Cholangiocarcinoma Foundation

Our mission is to find a cure and improve the quality of life for individuals affected by cholangiocarcinoma. #CCAhope

[Cholangiocarcinoma Foundation @curecc]

@weirdnotwild We are deeply sorry for your loss. Thank you so much for your donation and for supporting our mission. It takes all of us to spread awareness of this rare cancer and were so grateful for your help. 💚

[OncoDaily @oncodaily]

Cholangiocarcinoma Foundation -  Starting off the 8th Annual Summit by Honoring Rachna Shroff

@curecc

https://t.co/9pdkzbPu9f

[Ronan Hsieh, MD, MS @ronanhsieh]

Thrilled to speak on novel systemic therapy for biliary tract cancer at the 8th Cholangiocarcinoma Summit! Great to see so many academic colleagues sharing their research and new data. The conference was almost like a friends’ gathering!

Studies I covered:

🔹 ReFOCUS: lirafrugratinib (newly approved)

🔹 FIRST-08: tinengotinib

🔹 eNRGy: zenocutuzumab (newly approved)

🔹 LAT1: nanvuranlat (trial opened in Seattle)

🔹 HARMONi-GI: exciting data coming at #ESMO26 this month

🔹 GEMINI and ARTEMIDE-01/02

Also I couldn’t help sharing our HAI pump work at @SWOG (Adel, Gautam, me, and @FlavioRochaMD).

Wonderful to meet new friends and reunite with old ones: @CentralParkWMD @JavleMilind @DrSukeshiArora @HardingJJMD @docsudhakodali1 @staclinds @curecc

#CCA #Cholangiocarcinoma #btc

[Randi Naughton @RandiNaughton]

Last wks Hooves for Hope event to benefit @curecc was a success! Donations, raffles & matching corp gifts raised $25K. My daughter Allex who is fighting this disease & our whole fam thank you! 💚
#cholangiocarcinoma #Curecc
Donation link still active
⬇️
https://t.co/Q6lDGwUgTk

[Cholangiocarcinoma Foundation @curecc]

Join our New England CARE Team for a virtual event! This interactive gathering will bring together local experts to discuss hair and skin health and the ways cancer and its treatments can impact both. We look forward to learning from:

Dr. Michael Stephens, Dermatologist, specializing in oncodermatology
Sharon Cohesy Certified Trichologist, licensed cosmetologist and educator

Details: 
Monday, October 26, 2026
6:00 p.m. ET
To register, go to https://t.co/xDbbJcQLEh

[Cholangiocarcinoma Foundation @curecc]

At CCF, we know that every person who has shaped our community is so, so much more than their cholangiocarcinoma diagnosis. Help us remember them by creating a memorial post for your loved one on our In Memoriam page at https://t.co/tXEH8aWwfW. 💚

And be sure to access Legacy Caregiver resources, support, and opportunities to be involved at https://t.co/6lHkPjKHrJ

[Cholangiocarcinoma Foundation @curecc]

You are not alone. 💚

CholangioConnect is CCF's mentor program, comprised of incredible patients and caregivers who serve as mentors experienced in cholangiocarcinoma. They provide crucial support from someone who truly understands what you're going through.

To request a mentor today, head to https://t.co/41peblRMbZ.

[Cholangiocarcinoma Foundation @curecc]

Our CEO, @staclinds, is attending the 8th Annual CCA Summit. Connecting with the cholangiocarcinoma community helps advance research, share knowledge, and improve outcomes for those affected by bile duct cancer. #CCASummit2026

[Flavio G Rocha, MD, FACS, FSSO @FlavioRochaMD]

@drymtn presenting the latest developments
in role and sequencing of locoregional therapy
for #cholangiocarcinoma including #HAI ⛽️at
#CCASummit2026 #CCA2026

@OHSUKnight @curecc

[Cholangiocarcinoma Foundation @curecc]

This morning at the #CCASummit2026, our Chief Medical Officer, Juan Valle, is sharing the latest updates from the Cholangiocarcinoma Foundation.

[Cholangiocarcinoma Foundation @curecc]

Starting off the 8th Annual Cholangiocarcinoma Summit by honoring Rachna. 💗 So many came together in pink to remember her and show their love and support. Her impact on this community will never be forgotten. #CCASummit2026

[Flavio G Rocha, MD, FACS, FSSO @FlavioRochaMD]

Opening 2026 Cholangiocarcinoma Summit
with a tribute to @rachnatshroff, one of our
founding Steering Committee members, with
a dual passion for fighting cancer & 🇮🇳 dancing

#CCASummit2026 #CCA2026 @curecc

[Cholangiocarcinoma Foundation @curecc]

On Sunday, October 11, 41 runners as part of Team CCF ran the Chicago Marathon to honor all those affected by cholangiocarcinoma and raise funds for life-saving research.

We had runners from Australia and fifteen US states, and there were so many moments of connection and community—and, in the process, raised nearly $210,000! From fun at the tent to incredible finishes, the day was an incredible reminder of what we can accomplish as a team.

We especially want to thank:
Greg Metzler, a CCA survivor, who was our incredible photographer.
Sandra Zussman, a CCA survivor, who provided handmade gifts to others on a cholangiocarcinoma journey.
Katie Glenn and Cindy Mrotek, who lead our amazing cheer tent with awesome energy all day!

And we want you to join us next year! There is a fundraising minimum of $2,500, and each participant will receive 18 weeks of training, fundraising help and resources, a race day shirt, and an invitation to the team lunch for the runner and a friend.

If you're interested in joining the 2027 Chicago Marathon for Team CCF, you can complete this form: https://t.co/DgqZKyLTZx

[Cholangiocarcinoma Foundation @curecc]

Please join our next Educational Webinar: What’s on the Horizon for Second-Line Cholangiocarcinoma Treatment.

This webinar will be led by Amanda Nottke, PhD, the Director of Research at CCF. After starting her career in academic research, she worked as a biopharma consultant before focusing on real-world data research and clinical trial matching prior to joining CCF.

It is an exciting time in cholangiocarcinoma research and pharmaceutical development. Amanda will walk us through the general principles of cancer drug design and describe the types of emerging therapies for second line or later cholangiocarcinoma treatment. She will also discuss how biomarker testing relates to treatment options in this setting, including clinical trial eligibility, with a special focus on options for cancers that do not have biomarkers with FDA-approved treatment options. Simply put: what if I do not have an FGFR2, IDH1, or HER2 mutation, or if I have no biomarkers at all?

🗓️ October 22, 2026
⏱️ 4:00pm ET
🔗 https://t.co/55BtsSk9OH

=

[Cholangiocarcinoma Foundation @curecc]

It is with heavy hearts that we share that Dr. Rachna Shroff has passed away. A longtime partner of CCF, she has made tangible differences for patients and their families throughout her career. From being a valued member of our Science and Medical Advisory Board to helping build one of the nation's largest clinical and research programs in biliary tract cancer as a faculty member at MD Anderson Cancer Center, and as an empathetic and expert clinician, she made a difference in every facet.

Beyond her professional accomplishments, she brought fun everywhere she went. Whether she was quoting Beyoncé in a talk about clinical trials or getting us to throw our hands during her amazing Bollywood lesson, Rachna made us live in the moment and laugh, even in the hardest of times. Our hearts are with her family and friends in the days ahead and beyond.

[Cholangiocarcinoma Foundation @curecc]

In partnership with PER, we're bringing experts together in Denver this November to explore the evolving treatment landscape for hepatobiliary cancers. Join us for a case-based discussion on emerging immunotherapy data, first-line treatment strategies, and multidisciplinary approaches across HCC and biliary tract cancers. Register Now:
https://t.co/sDOTlUDfSx.

[Lisa Craine @lisamariecraine]

So honored to serve as a GI Cancer Research Advocate for SWOG! 💚
What an great fall meeting! I’m grateful to be surrounded by brilliant minds who share a passion for advancing cancer research, clinical trials, and better treatments. @SWOG @SupportingSWOG @CrainesCrew @curecc

[Cholangiocarcinoma Foundation @curecc]

The Cholangiocarinoma Foundation would like to thank the 41 members of the Bank of American Chicago Marathon team who are running with Team CCF today. 

Please join us in wishing good luck to the 41 members of the Bank of American Chicago Marathon team who are running with Team CCF today. 
The team has raised $201,284!

Our Team:
Jesse Anderson
Annalise Bordenet
Alicia Brehe
Patricia Cervantes-Snider
Ashley Childers
Dan Dougherty
Troy Evetts
Kristine Fracassa
Anna Gifford
Tyler Grady
Kris High
Kat Holtz
Jerry Huang
Christian Hunt
Rick Loera
Chris Loyd
Justin Masters
Luke Merriam
Hannah Mummey
Meghan Murphy
Zhongwen Pan
Sarah Pilgrim
Leena Plunkett
Mia Plunkett
Shawn Qin
Steph Schnipke
Nick Springmann
Elena Taylor
Will Velasco
Alyssa Wallace
Ben Wallinga
Lucas Wallinga
Tianyue Wang
Brock Werner
Mike Willette
Chen Wu
Fanson Ye
Morgan Steele
Mayank Bhandari
Patricia Clarke
Brigid Santino

To contribute, head to https://t.co/ZNOwuhLgrW

[Flavio G Rocha, MD, FACS, FSSO @FlavioRochaMD]

#cholangiocarcinoma @OHSUKnight @curecc

[Craine’s Cholangiocarcinoma Crew @CrainesCrew]

Thank you @Patient_Story for sharing my journey with cholangiocarcinoma @curecc @CrainesCrew @lisamariecraine @ClevelandClinic @UTMDAnderson

https://t.co/z78IVEbZ1T