EDSChick

Trying to live my life to the fullest with Ehler's-Danlos Syndrome Hypermobility.
#ehlersdanlossyndrome #hypermobility #invisibleillness #chronicpain

[EDSChick @EDSchick]

@JaimeLCooper @H2OhTwist That's exactly what it feels like to me too! Pain on the inside and outside of my ear, and it goes down my jaw and neck. It's terrible. Thank goodness for hoodies and hats 😂

[EDSChick @EDSchick]

Does anyone else have extreme ear sensitivity? Even the slightest wind will make my ears and my whole jaw sore. #annoying #EhlersDanlosSyndrome

[Princess, The Tower @APainPrincess]

“People who are #chronicallyill have learned to put up with the symptoms of illness, including terrible pain… Please don’t assume a person who is laughing is pain-free or otherwise feeling good physically.” https://t.co/8PVb5jCyw1 #invisibleillness #chronicpain

[EDSChick @EDSchick]

@livingwithmcas That's amazing! 🖒😁 You give me hope that my ear sensitivity will be helped with treatment 😀

[EDSChick @EDSchick]

@livingwithmcas It makes a lot of sense that MCAS would be the culprit. Did your sensitivity stop with the treatment as well?

[EDSChick @EDSchick]

@kelseyhardin_ @H2OhTwist Ugh, that's tough. Sending you gentle hugs. I hope they find the right treatment for both you and me 💜

[EDSChick @EDSchick]

@kelseyhardin_ @H2OhTwist I'm waiting for the results of a biopsy for mast cells! I sometimes wonder if mast cells are responsible for a lot of my issues 🤔

[EDSChick @EDSchick]

@BonnieM9194 @H2OhTwist I haven't tried that actually! Good idea. I usually just bring a hat with me wherever I go. Even in the summer time. I can't tolerate it at all.

[EDSChick @EDSchick]

@kelseyhardin_ @H2OhTwist Same here! I clean my ears before visiting the doc, and they still comment on my waxy ears. I wonder why? Does your jaw ever hurt from wind? I feel like I'm sensitive to wind and the pain radiates from my ears to my throat

[EDSChick @EDSchick]

EDS Chick and Doctors: Be Your Own Advocate https://t.co/eqbH8LP9FD

[EDSChick @EDSchick]

EDS Chick’s Guide to Endoscopy/Colonoscopy Part 4 of 4: The Moment You’ve All Been Waiting for https://t.co/WNqcT9FHRv

[EDSChick @EDSchick]

Trying to make the most out of my day with #chronicfatiguesyndrome. My willpower must be stronger! Get up! Get up! Get up! 😤☝

[EDSChick @EDSchick]

EDS Chick’s Guide to Endoscopy/Colonoscopy Part 3 of 4: The Day of the Test https://t.co/ruMaKP15Xy

[EDSChick @EDSchick]

EDS Chick’s Guide to Endoscopy/ Colonoscopy Part 2 of 4: The Evacuation https://t.co/A3vvUgDFg7

[EDSChick @EDSchick]

EDS Chick’s Guide to Endoscopy/ Colonoscopy Part 1 of 4: Backstory https://t.co/CJCWrF4EHa

[EDSChick @EDSchick]

@nharmertaylor Thank you! I'm liking that these good vibes are spreading 😀 Woot!

[EDSChick @EDSchick]

Sending positive vibes and cyber hugs to everyone who feels as sick as I do this morning. Let's kick Monday's ass! 😚💜#ihatemondays #chronicpain #EhlersDanlosSyndrome #PositiveVibes

[EDSChick @EDSchick]

@AmberLillie7 Thanks so much! I'm having a super rough patch right now so I appreciate the support. Screw HEDS!