Cholangiocarcinoma Foundation

Our mission is to find a cure and improve the quality of life for individuals affected by cholangiocarcinoma. #CCAhope

[Cholangiocarcinoma Foundation @curecc]

The Cholangiocarcinoma Foundation honors all veterans for their service and dedication. 🇺🇸

We recognize that military service may have exposed some veterans to risk factors that could contribute to a diagnosis of #cholangiocarcinoma.

CCF has gathered information and resources to support veterans and their families. Learn more about our Veterans Project here: https://t.co/4BOU3QAbVQ

#VeteransDay #CCAhope

[Cholangiocarcinoma Foundation @curecc]

Registration for the 14th Annual Cholangiocarcinoma Foundation Conference is now open. 🎉

Join researchers, clinicians, patients, caregivers, and advocates for a weekend of connection, presentations on the latest advancements in cholangiocarcinoma research, and a community united by hope. The event is in-person only, and everyone is invited to attend the scientific sessions. There will be 1-2 patient- and caregiver-focused breakout sessions on March 23-24. 

Register today at: https://t.co/Vr5gQMOGQh.

[Toni Pham @phamtoni]

The @curecc Houston CARE team hosted a special patient & caregiver gathering. My cup overflows with every encounter and reinforces #StrengthInCommunity #HopeInResearch

[OncoDaily @oncodaily]

CCF - Turning a Family Story Into a Message of Hope for Cholangiocarcinoma

@curecc

https://t.co/KQtJwYEz1a

[Cholangiocarcinoma Foundation @curecc]

Thank you to Susan Camberis for organizing Smoke Out Cholangiocarcinoma in memory of her beloved husband, James “Jim” Camberis.

Jim was a devoted husband, father, family member, and friend who loved good food and BBQ. In honor of what would have been his 58th birthday, Susan brought family, friends, and community members together this October to celebrate Jim’s life and support the cholangiocarcinoma community.

Thanks to Susan’s heartfelt efforts and the generosity of everyone who participated, $14,475 was raised for the Cholangiocarcinoma Foundation!

Susan, thank you for turning your love for Jim into meaningful support for others affected by this disease. Every dollar helps advance research, strengthen patient and caregiver support, and raise awareness of cholangiocarcinoma.

We are honored to be part of Jim’s legacy and grateful to everyone who helped make this event possible. 💚

[Cholangiocarcinoma Foundation @curecc]

Happy Diwali to all who celebrate. 🕯️May this Festival of Lights bring hope, happiness, peace, and brighter days ahead to you and your loved ones. All of us at the CCF wish you a beautiful celebration filled with light and connection.

[Flavio G Rocha, MD, FACS, FSSO @FlavioRochaMD]

Looking forward to connecting with oncology
colleagues from BDMS in Bangkok 🇹🇭 at their
Annual Meeting and sharing our experience w/
#cholangiocarcinoma @OHSUKnight @curecc

[Cholangiocarcinoma Foundation @curecc]

"Someone loves this patient more than anything. They are someone’s parent, spouse, or child. They are someone’s everything."

For @TrudyWuMD, cholangiocarcinoma is not just the disease she treats; it is the disease that took her father 11 years ago, long before she became a radiation oncologist.

In an essay published in Practical Radiation Oncology, Dr. Wu reflects on how the grief of losing her father continues to shape the physician she is today. When she sees a family navigating the uncertainty and heartbreak of a cholangiocarcinoma diagnosis, she recognizes something familiar: the desperation of loving someone and wanting more time with them.

Her words remind us that sometimes our deepest experiences of loss can help us show up for others with greater compassion, understanding, and humanity.

Thank you, Dr. Wu, for sharing your story and for the care, compassion, and dedication you bring to patients and families affected by cholangiocarcinoma. Thank you for the work you do to make a difference in our community. 💚

Read the article here: https://t.co/zMqWE9Ugnd.

[Cholangiocarcinoma Foundation @curecc]

Please join us for an Educational Webinar: Insurance and work: Know your rights after diagnosis with Sofia Fernandez, Esq. from Triage Cancer.

Cancer can impact your health insurance and your job at the same time. This webinar will cover the legal rights that protect both, including how to navigate insurance changes, what to know about taking time off or leaving work, and how to ask for workplace accommodations.

Sofia Fernandez is the Staff Attorney at Triage Cancer, her work includes developing educational materials, presenting programs on health-related legal issues, and speaking with individuals about navigating complex systems related to health insurance, employment, and disability insurance.

Register today at https://t.co/WfM840fYyg.

[Cholangiocarcinoma Foundation @curecc]

@TheCancerLetter Go Keaton, go!

[The Cancer Letter @TheCancerLetter]

“I was trying to get a cure. I’m not trying for a couple extra years. I want to beat this and I want to see my son grow up,” Herzer said. “[A transplant] became my north star."

#CCAmonth @curecc
https://t.co/OGeRUjAZ7h

[Cholangiocarcinoma Foundation @curecc]

📝 Call for Poster Abstracts 

The 2027 Annual Conference will include a poster session, providing an opportunity to present ongoing research projects and innovative work in cholangiocarcinoma. Posters allow authors and participants to connect and build upon the shared knowledge and collaboration. 

We invite you to submit an abstract for the upcoming Conference. 

Abstract Categories:
Advocacy
Basic Science
Translational
Clinical Research
Real World Data
Trials in Progress 

Benefits for Poster Presenters include: 
Accepted abstracts will be posted on the CCF website and published in The Oncologist journal. 
Connect and discuss your work with researchers, clinicians, policymakers, industry representatives, and patients from around the world who are invested in cholangiocarcinoma research.

Visit https://t.co/SQRaCERx7x to submit an abstract by January 6, 2027.

Traveling internationally and need to know if your abstract has been accepted before the January 6 deadline to make travel arrangements? Please reach out to [email protected].

[Cholangiocarcinoma Foundation @curecc]

On this season's finale of Food Network’s Halloween Baking Championship, baker Kyle Caulkins dedicated his final cake to the people who mean the most to him: his family.

At the heart of his tribute was his mom, who was diagnosed with late-stage bile duct cancer when Kyle was in high school. She underwent a liver transplant and gallbladder removal, and Kyle shared the encouraging news that she has been cancer-free for more than two years.

We appreciate Kyle's vulnerability and for helping bring awareness to cholangiocarcinoma and reminding others that behind every diagnosis is a family with a story of its own.

To Kyle and his mom, thank you for sharing your journey and helping raise awareness of bile duct cancer. And to everyone affected by cholangiocarcinoma, please know that you are not alone. The Cholangiocarcinoma Foundation is here to connect patients, caregivers, and families with support, resources, and a community that understands. 💚

Every story shared helps raise awareness of this rare cancer and strengthens the community working toward a future with better treatments and hope.

Learn more at https://t.co/EkuuLniuHR.

[The Cancer Letter @TheCancerLetter]

Facing stage 4 cholangiocarcinoma, Keaton Herzer moved mountains to take off-label therapy, get a transplant
Two years later, he has no evidence of disease
#CCAmonth @curecc
https://t.co/OGeRUjAZ7h

[Cholangiocarcinoma Foundation @curecc]

Thank you, @NBCChicagoMed, for bringing attention to cholangiocarcinoma (bile duct cancer), a rare cancer that deserves greater awareness. 💚

While the episode took an unexpected turn, it sparked an important conversation about the complexities of a cholangiocarcinoma diagnosis and the uncertainty patients may face upon diagnosis. 

Because cholangiocarcinoma is rare and complex, connecting with a specialist experienced in cholangiocarcinoma can help patients better understand their diagnosis, explore treatment options, and make informed decisions about their care.

If you or someone you love is navigating a cholangiocarcinoma diagnosis, please know you don’t have to do it alone. The Cholangiocarcinoma Foundation is here to provide education, resources, and connections to a community that understands.

Thank you to Chicago Med for helping bring rare cancers into the conversation. There is still hope, and there is a community standing beside you.

Learn more at https://t.co/EkuuLnj2xp.

[Cholangiocarcinoma Foundation @curecc]

Virtual Support Groups for November 2026

The Cholangiocarcinoma Foundation offers support groups for people affected by the disease to share personal experiences and learn from others. Participants must register to attend the virtual sessions that may include special guest moderators. Thank you to AstraZeneca for making the Twistshop Art Therapy available to our community.

Register today at https://t.co/Xrrr41qfbu

Bereaved Support Group | November 2
Patient Support Group | November 5
Spanish Patient & Caregiver Support Group | November 11
Twistshop Art Therapy for Caregivers | November 11
Patient Support Group | November 16
Bereaved Caregiver Support Group | November 18
Twistshop Art Therapy for Patients & Survivors | November 18
Caregiver Support Group | November 19,
Young Adult Patient Support Group | November 24

[Cholangiocarcinoma Foundation @curecc]

November is Caregiver Appreciation Month.

This month, and every month, we celebrate all the caregivers in our community at every stage of the journey. Caregivers are an integral and wonderful part of the cholangiocarcinoma community, and we continue to be in deep admiration of their empathy, knowledge, and passion. 💚

We'll be highlighting stories of incredible caregivers all month long, as well as resources CCF offers for support and connection, like our virtual support groups and CholangioConnect mentor program. To learn more, head to https://t.co/EkuuLniuHR or click on the link in our bio.

[Cholangiocarcinoma Foundation @curecc]

Happy Halloween! We hope your day is full of treats, cozy moments, and a little spooky magic! 👻🎃

[Cholangiocarcinoma Foundation @curecc]

Join The Cholangiocarcinoma Foundation at our Regional Symposium in Houston, TX, featuring Haley Ellis, MD, as our keynote speaker.

Dr. Ellis is a medical oncologist and translational researcher at Mass General Brigham Cancer Institute and Harvard Medical School. Her clinical and research focus is on biliary tract cancers, with particular interest in mechanisms of therapeutic response and resistance.

Details:
December 11, 2026
MD Anderson Cancer Center
Onstead Auditorium (3rd Floor)
6767 Bertner Ave, Houston, TX 77030

To register, head to https://t.co/JBReLfQa5n today. 💚

[Cholangiocarcinoma Foundation @curecc]

https://t.co/SEfN1g7UxC

@melinda_bachini was interviewed on the Ask the Patient Advocate Podcast, hosted by Dr. Elena Borrelli. They talked about taking charge of their healthcare and decisions, as well as the importance of clinical trials.

These conversations are an important part of transforming cancer care. We invite you to listen. @acast