@CSFLeakMatters Fortunately, in my long 10 year struggle, I have only come across this once. Buy and large my family and friends are stuck with me. Thank God.
@CSFLeakMatters SIH professionals must start to look beyond their domain to understand why a complex case is complex. I suspect underlying IIH, itself caused by something else, will prove to be a big factor in these long haul leakers.
Dr Deborah Friedman’s study of quality of life scores of patients with #CSFleak were significantly worse than in the validation cohorts of patients with AIDS and cancer. 64% wishing to be dead, 23% suicidal behavior. #spinalcsfleak#patientcare#chronicillness#patientsuicide
🚨We’re excited to share our amazing speaker lineup and program for the 2nd Canadian SIH Conference, taking place May 31–June 1, 2025 (Toronto & virtual).
📍Please save the date - Registration will open soon!
>>https://t.co/K09jugfzp9