Elisabeth R

I love the ocean.

[ME and Me @mecfs_and_me]

Honoured and proud to have interviewed Ron Davis and @JanetDafoe on behalf of @MEActNetUK as part of this year's #MillionsMissing

"I think we can cure it" - Ron Davis

Check out the interview here: https://t.co/0CkeIK8Dpb

[Whitney Dafoe @DafoeWhitney]

I think at some level we all blame ourselves for the symptoms and consequences of ME/CFS. In the back of all our minds there’s a little voice that tells us we could be doing better...

New Post On My Blog:
https://t.co/aaPoAcgxR8

[Whitney Dafoe @DafoeWhitney]

This might be the best awareness for ME/CFS in the history of the illness because it is read by millions of people with no connection to ME/CFS.

If the right person picks up People Magazine, reads that article and decides to do something about it, that could be a game changer.

[Elisabeth R @ERoyseth]

@agy_lena ❤️ Just please stay

[Elisabeth R @ERoyseth]

https://t.co/0z0q65LrSD

[Michael VanElzakker @MBVanElzakker]

The Netherlands government allocated ~$30million USD to start a proper nationwide ME/cfs biomedical research program. I was asked to advise the steering committee of clinicians, scientists, and advocates:
https://t.co/zj2QjBUnbF
"Model for a Dutch collaborative research pipeline"

[Janet Dafoe @JanetDafoe]

This is exciting! Please pre-order the book. It helps determine marketing energy!

[Michael VanElzakker @MBVanElzakker]

My from-quarantine teletalk to the #CMRC2020 conference, describing some myalgic encephalomyelitis/chronic fatigue syndrome (#MEcfs) history, then recent research into cerebrovascular reactivity & enlarged perivascular spaces
https://t.co/LjOBovVr9c
Please excuse the raspy voice

[Elisabeth R @ERoyseth]

Krev at Norge relokaliserer barna fra Moria og andre greske flyktningleirer: https://t.co/moRoTlcIy4

Barna lever i umenneskelige forhold i flyktningleirene mens den norske regjeringen venter på 8-10 land realiserer sine forpliktelser.

[Elisabeth R @ERoyseth]

3. Open Medicine Foundation and taking the step to help those who in the future we are affected by ME as a result of viruses or other physical strains and viruses like covid-19, there may be many who need this help eventually so now we have a golden opportunity.

[Elisabeth R @ERoyseth]

@OpenMedF 1 . Now is the time to get personal - especially in these covid-19 times, when the health system and welfare systems we have around the world lead to CPTSD instead of taking care of those who are so unfortunate as to have become ill in this society it is on time to lift

[Mady Hornig, MA, MD @mhornig]

Great to talk w/@lindy2350 for @nytimes about what we know so far about post-#COVID19 sequelae affecting brain + behavior, what the mechanisms might be, + all we must urgently learn, along w/@IgorKoralnik @mfotuhi @jdcZZZ.

Can Covid Damage the Brain? https://t.co/qy3OxnvY8N

[Rich Davis, PhD, D(ABMM), MLS🧫🦠 @richdavisphd]

What does a mask do? Blocks respiratory droplets coming from your mouth and throat.

Two simple demos:

First, I sneezed, sang, talked & coughed toward an agar culture plate with or without a mask. Bacteria colonies show where droplets landed. A mask blocks virtually all of them.

[The Guardian @guardian]

UK to launch world's largest genetic study into chronic fatigue syndrome https://t.co/pnvZuMlnMp

[Anil van der Zee © @AnilvanderZee]

For my (24th? 😊) birthday on the second of July I'm fundraising for @Invest_in_ME this year.

Will you help me to reach my goal?
https://t.co/Iky6kqyGUv

#pwme #myalgicE #millionsmissing #severeME

[Open Medicine Foundation @OpenMedF]

Breaking: European Parliament adopts ME resolution! On June 17th 2020, the European Parliament adopted a resolution on additional funding for biomedical research on ME/CFS. Read this exciting update on the European ME Coalition's website: https://t.co/zY61hbplhW

[Norges ME-forening - Rogaland Fylkeslag @ME_Rogaland]

Global research team aims to find cause of Chronic Fatigue Syndrome https://t.co/53kek0Y5st

[Elisabeth R @ERoyseth]

https://t.co/xpVR0SJ3wc

[Open Medicine Foundation @OpenMedF]

In case you missed it, United States Congressman Jamie Raskin, U.S. Representative for Maryland's 8th congressional district has just introduced legislation to address the critical need for more funding into medical research of ME/CFS. Read more: https://t.co/vDcefEAreS