CureHHT_ScottOlitskyMD

[CureHHT_ScottOlitskyMD @CurehhtS]

https://t.co/AgrNQ27tKe

[The Pulmonary Hypertension Association @PHAssociation]

About 13% of people with #HHT have at least mildly elevated pulmonary artery pressures. Help us advance our knowledge of HHT-associated #PAH by completing our survey. Your input will help us learn more about the #PH and #HHT community. https://t.co/UGEtw9vrew

[Cure HHT @curehht]

It's #HHT Awareness Month! We’re asking this community to raise your voices to support our work to make HHT more recognized!

We’re thrilled to share we’ve secured our LARGEST match ever! A generous group of donors will match the first $100K donated: https://t.co/VwZ0eT7Bcm

[Masaki Komiyama, M.D. @kanachan2020]

In HHT, we know three causative genes, i.e., ENG, ALK1 and SMAD4. They work in the BMP9/10 pathways. It is still not clearly understood how these pathological mutations work in BMP9 and 10 pathways for the manifestation in HHT.

[Cure HHT @curehht]

Equip yourself with the knowledge you need to advocate for yourself and your family!

Join us in Seattle for our National Patient & Physician Conference and hear about the hottest topics in HHT from the world's leading experts: https://t.co/zzYnBNMujh

[CureHHT_ScottOlitskyMD @CurehhtS]

@WashU_PedsRes @JasonGNewland @WUSTLPeds @WUPedsID Congratulations.

[Centessa Pharmaceuticals @centessa]

It's #PulmonaryHypertension Awareness Month. Centessa's advancing MGX292 as part of our mission to develop transformational medicines for patients with #PulmonaryArterialHypertension. Visit @PHAssociation to learn more about PH Awareness month: https://t.co/Y5RDVU8sif

[Centessa Pharmaceuticals @centessa]

Join Centessa and the Rare Disease community to help raise awareness of #RareDisease. Show your stripes in honor of #RareDiseaseDay and visit @RareDisease's website to get involved: https://t.co/ti5wpBzfcW

[CDC_NCBDDD @CDC_NCBDDD]

Anemia is a common complication among patients living with hereditary hemorrhagic telangiectasia (#HHT), a bleeding disorder causing abnormal blood vessels. Watch an archived webinar about diagnosing, screening, and managing HHT: https://t.co/yH9uXnt1yL #HHTAwarenessMonth

[ASH Clinical News @ASHClinicalNews]

Researchers have developed a new tool to assess quality of life (#QoL) among patients with #hereditary #hemorrhagic #telangiectasia, with the hope that it will aid in patient management and serve as a useful metric in clinical trials https://t.co/N4NiqD39Zb

[Jay Piccirillo, MD @PiccirilloJay]

We have created an online tool for the Nasal Outcome Score for Epistaxis in Hereditary Hemorrhagic Telangiectasia (NOSE HHT). It is available at the link below in the following languages: English, Spanish, French, Italian, and Dutch.

https://t.co/h6oXOWhjZf

[Frontiers in Cardiovascular Medicine @FrontCVMedicine]

New Research: Case report: Pulmonary arterial hypertension in ENG-related hereditary hemorrhagic telangiectasia: A young adult woman presented with exertional dyspnea and she had had recurrent epistaxis for more than 10 years. On physical… https://t.co/VOY5HIqcPY #cardiovascular

[Annals of Clinical and Medical Case Reports @AnnalsMedical]

https://t.co/HLgAOge6A0
#A 16-Year-Old Girl with Hereditary Hemorrhagic Telangiectasia

[CureHHT_ScottOlitskyMD @CurehhtS]

@DrCindyCooper You can read more about HHT at https://t.co/K1MkT62s2s

[Adrian Viteri @viterch]

HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT)
AKA Rendu-Osler-Weber disease

👉 Described by Henry Gawen Sutton in 1864🧑‍⚕️
👉 1⃣ case per 5⃣0⃣0⃣0⃣ inhabitants
👉Autosomal dominant inheritance👨‍👩‍👧‍👦
👉 Epistaxis👃🩸
https://t.co/VtjpryT17x
#HHT
👇Thread 🧵🪡