The FaceMatch Project: a Parent/Dr Initiative

🔍 Utilising facial recognition to match children with syndromic developmental conditions. Help other parents find a diagnosis or discover new genes.

[The FaceMatch Project: a Parent/Dr Initiative @DrDuddingbyth]

We are about to commence!

[CMRI @CMRI_AUS]

Congratulations to Professor Sandra Cooper, Adjunct Research Scientist at CMRI, for developing a world-first database which could change the way genetic disease is diagnosed.

https://t.co/RaB4LAQsiK

[Nerve Tumours UK @NervetumoursUK]

Save the date! Sunday 9th October. NF Patients Community Day, Manchester
A day dedicated to NF patients & their families - learn about NF1, NF2 & Schwannomatosis, find out what support is available and meet others affected by NF.
Read more: https://t.co/2QYQm9oRZm

[Rebecca Brown @NYCNFDoc]

I am incredibly excited to announce the opening of a Phase 1 clinical trial testing a topical immunotherapy for adult cutaneous neurofibromas in NF1. @TheMountSinaiHospital in New York City. The NF Clinic at Mount Sinai.

https://t.co/NZiaWIemAL

[NF1 Project @Nf1Project]

I was already working as a clinical geneticist when I noticed that my 6 month old daughter had multiple cafe au lait spots. The realisation filled me with a sense of fear and uncertainty.
#EndNf #Nf1project #NF1

[NF Bot @NFBot2]

Neurofibromatosis sufferer refuses to let his condition deter him from living life to the fullest - New Straits Times
https://t.co/ysggnhKrfz

[Emmanuelle Saliba @_esaliba]

“Imagine becoming kind of famous for the ONE thing you dislike about yourself!”

That’s what happened to Lilly Simon when her rare genetic condition was mistaken for monkeypox in a TikTok video seen by millions. I spoke to her about the aftermath.

WATCH: https://t.co/PmSHvyjine

[Emmanuelle Saliba @_esaliba]

“There's no cure and living with it is just having to learn to deal with it. “

Lilly Simon is living with neurofibromatosis, a rare genetic disease that isn't typically in the headlines.

WATCH: https://t.co/PmSHvyjine

[NF1 Project @Nf1Project]

Be a part of our study into the genetic influencers on the development of neurofibromas in people with NF1. It might not change today but it might lead to a better future. #NF1Project #NF1 #NFAwareness #EndNF

[NF1 Project @Nf1Project]

We now have participants registered from the USA, Canada, New Zealand, Australia and the UK which is exciting. Working hard to get information about the project to the NF community because 2,000 is a big target. Thank you for your help. #nf1project #NF1 #NFAwareness #EndNF

[NF1 Project @Nf1Project]

Seeking adults with NF1.#nf1project

[The FaceMatch Project: a Parent/Dr Initiative @DrDuddingbyth]

@Nf1Project

[The FaceMatch Project: a Parent/Dr Initiative @DrDuddingbyth]

@Nf1Project As a mother of a child with NF1, I am grateful to lead the international NF1 cutaneous neurofibroma consortium project

[The FaceMatch Project: a Parent/Dr Initiative @DrDuddingbyth]

@Nf1Project As a mother of a child with NF1, I am grateful to lead the international NF1 cutaneous neurofibroma consortium project

[The FaceMatch Project: a Parent/Dr Initiative @DrDuddingbyth]

Stellar night for Hunter researchers at 2021 Research Australia Awards https://t.co/rQ1NNBOaj5 via @uni_newcastle

[The FaceMatch Project: a Parent/Dr Initiative @DrDuddingbyth]

@HossaiGul @ResAustralia @HNEHealth @BupaAustralia Thank you.

[The FaceMatch Project: a Parent/Dr Initiative @DrDuddingbyth]

Stellar night for Hunter researchers at 2021 Research Australia Awards https://t.co/rQ1NNBOaj5 via @uni_newcastle

[The FaceMatch Project: a Parent/Dr Initiative @DrDuddingbyth]

https://t.co/fDS54P7YVr

[Research Australia @ResAustralia]

Congratulations to @drduddingbyth @hnehealth, winner of the Data Innovation Award. This award is kindly sponsored by @bupaaustralia Health Foundation #resausawards