Emily's Entourage

Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies.

[Emily's Entourage @EmilysEntourage]

We’re proud to support NEW research from Jacob Witten, PhD at @mit using artificial intelligence to rapidly screen and identify next-generation lipid nanoparticles (LNPs) designed specifically for inhaled #cysticfibrosis gene therapy.

👉 Learn more: https://t.co/IJBpvZG9TA

#CF

[Emily's Entourage @EmilysEntourage]

🦠 New EE-funded research @ucsdmedschool to develop inhaled therapy combining phages + antibiotics to target drug-resistant infections.

For people with #CF, this could help restore effectiveness of antibiotics; expand options.

👉 Learn more: https://t.co/S5pIiD5h8O

[Emily's Entourage @EmilysEntourage]

Join us on October 22 for the 2026 EE gala, The Crystal Palace: A Feat of Innovation ✨🌿

📍NEW indoor venue: Fairmount Park Horticulture Center
💻 In-person or virtual

🔗 Purchase tickets: https://t.co/hltYNQnl8U

#EECrystalPalace #CureCF #CysticFibrosis

[Emily's Entourage @EmilysEntourage]

What if we could get gene editing through #CF mucus… not stuck in it? ❌➡️🧬

That’s exactly what our newly funded research grant, awarded to researchers at @JohnsHopkins is tackling.

👉 Learn more: https://t.co/hbkrmNfCG9

@HopkinsMedicine #CureCF #CysticFibrosis #CFResearch

[Emily's Entourage @EmilysEntourage]

🚨New #CysticFibrosis Grant Announcement 🚨

We're thrilled to announce new funding for researchers from @nationwidekids & @ucsf focused on making gene therapies for #CF more durable.

👉 Learn more: https://t.co/6V1HPoVgWk

#CureCF #GeneTherapy

[Emily's Entourage @EmilysEntourage]

🧬 Join us for our inaugural State of the Science: EE Edition webinar—an exclusive opportunity to hear about the research, strategy, and scientific roadmap driving hope forward for the final 10% of people w/ #CF.

📅 9/1/26
🕢 7:30pm ET

Register today: https://t.co/reiQITru3u

[Emily's Entourage @EmilysEntourage]

🚨🧬 A #CF #clinicaltrial opportunity has been added to Emily’s Entourage CF Clinical Trial Connect (CTC)!

If you’re already registered, check your inbox 📩 Not part of the CTC yet? This is your sign to join.

🔗 Learn more + sign up: https://t.co/KffJ1Nkqvs

#CureCF

[Emily's Entourage @EmilysEntourage]

Lifesaving breakthroughs don’t happen by chance. They’re cultivated. 🏡🪴✨

On Oct. 22, join us for the 2026 EE Gala as we create the precise conditions for progress for the final 10%.

🔗 Add to calendar: https://t.co/XL653wfR9F

#EECrystalPalace #CureCF #CysticFibrosis #CF

[Emily's Entourage @EmilysEntourage]

While #CysticFibrosisAwareness Month may be ending, our resolve here at Emily’s Entourage is stronger than ever.

We’ll keep racing until we #CrossOutCF—for every single person living with #cysticfibrosis and the people who love them.

100%, full stop! ❌💜

#CureCF #CF

[Emily's Entourage @EmilysEntourage]

🔎 #FactFriday: Advanced In 2024, more than 97.3% of individuals with advanced lung disease were adults, with a median age of just 36.8 years.

Progress has changed what’s possible. But for many in the #cysticfibrosis community, progress is still beyond reach.

#CrossOutCF

[Emily's Entourage @EmilysEntourage]

🔎 #FactFriday: On average, people with #CF spend nearly two weeks per year hospitalized due to pulmonary exacerbations.

That’s time away from work, family, and living life to its fullest.

💜 Share to help raise awareness this #CFAwarenessMonth as we work to #CrossOutCF.

[Emily's Entourage @EmilysEntourage]

🔎 #FactFriday: According to EE's Final 10% Survey, 70.4% of adults with #CF spend 1–4 hours every day on treatments to open their airways and help move mucus in their lungs.🤯

That’s up to 25% of waking hours spent tethered to medical treatments—just to breathe!!!

#CrossOutCF

[Emily's Entourage @EmilysEntourage]

#SpeakUpCF: From constant worry and insidious "what ifs" to the quiet calculations behind everyday decisions, #cysticfibrosis is an exhausting disease. 🫩

💬 What’s something no one talks about when it comes to life with #CF?

Share with us ⬇️

#CrossOutCF #CureCF

[Emily's Entourage @EmilysEntourage]

🔎 #FactFriday: There are nearly 40,000 individuals living with #cysticfibrosis in the U.S. and 105,000 worldwide.

That’s 105,000 reasons to move faster.

Time is of the essence. 100% or bust.

💜 Share to help raise awareness this #CFAwarenessMonth as we work to #CrossOutCF.

[Emily's Entourage @EmilysEntourage]

It’s May 1—#CysticFibrosisAwareness Month begins!

Join us as we #CrossOutCF by peeling back assumptions and reveal what life with #cysticfibrosis really looks like. ❌💜

🔗 Learn more: https://t.co/BKfGeDtQNr

#CureCF #CF #CFAwareness

[Emily's Entourage @EmilysEntourage]

A powerful perspective: rare disease is one of the largest unmet medical needs—and this moment is different because we finally have the tools to act.

We’re working to bring this progress to #CF.

Read more >>> https://t.co/hhKrYpkdxZ

#CureCF #CysticFibrosis #RareDisease

[Emily's Entourage @EmilysEntourage]

💥 Big news from Emily’s Entourage!

We’ve appointed David A. Waltz, MD, as our first-ever Chief Medical Officer—accelerating progress toward new therapies for the final 10% with #cysticfibrosis.

Learn more: https://t.co/HBalku1avf

#CureCF #CFAwareness #CFScience

[Emily's Entourage @EmilysEntourage]

Bold ideas. Relentless tenacity. Unstoppable women. 💜

Today, on #nternationalWomensDay, we celebrate the passion, leadership, & determination of the remarkable women in the #cysticfibrosis community.

We are endlessly grateful—& forever inspired. 💪💜

#CureCF

[Emily's Entourage @EmilysEntourage]

That’s a wrap!

#RareDiseaseWeek has come to a close—
but don’t get it twisted: the work doesn’t end here.

Because the rare community doesn’t stop at “almost.”

That’s the thing about those of us who are #MadeThisWay: we refuse to leave anyone behind.💥

#CureCF #RareDisease

[Emily's Entourage @EmilysEntourage]

✨ Today, rare takes center stage. It’s #RareDiseaseDay—a moment to honor the grit, heart, & connection of the #raredisease community.

At EE, rare isn’t hidden. It’s carried with pride. It fuels our push for lifesaving change.

You are #ExtraordinRARE.
You are #MadeThisWay. 💜