@CancerMum @MedicineGovSte @digime@KingsCollegeNHS Thanks for letting me know. Will keep an eye on it. I just got access to documents from my GP record a few days ago.
@digime From the healthcare professionals I met during my treatment, I experienced no willingness to share information. I even been been asked why I was asking so many questions and why I wanted to know more than what I was told.
@digime@DigitalscotNews@CancerMum Reading what has been promised and what I have access to, it is clear politicians have not delivered on their promises. I have a serious condition and that information is even not available in my GP record !
@digime I would be happy to share record of my condition to help research. Also having an app that helps me manage medication (adherence, when to renew prescription) and indicate undesired interaction with over the counter medication would be very helpful.
@digime For me the most important information are held by the Hospital. I have a severe condition and all the test results, scans, treatment plans are held by hospital. No record of my condition or the treatment in my GP system !
#healthrecordaccess#q2
@digime I lived in different countries and none of my health data have followed me. I basically have no health history and no idea when my next screening exams are due. #HealthRecordAccess#Q1
Our @DanielBayley80 talking patient centricity and the importance of owning and controlling your own medical data at the #SwissRePitStop at @DigiCatapult