictMedicine
#ComplexCareNeeds
#Erbil
We are #buildingabunting Fancy joining us in #craftingforachange & raising awareness of the role of our PAs & caregivers in hosp settings. PA/caregiver assistance for people with #complexcareneeds = better recovery, less time in hospital, less rehab & aftercare, reduced anxiety.
@beeshyknight @WeLDnurses @WeStudentNurse In absolute agreement with this. There's a shocking lack of learning disability knowledge in our H&SC services and an even more shocking lack of their causes. Especially problematic in so-called 'mild' category.
#ThinkGenetics
#InvisibleDisabilities
#ComplexCareNeeds
This week our Founder @EnriqueSteiger is on a solo mission to #Afghanistan working with local surgeons assessing and operating at a children's burn centre in Kabul #ReconstructiveSurgery #Afghanistan #ComplexCareNeeds
We are building a bunting! In our campaign to highlight the need for our PAs/carers to be allowed to assist us in hospital, we are creating something visual alongside engaging with decision makers. If you have #complexcareneeds or support some who does, get #craftingforachange
It's actually happened! A momentous day today for @22Q11_Ireland 15/11/21
After many years of blood, sweat and tears there are now tears of joy π
#StillPinchingMyself
#WatchThisSpace
#ModelOfCare for #ComplexCareNeeds
π
The appointment of @CHIatCrumlin complex care coordinator post due to #PPI leadership by @22Q11_Ireland Anne Lawlor @FCrotty John Ryan @Azpiral encourages @RareDiseasesIE @HRCIreland orgs #PPI w researchers, clinicians & policy makers work! Thx @IrishResearch @BernardOReganMO
@Claire_00_Bear @CHIatCrumlin @stjamesdublin Thanks so much Claire, really hope that what we are doing paves the way for a different way of doing things in #Partnership and serves as a model of care for all #ComplexCareNeeds conditions. #ArisingTideFloatsAllBoats
Final webinar of Module 4 #COMPLEXCARENEEDS Module by @ucdsnmhs as part of the SNA Training. Delighted to see many positive comments eg:"Thank you Suja and team and of course the UCD team for another very worthwhile and informative module, helping us to perform our jobs better"
Are you a healthcare practitioner who provide care to #children with #complexcareneeds #rarediseases in the home care settings during #COVID19 #Irealand?
we would like to hear about your experience, if you are interested please contact me via DM. @HelenMcAneney @powerstace
The role of #Nurses in transitions from #Child to #Adult #Healthcare Prof Michael Brown sharing the research into #Transitions for children with #ComplexCareNeeds recognising the emotional complexities from child & parent perspective
Digital technologies offer a promising solution to improve #peoplecentred communication in the transition from hospital to home of older adults with #ComplexCareNeeds
@Dr_SteeleGray @terence_c_tang @alana_armas @mlanelson #IntegratedCare #PeopleCentredCare
https://t.co/NdmyQa8LLd
Addressing #ComplexCareNeeds requires evidence-based macro- and micro-level solutions for at risk individuals and communities. @PennNCTH @MaryDNaylor @BriannaMorganNP @AshleyZRitter https://t.co/hH3Jxuu7tl
@raj_psyc @annie_tallis @nuwandiss #Teamwork, always.
So honoured and humbled to know & work with so many who work tirelessly for and with, those with #RehabPsych #AOT #ComplexCareNeeds & indeed ALL MH care staff.
#WorkSatisfaction #FulfillingWork at its highest.
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