EleanorMay

BSc Human Physiology, MSc pre-reg physiotherapy student, My dissertation is on ME and LC

[Jon Douglas @atranscendedman]

Researchers are linking POTS and Long COVID to autoimmunity.

Evidence suggests immune attacks may inflame or damage autonomic nerves, disrupting control of heart rate and blood pressure and helping explain dizziness, racing heart and fatigue.

https://t.co/6rvwPE4sUS

[Hiroshi Yasuda (保田浩志) @Yash25571056]

"A 2024 study estimated that 400 million people around the world have long COVID1, with an annual economic burden of around US$1 trillion..
[It is suggested that] around 6% of adults have long COVID..
Evidence points to dysregulated immune cells, chronic low-level inflammation and autoantibodies — immune cells that attack the body’s own tissues [in the long COVID patients]..
SARS-CoV-2 persists in some form.
It can also reactivate other dormant viruses3, in particular those in the herpesvirus family..
Studies have also shown that small blood vessels and the endothelial cells that line them are damaged.
The autonomic nervous system, which regulates heart rate and breathing, is frequently affected and the gut microbiota altered.
Mitochondria, the cell’s power plants, are often damaged; this could contribute to symptoms of fatigue..
[Dr. Scheibenbogen says that] what would happen to us if we ran a marathon happens to ME patients from climbing two stairs."

Indeed.

'When do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromes'
https://t.co/MUAgPPGge1

[Adam @ABrokenBattery]

“My daughter was told to exercise and ended up in a wheelchair... For GPs not to be aware of the harm that exercise can do is hugely damaging.”

Janet Sylvester (MEAction Scotland), speaking about her daughter who has ME while giving evidence to the Scottish Parliament Sept 2026.

[The BMJ @bmj_latest]

Four in ten healthcare workers worldwide who were infected with SARS-CoV-2 during the pandemic developed long covid, and a quarter still had symptoms after a year, a report has found
https://t.co/HG1TEPuoK8

[Adam @ABrokenBattery]

“I went down to 36 kg because I stopped being able to tolerate a whole range of foods.”

Wendy Matthews has lived with #MECFS for 28 years and has been bedbound for the last 7. She talks about her symptoms, how the illness has impacted her, and how #MECFS is not rare.

[Vipin M. Vashishtha @vipintukur]

#LongCOVID may be leaving behind visible damage to the body’s “rest-and-digest” nervous system.

➡️ For the first time, researchers have demonstrated structural loss of cholinergic (vagal) nerve fibers in the stomach lining of LongCOVID patients.

➡️ The reduction correlated with heart rate variability, providing anatomical evidence for the dysautonomia that many patients experience. 1/

[Jack | amatica health @JackHadfield14]

Muscle biopsy studies in ME/CFS and Long COVID have found oxidative muscle stress, altered glucose use, mitochondrial changes, capillary injury, nerve-muscle damage and worse muscle pathology after PEM. Let's break down what the findings mean.

[Dr Nicola Clague-Baker @ClagueNjc36]

Really pleased to have another article published. An interview-based article related to experiences of heart rate monitoring. Thank you to all #pwme who took part in the survey and interview study. Thank you to Uni of Liverpool for funding @PhysiosForME

https://t.co/nFzSFe2JS6

[Dr Nicola Clague-Baker @ClagueNjc36]

Save Caroline Roberts’ Life now: A very severe ME/CFS patient with high mortality risk. - Sign the Petition! https://t.co/xzC3gJsNjN via @UKChange

[Dr Nicola Clague-Baker @ClagueNjc36]

Well done @KGLeslieWriter @ElaKlaveness @NiamhLHeeran @EleanorMg01 for successful abstracts at the @thecsp conference 2026. Spreading the word about #ME/CFS and #Longcovid. Thank you to all people with #ME/CFS and #Longcovid who took part in all the studies.

[Adam @ABrokenBattery]

Channel 4 coverage of the new £4.75M UK government funding for SequenceME. #MECFS

“For decades, many people with ME have been told it is in their heads… But now, a new project will look for the answer in our very DNA, with the world’s first genomic study into ME.”

[ME/CFS Science @mecfsskeptic]

1) 1) Interesting interview of Dr. Audrey Ryback by David Tuller. Her recent study showed that there are likely two age peaks for when people get ME/CFS.

It helps to characterise ME/CFS as a unique clinical entity.

[ME/CFS Science @mecfsskeptic]

1) New sociology paper on severe ME/CFS. The authors analyzed 342 messages on Twitter/X to get insights into the daily reality of people with severe ME/CFS.

They highlight the feeling of being trapped by the illness, profound isolation and longing for the outside world.

[Dr Nicola Clague-Baker @ClagueNjc36]

We would like to provide a voice for all healthcare professionals affected by #longcovid and #ME. Please share widely. @thecsp @theRCOT @LongCOVIDPhysio @theRCOT @LongCovidOT @MEAssociation @sunsopeningband @Claire145 @Sunny_Rae1 @drclairetaylor @BinitaKane @REvans_Breathe

[ME/CFS Science @mecfsskeptic]

1) 7 new ME/CFS projects have received funding from the Dutch research agency ZonMw.

All projects look high-quality and focus on different aspects such as the brain, muscle, microbiome, viruses, orthostatic intolerance, and the immune system.

A brief overview 🧵

[Dr Nicola Clague-Baker @ClagueNjc36]

We are planning another study which will potentially include blood tests for #pwme and #pwlc. What blood tests would you want and why? Thanks @PhysiosForME @LongCOVIDPhysio @Claire145

[Kelly @broadwaybabyto]

“Non disabled people understand terminal illness. They can process a disease that makes you sick and then you die. They can process a temporary ailment or injury where you’re sick and then you recover. They struggle with chronic illness” 1/2

[Liverpool Echo @LivEchonews]

Zoe's Place baby hospice is SAVED after incredible Liverpool-wide campaign

#liverpoolecho #zoesplace #liverpoolnews

[Brady Gretch @BradyGretchToGo]

@BT1DUK Incredible job— the most empathetic, well-directed and edited film on T1D I’ve seen. The woman at 1:13, with the time-lapse and isolated motion, poignantly captures a too frequent feeling of disconnect from life's lovely moments. Moving! @BT1DUK @the_jdca @BreakthroughT1D

[Breakthrough T1D UK @BT1DUK]

🔊Sound on!🔊

We're excited to introduce our new film, ‘What a cure feels like’, celebrating our transformation to Breakthrough T1D!

The film features real people affected by type 1 diabetes (T1D) and captures the relentless nature of living with T1D and the hundreds of extra decisions made each day.

We would like to say a special thank you to @tara_humphrey and her daughter Tahlia, @LisWarren, @joem_ and his partner Salman and @Jonpeach5 who shared their experiences and worked alongside us to create this film.

Together, let's raise awareness and inspire hope for a future without T1D💙

#BreakthroughT1D #WhatACureFeelsLike #T1D #GBDoc