European ME Alliance 🇪🇺

The European ME Alliance is a grouping of European organisations who are involved in supporting patients suffering from myalgic encephalomyelitis (ME or ME/CFS)

[Emilio Baztarrica Navarro @EmilioBaztarri1]

#EncefalomielitisMiálgica
#MyalgicEncephalomyelitis
#pwME

@AsociacionPEM
@EUROMEALL
@Invest_in_ME

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

WHO Regional Director Europe opened #IIMEC18 affirming-
"ME is a serious, complex, multi-system physical illness,
involving neurological, immune, and metabolic dysfunction"
- Dr Hans Kluge @WHO_Europe
Press release:
https://t.co/3ixBJ1URZJ
#mecfs #WHO #InvestInMEresearch #IIMER

[European ME Alliance 🇪🇺 @EUROMEALL]

𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗠𝗘 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗗𝗮𝘆 𝟮𝟬𝟮𝟲

From awareness to action - The Work Behind the Awareness

https://t.co/JwfahOWzlu
#mecfs #InternationalMEawarenessDay

[European ME Alliance 🇪🇺 @EUROMEALL]

European ME Alliance - An Updated Constitution and New Members
A change now allows non-European groups to become Associate members of EMEA and partner with us to improve the future for people with ME and their families

https://t.co/Bvx0IPaqCM
#mecfs #InternationalMEawarenessDay

[European ME Alliance 🇪🇺 @EUROMEALL]

𝙒𝙤𝙧𝙡𝙙 𝙃𝙚𝙖𝙡𝙩𝙝 𝘿𝙖𝙮 7 𝘼𝙥𝙧𝙞𝙡
and EMEA announces its selection for the WHO/Europe Public Health Innovation Platform, focusing on policy, governance, and financing
https://t.co/6zQlbubwSt
#mecfs #WorldHealthDay #HealthForAll #EuropeanMEAlliance

[European ME Alliance 🇪🇺 @EUROMEALL]

International Long COVID Awareness Day
Rasing awaness of the profound effects of Long COVID
Echoes of ME
https://t.co/rqpUAXD2CN
#mecfs #longcovid

[European ME Alliance 🇪🇺 @EUROMEALL]

EMEA at the European Patients’ Forum Congress 2025

EMEA Becomes New Member of EPF and Attends EPF Congress

https://t.co/jsAD3K9NT3
#mecfs

[European ME Alliance 🇪🇺 @EUROMEALL]

Germany has launched the National Decade Against Post Infectious Diseases (2026–2036) - EMEA comment https://t.co/tn9lmhtQqc #mecfs @FatigatioeV @euromeresearch @YoungEmerg

[European ME Alliance 🇪🇺 @EUROMEALL]

3rd International Symposium on Chronic Fatigue Syndrome, Long COVID and Post-Infection Syndromes, held in November 2025 at the Institute for Cardiovascular Diseases "Dedinje" in Belgrade, Serbia
Video available
https://t.co/k87zUWFwF7
#mecfs #research @euromeresearch @YoungEmerg

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

Impressions from Invest in ME Research grant awardees at the recent Young EMERG International ME Workshop in Vienna

https://t.co/8l5OtXTN3L
#mecfs #research @YoungEmerg @euromeresearch @EUROMEALL

[European ME Alliance 🇪🇺 @EUROMEALL]

10 Dec #HumanRightsDay
Human rights mean recognising suffering, and acting to end neglect
𝙏𝙝𝙞𝙨 𝙘𝙖𝙣𝙣𝙤𝙩 𝙟𝙪𝙨𝙩 𝙗𝙚 𝙬𝙤𝙧𝙙𝙨
They must be 𝒕𝒓𝒂𝒏𝒔𝒇𝒐𝒓𝒎𝒆𝒅 into actions for people with #mecfs, and their carers

https://t.co/L5Edhm9bhW
#DignityForAll
#HealthEquity

[European ME Alliance 🇪🇺 @EUROMEALL]

Grateful to MEP Romana Jerković @JerkovicRomana for her support in raising EMEA's questions to European Commission regarding progress research and treatment of ME
https://t.co/NqlSCKYHqn
#mecfs #EuropeanMEAlliance

[European ME Alliance 🇪🇺 @EUROMEALL]

Building disability-inclusive Europe means acknowledging “invisible” conditions such as #mecfs Ensuring policies, funding, services reflect that reality

Genuine disability-inclusive societies ensure no one is left behind
https://t.co/VVK7bHAyuj
#IDPD2025 #DisabilityInclusion
3/3

[European ME Alliance 🇪🇺 @EUROMEALL]

3 Dec #InternationalDayOfPersonswithDisabilities – “Fostering disability-inclusive societies for advancing social progress”

Advancing social progress ought to be more than just words
https://t.co/VVK7bHAyuj

#IDPD2025 #DisabilityInclusion
#DisabilityDay #mecfs
1/3

[European ME Alliance 🇪🇺 @EUROMEALL]

#InternationalDayOfPersonswithDisabilities
Too often people with #mecfs are excluded from care and life because ME is not recognised

EMEA is committed to meaningful change through action

https://t.co/VVK7bHAyuj
#IDPD2025 #DisabilityInclusion
#DisabilityDay
2/3

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

'Registration Extended!'
November in❤️ienna!
next 𝙔𝙤𝙪𝙣𝙜 𝙀𝙈𝙀𝙍𝙂 𝙄𝙣𝙩𝙚𝙧𝙣𝙖𝙩𝙞𝙤𝙣𝙖𝙡 𝙈𝙀 𝙒𝙤𝙧𝙠𝙨𝙝𝙤𝙥 27-28 November
https://t.co/kJT3arh3Yy
#mecfs #research @YoungEmerg @euromeresearch

[European ME Alliance 🇪🇺 @EUROMEALL]

zoom link - https://t.co/UjzSfQa36P #mecfs #research #longcovid

[European ME Alliance 🇪🇺 @EUROMEALL]

Serbia: International Post-covid and ME Conference
14 November 2025
at the Institute for Cardiovascular Diseases "Dedinje", Belgrade, Serbia
https://t.co/LmZzqOX0yK
#mecfs #research #LongCovid

[Young European ME Research Group @YoungEmerg]

📢 #YEVienna2025 – Registration Extended!

Good news: you now have until 7 November to register for our two-day workshop for early career researchers in ME/CFS.

You can still:
🧑‍🎓 Attend the workshop
📰 Submit a poster
🏨 Request discounted accommodation

[European ME Alliance 🇪🇺 @EUROMEALL]

European ME Alliance statements at the 75th session of the World Health Organisation Committee for Europe in Copenhagen

https://t.co/h8WtE2j2O7
#rc75cph #mecfs #EuropeanMEalliance