E-TSC Association

@ETSCAssociation

#makingTSCmatter

Europe

Joined November 2013

34 Following

189 Followers

635 Posts

E-TSC Association @ETSCAssociation

almost 3 years ago

We’re back! DEA DUBLIN, IRELAND - Friday 7 July, 2023. Registration is FREE #becauseTSCmatters https://t.co/mzRK4MdiRM

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. Teresa Wright #TSCawareness #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism Check out E-TSC's video! #TikTok https://t.co/ms9IoL1GS4

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. Chris Kingswood #TSCawareness #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism Check out E-TSC's video! #TikTok https://t.co/F6fDDcPpFY

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. Agnies Van EEGHEN #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism Check out E-TSC's Story! https://t.co/nlYAFm5wJg

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Who to follow

The TSC Alliance is a source of hope and support for people with tuberous sclerosis complex so they can live their fullest lives. #HopeNoMatterHowComplex

Marie James 🏴󠁧󠁢󠁷󠁬󠁳󠁿

Tuberous Sclerosis Ambassador @UKTSA; Patient Rep Wales Rare Disease Implementation Network @NHSW_RDIG; Trustee @WalesRare; Policy Champion Group @SUDEPAction

TheLAMFoundation

Delivering facts about #LAM #RareDisease and The LAM Foundation. We're dedicated to funding research, advocacy and awareness to improve the QoL for all LAM pts.

E-TSC Association @ETSCAssociation

about 3 years ago

Dr. John Bissler #15May #TSCawarenessday #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism Check out E-TSC's Story! https://t.co/5FkJ2bhEev

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. Chris Kingswood #15May #TSCawarenessday #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism Check out E-TSC's video! #TikTok https://t.co/nxZAOGgJ4d

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. Chris Kingswood #15May #TSCawarenessday #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism Check out E-TSC's video! #TikTok https://t.co/Io8ghri1jt

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. John Bissler #15May #TSCawarenessday #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism Check out E-TSC's video! #TikTok https://t.co/jXA03QgrwE

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. Chris Kingswood #15May #15MayTSCawarenessday #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism Check out E-TSC's Story! https://t.co/fLbZbOziXx

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. John Bissler #15MayTSCawarenessday #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism https://t.co/GtInTUhGhY

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. Agnies Van EEGHEN #15MayTSCawarenessday #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism https://t.co/jHjVk1TUPb

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E-TSC Association @ETSCAssociation

about 3 years ago

15 May Tuberous Sclerosis Complex Awareness Day #15MayTSCawarenessday #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism https://t.co/uzMuTU461C

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. Chris Kingswood #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism https://t.co/8v7OoxhSF0

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. John Bissler #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism https://t.co/nkIeozjXrb

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. Chris Kingswood #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism https://t.co/jNoxLAKIbM

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. John Bissler #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism https://t.co/BAzi1QUFf6

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. Adelheid Wiemer-Kruel #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism https://t.co/e7IIq0ZVbO

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. Michal Tzadok #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism https://t.co/VFtzm8okRY

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. Agnies Van Eeghen #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism https://t.co/4WWd4uf2BY

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E-TSC Association @ETSCAssociation

about 3 years ago

Dr. Sergiusz Jozwiak #tuberoussclerosiscomplex #ETSC #makingTSCmatter #becauseTSCmatters #findacure4tsc #epilepsy #raredisease #autism https://t.co/Ayb4KFalMc

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