Emma Lake

Social Media/Community Manager @CFTrust & tweets for @GariRedhill community pub. Lover of baking & dinosaurs. Owner of rubbish lungs & singing voice.

[Emma Lake @EC_Lake]

I wrote this because I wish people were able to talk about #infertility & #miscarriage more openly #cysticfibrosis https://t.co/TEb0DGjTR5

[Emma Lake @EC_Lake]

Just posted a photo https://t.co/ubQG59gesu

[Emma Lake @EC_Lake]

It's been a really challenging week since I was discharged from the Brompton. And now I'm having to isolate in my room at the Priory, because of course I would catch COVID in the middle of a heatwave 😅

Please send good thoughts as I try not to totally barmy/die from the heat.

[Giles Yeo @GilesYeo]

👇🏼it absolutely amazes me the gall of some people to need to comment on another’s weight (or any aspect of appearance for that matter). Be kind & mind your own f-ing bees wax #endweightstigma

[Emma Lake @EC_Lake]

Anyone sending birthday cards to The Priory, can you please mark them for East Wing and that they are birthday cards. Otherwise I have to open them with staff when they arrive and this way they can hang on to them till Thursday. Thanks!

[Emma Lake @EC_Lake]

@asrashley Thank you for sharing. 💛

[Emma Lake @EC_Lake]

Think the drs are trying to tell me something by giving me the role of Creon in the play we are working on...? #cysticfibrosis #eatingdisorderrecovery

[Emma Lake @EC_Lake]

@wouldrachel Sorry, thought I did (long day!) https://t.co/X9lBXl8AWj

[Emma Lake @EC_Lake]

@wouldrachel It is very much like this one. Also stops me cluttering my desk and putting it away at end of day makes it feel like I am leaving the office.

[Emma Lake @EC_Lake]

@wouldrachel Rachel I have a pop up desk from a company who makes things for the elderly and it has changed my life. I will google it and send you a link

[Emma Lake @EC_Lake]

@wouldrachel My hubby loves licking envelopes. Happy to loan him to anyone for the festive period.

[Emma Lake @EC_Lake]

@VixThatRuns Also salted caramel where they have forgotten to add the salt.

[Emma Lake @EC_Lake]

When people ask why I'm not dashing back down the pub now sheilding is over 👇#91percent

[Alison Smith @ali_splat]

Appalling facts: up to now 58% of deaths during Covid have been people with disabilities. If you're a disabled woman needing more support, you're 91% more likely to die. GEM and disabled? Much more. @WEPdisability and @WEP_UK are not happy. Are you @JustinTomlinson, @MattHancock?

[Charlotte Addy 💙 @addy_charlotte]

So powerful to hear the experience of PWCF during #COVID19 and the very real physical and psychological effects of shielding & lockdown #PatientExperience #CFVoices @ECFSConference #ECFS2021

[National Voices @NVTweeting]

You are invited to join us and @CentreforMH for the launch of #AskHowIAm, a report and campaign calling for compassionate conversations for all people living with long-term conditions.
📅16 June, 10am
To register and for more info: https://t.co/7wV35eBR6u

[Emma Lake @EC_Lake]

Great question. Tantrums in this house if we run out of Ribena or pickled onions.

[Rachel @wouldrachel]

What do you bulk buy?

[Emma Lake @EC_Lake]

@GreatStrides65 @MattHancock @VertexPharma @blakeydark @ChrisMRiches @NHSEngland @cftrust @janedaviescf Best bank holiday weekend ever?

[Emma Lake @EC_Lake]

@GreatStrides65 @krug79 @cftrust Oooh, was that the one I spoke at? That rendition of The Trolley Song was 👌👌.

[Emma Lake @EC_Lake]

In a month's time it'll be the end of #CFWeek & this jar will be full of jellybeans. Each 🍬 will represent every tablet I swallow between now & then. You lucky lot will have the chance to win entire jar. Here's where we are as of 6pm today, think I might need a bigger jar...

[Jay Rayner @jayrayner1]

I don't usually name and shame but I'm so bloody angry. Have just been emailed by PR company @sanitymarket promoting the story of a man who apparently cured his cancer through an 'alkaline vegan' diet. This kind of fake medicine is hugely dangerous and will endanger lives.