DFPCUK

Desmoid Fibromatosis Patients & Carers is here to empower & support patients to live beyond their diagnosis.

[Pokemon Stock Alerts UK @PokemonStockUK]

🌟 Giveaway Alert🌟

I know some of you are struggling to find today’s drop, so let’s give one of the items away.

- RT
- Comment a blue 🔵 or yellow 🟡 emoji

I’ll choose one lucky winner at random & send them an AH booster bundle

Ends 11am | 08/05/26 | UK only

[DFPCUK @DF_PC]

The perfect accessory this festival season! 🎉 💃🏻

[Sarcoma UK @Sarcoma_UK]

Stay cool this festival season and support Sarcoma UK! 🕺

Celebrity ambassador for Sarcoma UK @Graemepark, has collaborated with Fangirl to support those affected by bone & soft tissue cancer.

Fans available at: https://t.co/rYBrEYimWf

[St Mark's Hospital @StMarksHospital]

@stmarkshospital new #stoma #book will be a vital read for both #patients and #healthcare professionals, providing stoma patients with detailed information on stoma care and empowering them to independently care for their stoma on a daily basis. https://t.co/TLFLiqoJMr

[Desmoid Tumor Research Foundation @DTRFoundation]

Check out these #RFAChallengers who hit the 2nd #RFAVirtualChallenge Fundraising Milestone!

With only 3.5 weeks to go, WE STILL NEED YOU to become an #RFAChallenger! Whether you raise $100 or $1K, TOGETHER we can advance #desmoid tumor research in 2022! https://t.co/93y2wb2cx3

[DFPCUK @DF_PC]

💙September is Desmoid Tumour Awareness Month 💙#DesmoidAwarenessMonth
#DesmoidTumourAwarenessMonth
#DesmoidTumorAwarenessMonth
#DesmoidFibromatosis #Desmoid #AggressiveFibromatosis

[Desmoid Tumor Research Foundation @DTRFoundation]

Meet Katrien, a 20-year-old #DesmoidSurvivor from Washington State.

“It took a lot to realize that these tumors aren’t easily treated and I need to prepare myself for a long and hard battle."

Help raise #DesmoidAwareness: https://t.co/NPq2DS5Nsq #DesmoidTumorAwarenessMonth

[DFPCUK @DF_PC]

September is
💙DESMOID TUMOUR AWARENESS MONTH

#DesmoidTumourAwarenessMonth
#DesmoidTumorAwarenessMonth
#DesmoidTumour #DesmoidFibromatosis #Desmoid #DesmoidTypeFibromatosis #DesmoidTumor

[Desmoid Tumor Research Foundation @DTRFoundation]

SEPTEMBER IS #DesmoidTumorAwarenessMonth!

#Desmoid tumors are rare, invasive, soft tissue tumors affecting 5-6 per every 1M people per year (though frequently misdiagnosed).

Visit https://t.co/NPq2DS5Nsq to learn how to raise #DesmoidAwareness, see our events schedule, & more!

[DFPCUK @DF_PC]

This is an event not to be missed for #DesmoidFibromatosis patients, carers & professionals! We can’t wait to take part again virtually this year!
#DesmoidCommunity
Look out soon for our annual RFA fundraiser for the DTRF too!
#FundACure #DesmoidWarriors #DesmoidUnitedUK

[Desmoid Tumor Research Foundation @DTRFoundation]

Together we will…EMPOWER OURSELVES at the Annual DTRF Patient Meeting Webinars on 9/25, the main event of #DTRFWeekend2021! Webinar #1 will include overviews of #desmoid medical therapies, #cryoablation, a new #clinicaltrial, & the int’l #pregnancy study. https://t.co/wu7UBW4IxE

[DFPCUK @DF_PC]

** INTERNATIONAL STUDY:
DESMOID TUMOUR AND FERTILITY **

@DesmoidI are looking for women to take part in an international study into #DesmoidTumour’s & fertility.

Scientific research starts with us!

Find out more including links to take part below.

#DesmoidFibromatosis

[Desmoid Foundation ONLUS - Italia @DesmoidI]

** INTERNATIONAL STUDY: DESMOID TUMOR AND FERTILITY **

Are you a woman who was diagnosed with desmoid tumor DURING your #Fertile age? If the answer is YES, go to https://t.co/J9scNDC2f7 and fill out the questionnaire!

Scientific research starts with us!

#df #desmoid #desmoide

[Desmoid Foundation ONLUS - Italia @DesmoidI]

** INTERNATIONAL STUDY: DESMOID TUMOR AND FERTILITY **

Are you a woman who was diagnosed with desmoid tumor DURING your #Fertile age? If the answer is YES, go to https://t.co/J9scNDC2f7 and fill out the questionnaire!

Scientific research starts with us!

#df #desmoid #desmoide

[DFPCUK @DF_PC]

Register today for the #DTRFWeekend2021 (Sept. 24-26) and the summer-long #RFAVirtualChallenge at https://t.co/DTvAyjpWnJ!

Together we will…
🧩 CONNECT (9/24)
🧩 ADVANCE RESEARCH (9/24)
🧩 EMPOWER OURSELVES (9/25)
🧩 FUND A CURE (June-Sept & 9/26)

#DesmoidTumourAwareness

[Desmoid Tumor Research Foundation @DTRFoundation]

Register today for the #DTRFWeekend2021 (Sept. 24-26) and the summer-long #RFAVirtualChallenge at https://t.co/wu7UBW4IxE!

Together we will…
CONNECT (9/24)
ADVANCE RESEARCH (9/24)
EMPOWER OURSELVES (9/25)
FUND A CURE (June-Sept & 9/26)

[DFPCUK @DF_PC]

It’s that time of year again & @MalcolmWhales are embarking on their annual #DorsetWalk21!

Please follow, like, share and donate!

This is an amazing cause very close to our hearts after they helped fund our #DFPC21 patient conference last year.

#Support #Donate #Share

[The Malcolm Whales Foundation @MalcolmWhales]

Tents are up for our KSCS walkers, now time for some food and games! Everybody is in good spirits ready for the walk to begin in the morning

If you would like to donate to this years walk you can do so at https://t.co/qckcLvYXn2

#teamTMWF #DorsetWalk21

[Bradley Price @BradleyJPrice]

A really important campaign from @TeenageCancer - improving the provision of specialist psychological support is long overdue.

[DFPCUK @DF_PC]

Share your support by wearing red! #Red4Research

[UK Research and Innovation @UKRI_News]

Today is #Red4Research Day where we show our support for everyone participating, undertaking and supporting COVID-19 research. Get involved by wearing something red and find out more- https://t.co/OgCiF4k0qo
@NHSRDForum @NIHRresearch

[DFPCUK @DF_PC]

This is a common issue for many with chronic/lifelong conditions.

It’s great to see something being done to combat those risks.

[UK Research and Innovation @UKRI_News]

Nearly half of older people in the UK take five or more medicines, increasing the risk of adverse reactions. With @LandG_UK, we've invested in new software to help doctors prescribe the safest and most effective combinations of drugs.
https://t.co/aNUzNMOh1j #HealthyAgeing

[Beacon for Rare Diseases @RareBeacon]

What perfect timing! We just concluded #DrugRepo21 and now we're marching into #Red4Research!

Show your support by wearing something red♥️ and tag us in your photos!

Three cheers for #Research, #Innovation and #DrugRepurposing 🙌👏

[DFPCUK @DF_PC]

#ASCO21 presentation
" Patient Reported Outcomes in Desmoid type Fibromatosis"

Thank you to all who worked on this and congratulations on winning the Conquer Cancer Merit Award 🌟

#DesmoidTypeFibromatosis #DesmoidTumour #DesmoidFibromatosis #DesmoidTumor

#BenignIsNotFine

[Vikas Garg @OncoVik_G]

Happy to share our ASCO 2021 presentation " Patient Reported Outcomes in Desmoid type Fibromatosis". Thankful to all patients and my mentor for this great opportunity. Thank you Conquer cancer foundation for considering this for Conquer Cancer Merit Award. https://t.co/K3FISc94y8

[DFPCUK @DF_PC]

Are you a patient diagnosed with a #DesmoidTumour BEFORE or DURING #pregnancy? If your answer is YES, please consider taking part in this important study.

Find out more and register via the @DesmoidI website at
https://t.co/ZojnSH7qOG

#DesmoidFibromatosis #SupportResearch

[Marco Fiore, MD, FACS, FEBSh @FioreDoc]

Desmoid Fibromatosis during pregnancy: clinical study https://t.co/5pciB0zgIB via @YouTube @DesmoidI @DTRFoundation @sarcomapatients

[SPAGN @sarcomapatients]

The @DesmoidI Desmoid Foundation Italy, in collaboration with the Fondazione IRCCS Istituto Nazionale dei Tumori, has launched a survey to study the correlation between desmoid tumors and pregnancy. Learn more: https://t.co/c4Uw0QDeL8
#desmoid #aggressivefibromatosis #pregnancy

[DFPCUK @DF_PC]

Congratulations to all who worked on this study! 🥳
#ASCO21 #DesmoidTumourAwareness #DesmoidFibromatosis #AggressiveFibromatosis #SupportResearch #RareDisease #DesmoidTumor

[Desmoid Tumor Research Foundation @DTRFoundation]

Congrats to @OncoVik_G & team for receiving a #ASCO21 @ConquerCancerFd Merit Award for their study on patient reported outcomes, comparing quality of life results from 102 #desmoid patients to 102 healthy controls. Read the abstract below. https://t.co/6Dct76ceY1

[Desmoid Tumor Research Foundation @DTRFoundation]

#Desmoid tumors were once again a topic of discussion & award-winning research at #ASCO21. We extend our gratitude to the physicians & scientists around the globe working to find answers. View the ASCO abstracts & presentations on #desmoid tumors at https://t.co/sI0gnhKtD5