Liz Collins

Proud Mama of Claudia and parent ambassador for DEBRA Ireland, passionate about making changes in services for people living with Epidermolysis Bullosa

[Liz Collins @Elizabe08068244]

Very proud, we need change 💙

[Debra - The Butterfly Skin Charity @debraireland]

Thank you @PaulineTullyTD for raising the first ever topical issue on EB in the Dáil yesterday.

Deputy Tully highlighted our new report ‘Life with EB in Ireland’, the experiences shared by Debra ambassadors @Elizabe08068244 and Emma Fogarty, and spoke about the need for additional home nursing care, outreach care and mental health supports for people with EB in Ireland. @MaryButlerTD

[Liz Collins @Elizabe08068244]

We need action not words 💙🦋

[Senator Pauline Tully @SenPaulineTully]

Delighted to host @debraireland in Leinster House to launch their new 'Life with EB in Ireland' report:
https://t.co/vt8QYkplmt

[Debra - The Butterfly Skin Charity @debraireland]

Our heartfelt thanks to @chrisandrews64 and @PaulineTullyTD for hosting the launch of our ‘Life with EB in Ireland’ report yesterday and to @MaryLouMcDonald @ImeldaMunster @Farrell_Mairead @ReadaCronin and Dessie Ellis TD @sinnfeinireland for coming out to support us and to make EB care a priority during #EBAwarenessWeek

[Liz Collins @Elizabe08068244]

We need to be heard 💙

[Debra - The Butterfly Skin Charity @debraireland]

Two incredible EB advocates Emma Fogarty and Liz Collins are in Leinster House for the launch of our new ‘Life with EB in Ireland’ report. A huge thanks to @MaryLouMcDonald for taking the time to meet with us and to @PaulineTullyTD for hosting #EBAwarenessWeek

[Liz Collins @Elizabe08068244]

Amazing incentive 💙

[123ink.ie @123ink_ie]

We're happy to share that we're donating an Ireland Rugby jersey signed by the entire squad, to a raffle organised by the charity @debraireland.

Raffle tickets for this authenticated jersey start at €5, with all proceeds going towards Debra.
https://t.co/FbpubLNcUw #IrishRugby

[Liz Collins @Elizabe08068244]

Cast aside again, my daughter matters, her life matters, people with EB matter, they exist and we’re not going away ✊

[Debra - The Butterfly Skin Charity @debraireland]

For the second year in a row, the Government has failed to prioritise funding for EB care. We've urged a €810,000 investment in mental health, outreach and home care for those with EB in #Budget2024. Regrettably, this budget falls short in addressing the needs of people with EB in Ireland.
https://t.co/hUqBQqzqbI

[Liz Collins @Elizabe08068244]

@debraireland @sinnfeinireland No nurses available for my daughter, fighting for 19 years for correct services, 75% of my life has been spent fighting for services and advocating, trying to be a mother, wife, nurse, political campaigner for her. We need help !!!!!

[Liz Collins @Elizabe08068244]

@debraireland @ShaneOBrien73 Goodness @ShaneOBrien73 it would have been lovely to have met or known about your family 🦋💙

[Liz Collins @Elizabe08068244]

Carers can’t work full time because they care for their loved ones , carers allowance available and then it’s means tested , given with one hand and taken back with the other, absolute joke..TD’s on big salaries not a clue of the impact caring has on a family

[Debra - The Butterfly Skin Charity @debraireland]

According to #Census2022, between 2016-2022, the number of UNPAID CARERS in Ireland increased by 53% to over 299,000.

There was also a 111% growth in number of UNPAID CARE HOURS provided each week.

The work of carers is often unseen, but their impact is invaluable. #CarersWeek

[Liz Collins @Elizabe08068244]

@debraireland Only our patients know the true suffering of EB , they are the one’s living in pain everyday, it’s horrendous 💙🦋🥲

[Debra - The Butterfly Skin Charity @debraireland]

This is an amazing story of the realities of living with EB. Please watch and share 🦋

[The Echo Newspaper 🗞 @TheEchoOnline]

Mum gearing up for 19th mini marathon as promise to her daughter and charity. @VhiWMM @debraireland https://t.co/EA8h8zvHtI

[Debra - The Butterfly Skin Charity @debraireland]

We are so proud of Claudia too. She is such an inspiration. Thank you all so much for fundraising to support people living with EB. It means so much to us 🦋

[Liz Collins @Elizabe08068244]

Thanks @VhiWMM 💙

[Debra - The Butterfly Skin Charity @debraireland]

Thanks so much for sharing Liz and Claudia's story.

🦋To join Team DEBRA @VhiWMM visit https://t.co/s2VlX42JUR

🦋 To support Liz's run https://t.co/1XbZYQ5TWi

[Liz Collins @Elizabe08068244]

We need to find a cure to stop the suffering 💙

[Debra - The Butterfly Skin Charity @debraireland]

Thank you so much Declan for sharing and for creating much needed awareness of EB 🙏

So wonderful to see Graeme working with our friends and colleagues in @CharityDEBRA & taking on this challenge for people with EB like Isla. She is just amazing isn't she🦋

[Liz Collins @Elizabe08068244]

My girl x

[The Late Late Show @RTELateLateShow]

“I deserve to live the life I was given” ❤️

Help us support people like Claudia, head to https://t.co/pz2CzruT73

@debraireland

#LateLate

[Liz Collins @Elizabe08068244]

My courageous daughter 🦋

[Debra - The Butterfly Skin Charity @debraireland]

We could learn so much from this inspirational 19 year who battles EB every day to live her life @RTELateLateShow.

Thank you for listening and supporting people with EB like @Claudia61312789 💙
#LateLate #LateLateShow

Please donate today 👉 https://t.co/oTH4KnmsDN

[Debra - The Butterfly Skin Charity @debraireland]

We could learn so much from this inspirational 19 year who battles EB every day to live her life @RTELateLateShow.

Thank you for listening and supporting people with EB like @Claudia61312789 💙
#LateLate #LateLateShow

Please donate today 👉 https://t.co/oTH4KnmsDN

[Liz Collins @Elizabe08068244]

So proud of my daughter and @JohnnySexton two absolute legends

[Debra - The Butterfly Skin Charity @debraireland]

Tune into @RTELateLateShow tomorrow night! @Claudia61312789 will be on with DEBRA ambassador @JohnnySexton.

Going on the show gives Claudia and Johnny a chance to raise vital awareness of EB and discuss the support those living with it still need 🦋

Please tune in! #latelate

[Liz Collins @Elizabe08068244]

Transparency, as a charity Debra does exactly as it says on the tin 💙🦋

[Debra - The Butterfly Skin Charity @debraireland]

We've come a long way since a group of parents came together in 1988 with one goal: to improve the lives of everyone affected by EB.

Our work now includes advocacy, research and support for patients, families and carers. Thank you for supporting our work 💙