@HarrySpoelstra Ik sta nu op 1.5mg LDN/dag voor eds/pijn. Not sure yet π maar geen enkele pijn stiller meer en ik slaap zo goed π€π€π€π₯±π₯±π₯±
*OPEN ACCESS* In this comprehensive translation study combining human genetics, functional assays, and mouse models we showed that FBN2 mutations increase susceptibility to spontaneous CSF leaks. Science has entered our field @spinalCSFleak@issclsociety https://t.co/SIdczCBu7o
@WouterSchievink@SpinalCSFCanada@spinalCSFleak@issclsociety I was told no genetic cause could be found. Yet my clinical picture includes aneurysms, dysautonomia, musculoskeletal problems, and a suspected spontaneous spinal CSF leak. Research like this reminds us that the absence of a known gene does not mean absence connective disorder
Was absent for a while. Health, reality, life.
And after months of navigating the Belgian healthcare system, I can confirm: if Kafka had written a medical policy manual, it would look remarkably familiar.
#Belgium#Healthcare#PatientExperience
Palliative does not mean powerless.
A Jewish patient has the right to home, community, and religious dignity β even at lifeβs edge. @s_antisemitisme@MichaelFreilich
@s_antisemitisme When a Jewish severely ill patient faces housing discrimination long term and is pressured toward an end-of-life facility, we must ask questions. Is this healthcare β or structural discrimination? Religion and equal access to housing do not disappear in illness
Reason for thrombocytopenia and thrombosis after Covid-19 vaccination with the AZ and J&J adenovirus vaccines
https://t.co/aDIFfZ7hXZ
a specific immunoglobulin light chain somatic hypermutation in individuals that led to antibody targeting against PF4 @FrankPeeters4
Judaisme ziet debat als teken van leven. Wat opvalt, is niet dat er over besnijdenis wordt gesproken, maar Joodse tradities opnieuw moeten uitleggen waarom ze hier mogen bestaan. Een samenleving toont haar maturiteit in hoe vanzelfsprekend ze ruimte laat voor wat ze zelf niet is.
Thank you, 2025.
A well-conducted psychoanalysis didnβt close questions β it opened new ones, and ultimately led me to genetics. #ehlerdanlos#MedTwitter πππ#CSF