Cure IBM—Inclusion Body Myositis

Cure IBM is dedicated to inclusion body myositis awareness, education, and research.

[Cure IBM—Inclusion Body Myositis @CureIBM]

Abcuro announces clinical trial results for ulviprubart in inclusion body myositis.

https://t.co/milLUqR4Qy

[Cure IBM—Inclusion Body Myositis @CureIBM]

@McAlan61 Study sites are in the US, Canada, Australia, and Europe. Two sites are in the UK, at University College London and Salford Royal Hospital. However, the press release says that the trial is fully enrolled already. Further info is available at https://t.co/IhmIQwOz8A.

[Cure IBM—Inclusion Body Myositis @CureIBM]

Enrollment for the Abcuro clinical trial of Ulviprubart (ABC008) for inclusion body myositis (IBM) is now complete. Abcuro expects to be able to release initial results of the trial during the first half of 2026.

https://t.co/v1VmlepnAE

[Cure IBM—Inclusion Body Myositis @CureIBM]

Peter Frampton, who will be inducted into the Rock and Roll Hall of Fame in October, provides an update on his life with inclusion body myositis (IBM).

https://t.co/xSFnwYL28A

[Cure IBM—Inclusion Body Myositis @CureIBM]

The Myositis Association is offering a research grant of up to $80,000 to study inclusion body myositis. Letters of intent are due tomorrow, May 24.

[The Myositis Association @TheMyositisAssc]

Since 2002, TMA has provided nearly $8 million in competitive research grants for myositis projects around the world. Letters of intent are due May 24 and applications, if invited, will be due July 15.

https://t.co/Cv1Zuf2CUd

[Cure IBM—Inclusion Body Myositis @CureIBM]

When you have inclusion body myositis (IBM), you gradually become an expert about the disease and about living with a disability. Sharing your knowledge can be rewarding.

https://t.co/B0cfQINmPE

[Cure IBM—Inclusion Body Myositis @CureIBM]

Rare disease clinical research requires input from patients.

https://t.co/Ze21yDTFjU

[Cure IBM—Inclusion Body Myositis @CureIBM]

Apple is planning a software update that will allow people with advanced inclusion body myositis (IBM) to control their iPhone or iPad with their eyes. #ALS

https://t.co/9WqW3A4b4w

[Cure IBM—Inclusion Body Myositis @CureIBM]

Self-driving wheelchairs? Why not? They can increase safety and mobility for people who use power wheelchairs. The linked article includes an excellent video.
#wheelchair #disability #accessibility #inclusionbodymyositis

https://t.co/9948NeFNc8

[Cure IBM—Inclusion Body Myositis @CureIBM]

The Connecticut House of Representatives passed a bill to improve the wheelchair repair situation in CT. Bills like this are needed in every state. Talk with your state representative and start the process! #wheelchair #disability #accessibility

https://t.co/AlRTZoqjdZ

[Cure IBM—Inclusion Body Myositis @CureIBM]

The inclusion body myositis community is enthusiastic and hopeful about Abcuro’s current clinical trial of Ulviprubart (ABC008).

[Abcuro, Inc. @AbcuroInc]

We are taking May, #MyositisAwarenessMonth, to recognize the estimated 54,000 people affected by #InclusionBodyMyositis, a chronic, progressive muscle disease with no approved therapies.

#IBM @TheMyositisAssc

[Cure IBM—Inclusion Body Myositis @CureIBM]

When you need a caregiver, what do you do if something happens to your caregiver?

#caregiver #carer #inhomecare #inclusionbodymyositis

https://t.co/yCWTaXXa3N

[Cure IBM—Inclusion Body Myositis @CureIBM]

Many people with inclusion body Myositis eventually need to use wheelchairs. Modern power wheelchairs are amazing technological aids, but, when they break, repairs are difficult.

https://t.co/bLSjSqkG31

[Cure IBM—Inclusion Body Myositis @CureIBM]

The COVAD studies are large, international studies that have provided valuable information about autoimmune diseases. The COVAD-3 survey is now open and seeking volunteers. If you have inclusion body Myositis, please participate.

https://t.co/kiMyMt4F8m

[Cure IBM—Inclusion Body Myositis @CureIBM]

Future help for people with inclusion body myositis? Robots may be able to help provide caregiving for people with IBM and other physically disabling conditions. #als #mnd

https://t.co/ynPUkNFddP

[Cure IBM—Inclusion Body Myositis @CureIBM]

Man with inclusion body Myositis, pushed in a wheelchair, completes London Marathon.

https://t.co/QxnxnCTXCq

[Cure IBM—Inclusion Body Myositis @CureIBM]

The new ENMC criteria for the diagnosis of inclusion body myositis reflect increasing knowledge, recognize the diversity of the disease in different patients, utilize new and improving technologies, and simplify the diagnosis.

https://t.co/bp7YC5wbkp

[Elie Naddaf @ElieNaddaf3]

1/n) How to search for clinical trials‼️a🧵

Whether you’re a patient or a doctor 🧑‍⚕️, knowing how to access this information is crucial ⚠️

I demonstrate this to all my patients!

👉Special tip for #medicalstudents at the end 😊

#MedEd #Neurotwitter @MedEdPORTAL #ClinicalTrials

[Cure IBM—Inclusion Body Myositis @CureIBM]

@1020berlin The IndeeLift is available with a seat that raises to a height of 30 inches.

[Cure IBM—Inclusion Body Myositis @CureIBM]

The IndeeLift is a device that helps many people with inclusion body Myositis (IBM). Its primary purpose is to help you get up off of the floor after a fall, but it has many other uses.

https://t.co/yozblIRZve