Toni Pham

Attorney, real estate broker, passionate about patient advocacy and helping those affected by cholangiocarcinoma.

[Toni Pham @phamtoni]

@curecc 2nd Houston Symposium has wrapped and I loved every minute of it! It was an honor to discuss clinical trials with 2 very dedicated research nurses. Congrats to @docsudhakodali1 and @JavleMilind for organizing another great day of learning for our CCA community 💚

[Milind Javle @JavleMilind]

https://t.co/VzUHpBaEjU congratulations to @ Dr Sunyoung Lee and team for this important work on Her2 positive BTC
@curecc @AACR @CrainesCrew @CcaEns

[Cholangiocarcinoma Foundation @curecc]

Fellowship Presentations!

Haley Ellis shared an update on her research on resistance to mutant IDH1 inhibition in cholangiocarcinoma. #ccfac26

[Toni Pham @phamtoni]

Love, learn and repeat @curecc #AC26

[UT MD Anderson @UTMDAnderson]

Final results from the HERIZON-BTC-01 clinical trial show zanidatamab delivered clinically meaningful and durable responses for patients with HER2 positive biliary tract cancer.

Learn more about this new research: https://t.co/kXjT7shgBK @DrShubhamPant #EndCancer

[UT MD Anderson @UTMDAnderson]

A new study found that a specialized high-dose type of radiation delivery may significantly improve outcomes for patients with intrahepatic cholangiocarcinoma, when given with standard-of-care chemotherapy.

Learn more: https://t.co/9C5bR6hmTe @ebludmir @eugenekoay #EndCancer

[Cholangiocarcinoma Foundation @curecc]

🌟 Mark your calendars!
The 13th Annual Cholangiocarcinoma Foundation Conference is coming May 1–3, 2026 in Salt Lake City, Utah!

Join patients, caregivers, researchers, and clinicians to explore the latest advancements in cholangiocarcinoma and celebrate CCF’s 20th anniversary. 💚

Strength in Community: Every Patient Counts

📅 Don’t miss this special gathering—register now!
🔗 https://t.co/cglGT3ZeIW

[Cholangiocarcinoma Foundation @curecc]

🔬 Webinar Recording Now Available

Learn about a global study exploring inherited genetic risk factors for cholangiocarcinoma, based on research involving 2,366 individuals with CCA and 11,750 controls. The webinar also highlights how patients and families can help advance this important research.

🎤 Presented by Amerti G., PhD student at the Mayo Clinic Graduate School of Biomedical Sciences.

▶️ Watch the recording: https://t.co/NDwkIgjWGV.

[Toni Pham @phamtoni]

@lisamariecraine @CrainesCrew @curecc @melinda_bachini @cindymrotek1 Love these ladies, total rockstars!

[Cholangiocarcinoma Foundation @curecc]

An impactful day at the 2026 New York Regional Symposium with @nyulangone, bringing together research, care, and community—strengthened by patient perspectives that remind us why this work matters. 💚

We could not do this work without the incredible support of our partners. We are so grateful! Thank you, @AstraZeneca, @Incyte, @JazzPharma, @Merck, @NateraGenetics, @PartnerTx, and @Servier!

[Cholangiocarcinoma Foundation @curecc]

This season, we’re especially grateful for our CholangioConnect mentors—patients and caregivers who generously share their time, insight, and lived experience with others facing cholangiocarcinoma. Their willingness to support others is a true gift to our community and a reminder that no one has to navigate this disease alone.

If you’re on this journey, consider connecting with a mentor who truly understands.

Request a mentor today at https://t.co/L1wrtyPvEv.

[Cholangiocarcinoma Foundation @curecc]

📅 Save the Date!

CARE Events are coming to cities across the U.S. this February:

Seattle – February 7

Houston – February 21

Nashville – February 21

New England – February 21

Chicago – February 22

Washington D.C./Baltimore – February 28

Registration info will be shared in January. Don’t miss it! ✨ Learn more at https://t.co/A34haymegQ.

[Stacie Lindsey @staclinds]

Patients and caregivers navigating cholangiocarcinoma don’t have to go through it alone. Through CholangioConnect, you can be matched with a trained mentor who’s walked a similar journey. Share, get guidance, and find support.

Request a mentor today at https://t.co/H7PFRstsIL.

[Sudha Kodali @docsudhakodali1]

A very Successful 2nd #HoustonCholangiocarcinomaSymposium with the @CCF, spotlighting #patientadvocacy, #research #Collaboration! Grateful to all the speakers, moderators and the patients!
@staclinds @JavleMilind @MaenAbdelrahim @melinda_bachini @RikiGravesMHA @odisio

[Toni Pham @phamtoni]

@curecc Houston CARE team hosted a day of #strengthincommunity #hopeinresearch #CCAhope
Extra special thanks to @docsudhakodali1 @JavleMilind and the HMH team that showed up for our ptx and caregivers...not just today, but everyday! 💚💚
#mycommunity #mypurpose #loveeverycounter

[Pope Leo XIV @Pontifex]

Life shines brightly not because we are rich, beautiful or powerful. Instead, it shines when we discover within ourselves the truth that we are called by God, have a vocation, have a mission, that our lives serve something greater than ourselves.

[EWTN Vatican @EWTNVatican]

Pope Leo XIV proclaims Saint John Henry Newman the 38th Doctor of the Church during the Jubilee for the World of Education and on All Saints’ Day at the Vatican.

[Cholangiocarcinoma Foundation @curecc]

✨ CARE Events are happening across the country! ✨
Connect, advocate, and learn with your local CARE Team — supporting cholangiocarcinoma patients, caregivers, and families through Advocacy, Research, and Education.

📍 New England Virtual Get-Together – “Nutrition Doesn’t Have to Be Scary”
🗓️ Oct. 28 | 💻 Virtual

📍 Houston Memorial Park Meet Up
🗓️ Nov. 8 | 🤝 In-person connection & community

📍 Washington, DC/Baltimore Inaugural CARE Event
🗓️ Nov. 15 | 💚 In-person connection & community

Learn more and register at https://t.co/bRE8I6w9Ws.

[Cholangiocarcinoma Foundation @curecc]

🔬 Routine prenatal blood tests may reveal more than you expect. For Sara Teichholtz, a test meant to check her baby’s health led to an unexpected cholangiocarcinoma diagnosis. Thanks to early detection through the test, she received timely treatment and is now NED. 

This story highlights the potential of innovative testing to catch cholangiocarcinoma earlier, giving hope that more people in our community could benefit from timely detection and care.

This story underscores one powerful message: innovative research and early detection strategies can make a difference. We invite you to read more and share so that others know why this kind of progress matters.

https://t.co/XiFIMXWkfR

[Cholangiocarcinoma Foundation @curecc]

A recent publication, including Drs. Caitlin Conboy, Jennifer Tomlinson, and Dong Gi Mun, was published in Hepatology. Their participation was partially funded by CCF Research Fellowships: The Andrea Lynn Scott Memorial Research Fellowship, the Quack Out Cholangio 5k Research Fellowship Grant, which honors Bill Hayes and Al Lemieux, and the Patient Champion Research Fellowship.

Key findings include:
Identification of subtypes that are not linked to where the cancer began in the bile ducts, but do correlate with how long patients lived after surgery and how they responded to treatment.

Identification of a new potential drug target called TNK1, which was highly active in the metabolic subtype. In laboratory models, blocking TNK1 with an experimental drug (TP-5801) dramatically slowed tumor growth in that subtype but not in others—showing the promise of more precise, personalized treatment.

Finding that tumors in the immunomodulatory subtype responded best to standard chemotherapy (gemcitabine and cisplatin). This contributes valuable knowledge to our understanding of the disease.

Learn more at: https://t.co/aUnasg3lI0.