fiona ulph

Chartered Health Psychologist. Reader in Qualitative Methods. Senior Adviser Qualitative methods NIHR RDS North West. Rare-D

[fiona ulph @DrUlph]

This....

[fiona ulph @DrUlph]

https://t.co/UW9WxKFfQv

For all the families living with MND and all the amazing professionals trying to make it more bearable

[fiona ulph @DrUlph]

great work by MSc and Phd students @Beckiblb
https://t.co/R5dvLFYd9S

[MCHP @ManHealthPsych]

On International Rare Disease Day 2024 we are asking people around the world to capture a simple clip of something that means rare to them, and be part of a collective, crowd-generated film.

[MCHP @ManHealthPsych]

Be as creative as you like. We look forward to seeing your video!
For further details see: https://t.co/vDGuaLecFq
@GeneticAll_AU
@annekeluc
@DanyaVears
@SimonRStones
@unique_charity
@PatientVoicesUK
@SBDRareProject
@CRTHealth
@KathrynAsbury1
@BritSocGenMed

[thewhitworthgroup @whitworth_group]

Today is @rarediseaseday ! Help us to highlight the voices of people living with rare health conditions and be a part of a 'rare' collective film:
https://t.co/lREkpgMjkn
#RareDiseaseDay #storiesbehindthestats #ShareYourColours #LightUpForRare

[Chris Willmott @cjrw]

A reminder that my colleague @JohnBryant1404 and I guest edited a special issue of The New Bioethics on Genomics and Ethics with articles from @AnnekeLuc @DrUlph @Rach_Horton and others https://t.co/wBaZZFNW1m #Genomics #Ethics

[Genomics England @GenomicsEngland]

The Generation Study will sequence the genomes of 100,000 newborn babies to look for a specific set of treatable rare genetic conditions.

Read the blog to learn more 🧬
https://t.co/zgjCa01yHu

[fiona ulph @DrUlph]

@jacksbenton @NdenBraver @FamkeMolenberg @erpecum @ISBNPA Congratulations

[Imagining Futures @ImaginingFuture]

Talk tonight (9pmGMT, 4pm EST) on screening, disability and identity

[Mariangels Ferrer Duch @MariangelsRive1]

What a special conversation to host with @JayRoche_tweets !
Listen to it 🎧 now on your favourite platform! @whitworth_group #AI

[fiona ulph @DrUlph]

@LucyHulme99 @ManHealthPsych Well done Lucy. Glad to see the hat got a feature!

[fiona ulph @DrUlph]

@sjwright17 Wow indeed. Interesting which test they have for which genders

[fiona ulph @DrUlph]

Psychologists… what do we think?

[fiona ulph @DrUlph]

@RhiannonHawkes @DrAMRodrigues @ElaineToomey1 @davidfrenchx Congratulations Rhiannon! Or should that be Dr Hawkes :) standing ovation here

[Behavioural Research UK @BehaviourRes_UK]

Come and join us! #postdocposition

[Australian Genomics @AusGenomics]

📢 Out now! Guidelines for #community #involvement in #genomic #research – providing researchers in Australia with practical information for involving community members effectively & meaningfully in research. 🧬🇦🇺

Read more 👉 https://t.co/tquy0nIeBC

#InvolveAustralia #Genomics

[Mind @MindCharity]

It's okay to miss loved ones.
It's okay to not feel 'festive’.
It's okay if you want some space.

We all heal differently.
Do what works for you and helps you on your grief journey. 1/2

[Unique @Unique_charity]

We are recruiting a part-time Information Officer (Family Support) - maternity cover role. If you'd like the chance to join our lovely team, please see: https://t.co/Ia1FRBVdjA for details about the role, ts & cs & how to apply. #recruitment #genetics #genomics #family #support

[Ramona Moldovan @ramonazmoldovan]

4pm🎙️ @rcpsych webinar Genomics Education for Psychiatrists

Hear about the principles of genomics relevant to psychiatry and see how genetic counselling can be helpful for people with psychiatric disorders

@DrPamBowman1 @BeamanGlenda @NickBas55312976
#RCPsychGenomics
#GCchat

[Francesca Forzano @kikiforzano]

A well deserved recognition!! I am so proud to work together with Yves Moreau in the PEC @eshgsociety An inspiration for the youngers and the less youngers @eshg_young @SofiaDouzgou @heidiledford @AlexReymondESHG @jorisveltman @am_sheffgenet @BPrainsack @DrUlph @rhysdore