Weβre Launching Our Support Line π
Our support line is available during the following hours:
Starting May
π Tuesdays: 10am β 1pm
π Thursdays: 5pm β 8pm
π Get clear, reliable information
π Ask questions β nothing is too small
π Feel supported, at your own pace.
The annual SPAGN Conference takes place this weekend in Sweden bringing together sarcoma patient advocate groups from all over the world.
With 71 member organisations the SPAGN Annual Conference remains the key international meeting for sarcoma patient advocates.
Keep an eye on our SM pages over the next few days as the team will be posting highlights from the meeting.
Our sincere thanks to @sarcomapatients for providing a scholarship program, allowing small charities like ours to participate
#spagn2026#SarcomaAwareness#Advocacy
This is the 4th consecutive year that Sarcoma Cancer Ireland has attended the conference, which is a fantastic opportunity to meet with similar groups from other countries and hear about different ways that they support and advocate for patients.
π Call or WhatsApp: 085 769 4115
Canβt make these hours? You can still reach out β support is available via email outside of these times.
You are not alone in this. π
#supportline#launching#sarcomapatients#sarcomacancer
Weβre Launching Our Support Line π
Our support line is available during the following hours:
Starting May
π Tuesdays: 10am β 1pm
π Thursdays: 5pm β 8pm
π Get clear, reliable information
π Ask questions β nothing is too small
π Feel supported, at your own pace.
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π Opportunities to ask questions and learn more
π A chance to connect with others who understand the journey
A space to feel informed, supported, and part of a wider community, something that is especially important with a rare cancer like sarcoma.
Weβre pleased to announce that our next Patient Information Day will take place this summer as part of Sarcoma Awareness Month.
π Saturday, 18th July 2026
π Maldron Hotel Merrion Road, Dublin 4
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This important event brings together patients, families, and healthcare professionals to share knowledge, experiences, and support.
You can expect:
π Expert talks on sarcoma diagnosis, treatment and research.
π Practical information and guidance
It is Rare Disease Day and weβre proud to launch ourΒ Strategic Plan 2026β2028Β π
Over the next 3 years, we will focus on:β¨ποΈ Earlier diagnosisβ¨π£οΈ Stronger advocacyβ¨π€ Expanded patient & family support
Read the full plan here:β¨π https://t.co/xLZJ4f5q1b
As we begin planning our Easter Raffle, weβre reaching out to our wonderful community to see if any businesses or individuals might like to get involved by donating a prize π
Whether itβs a voucher, product, experience, or gift, every contribution helps us raise vital funds to support sarcoma patients and their families across Ireland.
If you, your workplace, or a business you know would like to donate a prize or sponsor part of the raffle
Explore our Winter 2025 Newsletter to see whatβs been achieved, how support is being delivered & how you can play a part in the year ahead β whether by volunteering, fundraising, or simply staying informed.
Download a copy from our website: https://t.co/xPE4t6B0va
#newsletter
We have a dedicated freephone Support Line for anyone affected by cancer who might need advice or information from our cancer nurses.
We also offer practical, in-person support at our Daffodil Centres. If you or someone you know needs support, we are here π
The Irish Cancer Society, in partnership with Barretstown, hosts bereavement weekends for families and children all across the country to reconnect, find support, learn coping skills & meet others.
To register your interest for camps in 2026, please email [email protected] π
This week, weβre shining a light on the incredible Board of Trustees at Sarcoma Cancer Ireland β a dedicated group of volunteers who give their time, expertise, and compassion to guide everything we do. π
Your commitment, wisdom & care make our work possible every single day.
Thank you to our Trustees β Rebecca, Carol, Kelli, David, Angela, Paul, John and Catherine β for your leadership, dedication, and compassion in guiding Sarcoma Cancer Ireland forward. π»