EWGGD

The aim of the EWGGD is to promote clinical and basic research into Gaucher disease

[EWGGD @EWGGD1]

Following our statement yesterday, please mark your diaries with the new details of our 14th annual congress and follow us here and on LinkedIn for further details of registration and abstracts...

[EWGGD @EWGGD1]

Given the current concerns re COVID-19 and the travel bans already in place in some areas the EWGGD board has taken the difficult decision to postpone the 2020 scientific meeting to 11-14 October 2020. For more details: https://t.co/2nQiKO5aPG

[EWGGD @EWGGD1]

Did you miss @IGAgaucher's Facebook Live session last week? Don't worry: you can still watch it by clicking on the link below #gaucher #patientregistry

[International Gaucher Alliance @IGAgaucher]

If you missed our Facebook Live yesterday you can still ask Tanya a question about the global nGD patient registry by emailing [email protected] and watch the video here https://t.co/kHRvFOEcw6

[EWGGD @EWGGD1]

If you, or someone you know, has both Gaucher & Parkinson's and would like to participate in a project to better understand the impact of being diagnosed with a comorbidity get in touch with @IGAgaucher #gaucher #Parkinsons

[International Gaucher Alliance @IGAgaucher]

If you, or someone you know, has both Gaucher & Parkinson's and would like to participate in a project to better understand the impact of being diagnosed with a comorbidity please email Margaret Giuliani [email protected] #rarebutnotalone #gaucher #Parkinsons

[EWGGD @EWGGD1]

EWGGD is delighted to be heading to WORLD2020. Come and visit us in the exhibit hall to hear about membership, educational events and the scientific meeting in Leiden #Gaucher

[EWGGD @EWGGD1]

Our scientific programme will accommodate the work from all teams as posters or oral presentations and we encourage everyone from the Gaucher field to submit their research. The deadline for abstract submission is 16 March 2020 https://t.co/uePXD2s8S8 #EWGGD #Gaucher

[EWGGD @EWGGD1]

A great example of the @IGAgaucher working together for better lives for our patients with neuronopathic Gaucher disease #gaucher #raredisease

[International Gaucher Alliance @IGAgaucher]

The IGA has announced it has entered into a Letter of Intent with @Kantar_NA to manage the day to day running of the IGA’s global neuronopathic Gaucher disease patient registry.

For the full press release visit https://t.co/nuztwPUU9W
#gaucher #patient #registry #partnership

[EWGGD @EWGGD1]

Our website is now live https://t.co/K7JhRISK98 and registration will be open from Monday 10th February - we look forward to seeing you in Leiden for our 14th congress #EWGGD #Gaucher

[EWGGD @EWGGD1]

EWGGD 2020 Leiden Netherlands Sunday 24th to Wednesday 27th May 2020. Abstracts submission by March 16th 2020. Watch here for the meeting website .

[EWGGD @EWGGD1]

Having recently announced the details of our 14th annual congress in Leiden from 24-27 May, here is a short video as we move forward into 2020... More details of registration process and abstracts to follow #gaucher #disease

[EWGGD @EWGGD1]

We are delighted to announce the details of our 14th annual congress from Sun 24-Weds 27 May in Leiden bringing together #clinicians, #scientists & the international patient association @IGAgaucher. More details to follow... #gaucher #disease

[EWGGD @EWGGD1]

We are now on LinkedIn! You can connect with us at https://t.co/5dPedD1sOj and get ready to follow our announcements about the 14th #EWGGD congress to be held in Leiden which will be announced soon #gaucher #raredisease

[EWGGD @EWGGD1]

Thank you to everyone who joined the webinar on clinical features of Gaucher Disease yesterday! Amazing international attendance working together for the good of our Gaucher community. Watch out for the next one!

[EWGGD @EWGGD1]

Looking forward to our first educational webinar this evening! 430pm uk / 530pm CET

[EWGGD @EWGGD1]

Join us for the first EWGGD Educational webinar 13th November- Clinical Presentation of Gaucher Disease.

[EWGGD @EWGGD1]

Join us for the first EWGGD Educational webinar 13th November- Clinical Presentation of Gaucher Disease.

[CheckRare @CheckRare]

Dr. Neal Weinreb provides a learning program on Gaucher Disease: Epidemiology and Pathophysiology. @NGF_Gaucher @LSDSS International Gaucher Alliance National Gaucher Foundation of Canada Gaucher Disease News
https://t.co/EF7Z3ky5QV

[EWGGD @EWGGD1]

Delighted to mark International Gaucher Day with the first edition of the EWGGD newsletter. Email [email protected] to be added to the mailing list #Gaucher #IGA #RareDiseases @DerralynnH

[Care Beyond Diagnosis @Carebeyondd]

C.B.D and @FymcaMedical are excited to have launched an African task force. Working to identify problems unique to Africa which limits the care of rare disease patients @Within3 @IGAgaucher @RareDiseaseGh @RarediseasesSA @GenAllianceSA @RareDiseaseKE @irdirc @raddafoundation

[Jeff Szer @marrow]

Starting the long trek to São Paulo, Brazil 🇧🇷 to speak at a #Gaucher Disease meeting. Hoping to be let into the country this time!

[EWGGD @EWGGD1]

Pleased to mark the first full meeting of the new board of the EWGGD. There is so much to do and so much we can accomplish by working together. Follow us for updates as to how you can get involved #Gaucher #RareDiseases