DECODE project

NIHR funded Data-driven machinE-learning aided stratification and management of multiple long-term COnditions in adults with intellectual disabilitiEs @AIM_RSF

[RCSLT 💙 @RCSLT]

🎤We’re thrilled to announce our final keynote for #RCSLTConf2025: Prof Jois Stansfield

🌟Celebrating 80 Years of RCSLT: A Journey Through Our Profession’s History

Prof Jois Stansfield explores milestones from 1945 to today #RCSLTat80

Buy your tickets👉https://t.co/kPJA1bxz0V

[DECODE project @DECODEproject2]

💡Icon of the Week: Airway Diseases

On World COPD Day, we’re highlighting that people with a learning disability are more likely to experience airway diseases, including COPD. Early diagnosis and support matter.

🔗 https://t.co/13f91Q10uu

#WorldCOPDDay #COPD #IconOfTheWeek

[The Makaton Charity @MakatonCharity]

📢 Makaton Members! 🎄Join our next MakaChat LIVE! For Christmas & Festive Songs! 🎄
Get ready for a magical sing & sign evening where you can build skills & connect with our community 🎶
Register here: https://t.co/CCiMcFevsq
#WeTalkMakaton #UseItDontLoseIt #MakatonCommunity

[DECODE project @DECODEproject2]

Introducing DECODE’s Icon of the Week!💡

Did you know 9 in 10 people with a learning disability have 2+ long-term health conditions - compared with 3 in 10 in the general population?💬Let’s raise awareness!

🔗View here https://t.co/fuz9RV1TnS

#IconOfTheWeek #HealthInequalities

[DECODE project @DECODEproject2]

We’re now on LinkedIn!🎉

Follow us for updates on our work to make health research more inclusive for people with learning disabilities - including news, resources, and events from the team at @lborouniversity

👉https://t.co/pK2hyYmIMA
#DECODEProject #LearningDisabilities

[DECODE project @DECODEproject2]

Closing the day with words from Dr Satheesh Gangadharan 💬

“Most people see involving people with learning disabilities in research as a problem – but we have turned that around.”

A powerful way to end today’s event.

#InclusiveResearch #LearningDisability #PPI
@lborouniversity

[Loughborough University PR @LboroPR]

Loughborough’s DECODE project works with people with learning disabilities and their carers to understand what does & doesn’t work in healthcare – and involve them in designing solutions.
@BBCEMT visited campus to hear from those involved 👇
https://t.co/4ss9ZUKO3O (see 11:07)

[DECODE project @DECODEproject2]

That’s a wrap on our conference: “Meaningfully involving people with learning disabilities in research”💜

Huge thanks to our speakers, PPI members & everyone who joined us today.
Your insights and lived experiences are what make DECODE possible.🙏

#InclusiveResearch

[DECODE project @DECODEproject2]

Closing the day with words from Dr Satheesh Gangadharan 💬

“Most people see involving people with learning disabilities in research as a problem – but we have turned that around.”

A powerful way to end today’s event.

#InclusiveResearch #LearningDisability #PPI
@lborouniversity

[DECODE project @DECODEproject2]

Our final session is an open panel with today’s speakers🎤

The room is full of great questions & reflections - an inspiring way to wrap up the day and hear insights from the audience and speakers.

#InclusiveResearch #LearningDisability #PPI

@lborouniversity

[DECODE project @DECODEproject2]

Neil from @UniofNottingham on the ethics of inclusive research🧩

A great talk highlighting why it’s vital to involve people with learning disabilities at every stage of research - ensuring their voices and input are truly central.

#InclusiveResearch #Ethics #LearningDisability

[DECODE project @DECODEproject2]

A brilliant end to Amy, Sarah & Heidi’s talk 👏

They shared a practical PPI toolkit for involving people with learning disabilities in health research.

Such an important resource for making research more inclusive.

#PPI #InclusiveResearch #LearningDisability

[DECODE project @DECODEproject2]

Great to hear from PPI co-leads Amy & Sarah & PPI member Heidi📢

They spoke about the challenges & opportunities in PPI health research, highlighting the importance of breaking down information, using pictures & making research truly inclusive.

#PPI #InclusiveResearch

[DECODE project @DECODEproject2]

Brilliant to see @alidrewett presenting the 7 Design Rules✨They highlight good practice for research with people with learning disabilities.

Co-created with our PPI team, the rules are fully inclusive & designed to be easily understood.

#InclusiveResearch #AccessibleComms #PPI

[satheesh gangadharan @satminiuk]

7 principles of design. Alison Drewitt talking about Maria's story
#DECODE @LPTresearch

[DECODE project @DECODEproject2]

The wonderful @AnnieBannister sharing her story as part of DECODE’s Family Carers Group💜

As a mum of 2 sons with learning disabilities, she is a crucial part of the DECODE team - her lived experience is invaluable in shaping research.

Powerful to hear her perspective.

#PPI

[DECODE project @DECODEproject2]

Ana, the graphic designer behind our infographics🎨, shared how visual style can reflect specific illnesses and why it must be tailored to the people it’s designed for.

Her work revealed gaps in understanding & showed the importance of adapting processes.

#InclusiveDesign

[DECODE project @DECODEproject2]

Ellie on the power of infographics in health research📊
Too often they’re cluttered & hard to understand.

DECODE design infographics that carers & people with learning disabilities can use to better understand their health.

#AccessibleComms #InclusiveResearch #LD #DECODE

[DECODE project @DECODEproject2]

Brilliant to hear from Nikki Harrison - paramedic🚑 & Makaton trainer, she spoke on the power of using Makaton - a communication programme combining speech, signs & symbols.

Together, we developed a Makaton version of Maria’s Story to make it as inclusive as possible.

#Makaton

[DECODE project @DECODEproject2]

@AnnieBannister We are so looking forward to hearing your speech later on! 🎤

[DECODE project @DECODEproject2]

In conversation with Orla Borsey (@lborouniversity alumni), the graphic designer behind Maria’s Story✨

It’s amazing to hear how she worked with the team - including our PPI members to develop graphics that are simple, clear & consistent.

#InclusiveDesign #CoProduction