The second paper aims to estimate what changes in behavioural and emotional difficulties among young people with a learning disability (as measured using the Developmental Behaviour Checklist) can be considered clinically meaningful
https://t.co/fhKqGqVWyS
I am pleased to share two recently-published open-access papers! The first discusses our work developing guidance on co-producing research with family carers of people with learning disabilities to ensure meaningful collaborations.
https://t.co/skfdjdHMQi
Are you a family carer of a child with a learning disability aged 14-17 years?
We need your help for a research project looking at annual health checks! More details below 👇
#familycarer#learningdisability
In this video Dr Jo Griffin and Debbie Austin discuss co-production in research with family carers of people with a learning disability
#coproduction#familycarers
https://t.co/WeSO3rOp0z
Have you ever been invited to co-produce research a family carer of a person with a learning disability? Not known what to expect? This new guide covers what may be involved in co-producing research and what you can expect.
https://t.co/ZJzxJdjqc8
#coproduction
Pleased to share a new paper examining the role of family functioning in the relationship between child behavioural and emotional problems and maternal mental health in families of children with intellectual disabilities
@ProfRHastings@sflynn_cctb
https://t.co/AqwSHh3sN8
Golden Rule #2 for research with family carers of people with learning disabilities: Make it meaningful
"Knowing that my insights as a parent carer researcher are being heard has empowered me and highlighted the importance of our collective voices" - parent carer
#coproduction
Co-production in research. How can we get it right? @CIDD_Warwick and a group of family carers have developed a guide to making it work for everyone. Discover more here. (https://t.co/cbRYpx0Rh8)
We will be posting a Golden Rule for co-production each day this week.
We want to understand what changes in child behavioural and emotional difficulties are perceived to be clinically meaningful.
If you are a clinician with experience working with children and adolescents with learning disabilities, please consider completing our brief survey.
Are you a UK-based health or social care professional who works with children or adolescents with learning disabilities?
Please consider completing our survey about what changes in a measure of child behavioural and emotional difficulties are clinically meaningful.
You can also read our previous papers on the development of Positive Family Connections and the findings from a feasibility randomised-controlled trial.
https://t.co/OqxpngqkBq
https://t.co/LULzFm6Wjt
Facilitators and programme recipients described positive experiences and beneficial effects on wellbeing and family relationships.
We developed a model of programme processes which highlights the critical role of facilitators' lived experience and the positive approach
Excited to share that our qualitative evaluation of Positive Family Connections - a co-produced support programme for families of children with developmental disabilities, has been published open-access @Griffinpsych@sflynn_cctb@ProfRHastings
https://t.co/1HUj2h3P5G
Delighted to have passed my PhD viva yesterday without corrections.
An enormous thank you to my fantastic supervisors @sflynn_cctb@ProfRHastings@Griffinpsych for their wonderful mentorship, encouragement, and support and to @CerebraCharity and @uniofwarwick for funding my PhD
Really pleased to share our new paper exploring the experiences of mothers who had a mod/late #preterm born infant is available open access @BMJ_Open! 👏🏻 @RichardsLabUoB@DrAndrewSurtees@DanSutherland99
https://t.co/Ty19lJa0tB
Here’s a thread of our main interview themes 👇🏻
We've co-produced guidance on co-production in research with family carers and have developed 7 golden rules.
Rule #5 - Pay appropriately
You can find out more and sign up to receive the guidance when it is released here: https://t.co/ZJzxJdiSmA
#coproductionweek#coproduction