Spinal CSF Leak Canada Charitable Organization

🇨🇦 National health charity with a vision to improve the health and lives of those suffering from Intracranial Hypotension caused by Spinal CSF Leaks.

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

As we begin #SpinalCSFLeakAwarenessWeek, we are honoured to share that Canada’s capital, the City of Ottawa, has officially proclaimed June 1–7, 2026 as Spinal CSF Leak Awareness Week.
We extend our sincere gratitude to @MayorOttawa
For this recognition.
#SpinalCSFLeakWeek2026

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

We are honoured to share that Mayor Ken Sim has officially proclaimed June 1–7, 2026, as Spinal Cerebrospinal Fluid Leak Awareness Week in the City of Vancouver.
SpinalCSFleakAwarenessWeek2026

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

💜 Last night, June 4, the Calgary Tower shone purple in recognition of #SpinalCSFLeakAwarenessWeek
Thank you @cityofcalgary @TheCalgaryTower for helping raise awareness of spinal CSF leak & thank you @pmkmann #AnneK. for sharing these beautiful photos.

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

@pmkmann @ella_gmac The Calgary Tower will be lit up tonight.

[Ella Macdonald @ella_gmac]

LAST NIGHT: Halifax City Hall and Province House lit-up purple for Spinal CSF Leak Awareness Week. CSF leaks can lead to a debilitating neurological condition known as intracranial hypotension, and patients say raising awareness is the first step in prevention. @SpinalCSFCanada

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

@ella_gmac Thank so very much for the coverage and all your support. It is greatly appreciated 🙏🏻💜

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

We are honoured to share that Mayor Jeromy Farkas has proclaimed June 1–7, 2026, as Spinal Cerebrospinal Fluid Leak Awareness Week in the City of Calgary.
#SpinalCSFLeakAwarenessWeek

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

🚨Patients spread awareness of Spinal CSF Leak in Halifax , NS
https://t.co/EPMbEW5Ocx
#SpinalCSFLeakAwarenessWeek

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

Last night, June 3, #NiagaraFalls and the @TourCNTower shone purple in recognition of #SpinalCSFLeakAwarenessWeek.
Thank you to the Niagara Falls Illumination Board & the CN Tower for helping shine a light on this often underrecognized condition.
#StandUpForSpinalCSFLeakPatients

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

Thank you @TourCNTower / Merci!💜

[CN Tower / Tour CN @TourCNTower]

Tonight the #CNTower will be lit purple for Spinal CSF Leak Week Awareness

Ce soir, la #TourCN sera illuminée en violet pour la Semaine de sensibilisation à la fuite de liquide céphalo-rachidien

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

💜 Last night, June 2, 2026, the Esplanade Riel Bridge in Winnipeg was shining purple in recognition of #SpinalCSFLeakAwarenessWeek.

Thank you, the city of winnipeg, for your support, and Corinne Rachel for capturing these beautiful photos.💜

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

We are honoured to share that Mayor @oliviachow has
proclaimed June 1–7, 2026, as Spinal Cerebrospinal Fluid Leak Awareness Week in the City of #Toronto.

Thank you to Mayor Olivia Chow &Toronto City Council for this important recognition.
#SpinalCSFLeakWeek2026

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

We are honoured to share that the Province of British Columbia has proclaimed June 1–7, 2026 as #SIH & #SpinalCSFLeakAwarenessWeek. 💜
We extend our sincere gratitude to the Honourable Wendy Cocchia, Lieutenant Governor of British Columbia.

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

We are thrilled to share that this year’s #SpinalCSFLeakAwarenessweek collaboration has grown from 3 organizations to 5. Together, we're raising awareness, promoting earlier diagnosis, and supporting those living with this highly disabling neurological condition.

[WouterSchievink @WouterSchievink]

Does CSF only flow in one direction through CSF-venous fistulas or can blood leak back into the subarachnoid space from the venous circulation? In this study we postulate that to and fro flow can happen in these fistulas @spinalCSFleak @issclsociety https://t.co/14D1REEbiV

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

A huge thank you to all the incredible physicians who generously shared their knowledge and expertise and helped shine a light on this often underdiagnosed and disabling neurological condition.

Thank you #CNSF for the opportunity.

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

𝐇𝐢𝐠𝐡𝐥𝐢𝐠𝐡𝐭𝐬 𝐟𝐫𝐨𝐦 𝐭𝐡𝐞 #𝐒𝐈𝐇 𝐒��𝐬𝐬𝐢𝐨𝐧 𝐨𝐧 “𝐋𝐚𝐭𝐞𝐬𝐭 𝐀𝐝𝐯𝐚𝐧𝐜𝐞𝐬 𝐢𝐧 #𝐒𝐩𝐢𝐧𝐚𝐥𝐂𝐒𝐅𝐋𝐞𝐚𝐤 𝐃𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬 𝐚��𝐝 𝐌𝐚𝐧𝐚𝐠𝐞𝐦𝐞𝐧𝐭" 𝐚𝐭 𝐭𝐡𝐞 @CNSFNeuroLinks 𝐂𝐨𝐧𝐠𝐫𝐞𝐬𝐬 2026.

[Andrew L Callen MD @AndrewCallenMD]

Now online in @TheAJNR :

In patients with suspected #spinalCSFleak but negative myelography, higher spinal compliance was associated with clinical benefit after subsequent empiric blood patching.

Not a decision rule, but an interesting physiologic signal in a tough subgroup.

https://t.co/KueEoWECGW

[Andrew L Callen MD @AndrewCallenMD]

“Classic” textbook orthostatic headache was actually more common in the myelography-negative group than in patients with confirmed CVF.

The most common CVF phenotype was instead “partial orthostatic” headache: posture clearly matters, but not in the clean binary way we traditionally describe.

This does NOT mean orthostatic headache is unimportant.

It does suggest we may need a more nuanced understanding of what a “good story for a leak” actually looks like in low-Bern patients.

[Andrew L Callen MD @AndrewCallenMD]

New @TheAJNR #CSFLeak paper out today:

https://t.co/7pOA0dlPT0

We focused specifically on low-Bern patients, the diagnostically ambiguous group where clinical history often drives the decision to pursue myelography for suspected CVF.

One of the most interesting findings was… ↓